Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Aug 1997.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
87 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
9 people listed on the 990; $90K paid to officers and key staff.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Madonna McGuire Smith | $88,148 | $90,465 | $85,562 | $82,812 | $76,069 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Educates and supports people with hemophilia and bleeding disorders, improving their quality of life.
Questions for Pacific Northwest Bleeding Disorders
Your first name shows with your question. Pacific Northwest Bleeding Disorders answers here, for everyone.
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Several events are held for youth, adolescents, and their families. These events allow those directly affected by hemophilia and other bleeding disorders a supporting environment to interact with others who share their condition.
The summer camp program serves 70 to 80 children and young adults each year. The camp is held at camp tapawingo in falls city, oregon. The children have a wide range of activities including archery, swimming, hiking, canoeing, arts and crafts, and much more. Campers participate as they are capable, each setting his or her own pace.
Several meetings and conferences are held to present new developments in treatment, program opportunities, insurance, and other important issues to the bleeding disorder community.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $326K | $265K |
| InvestmentsLn 11–13 | $143K | $145K |
| Total assetsLn 16 | $537K | $464K |
| LiabilitiesLn 26 | $27K | $31K |
| Net assetsLn 32 | $510K | $433K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic individualsLn 2 | $14K | $14K | ||
| Pay of current officers, directors and key staffLn 5 | $90K | $53K | $24K | $14K |
| Other salaries and wagesLn 7 | $96K | $57K | $25K | $14K |
| Payroll taxesLn 10 | $16K | $9K | $4K | $2K |
| Accounting feesLn 11c | $4K | $2K | $1K | $591 |
| Other fees for servicesLn 11g | $2K | $1K | $476 | $274 |
| Office expensesLn 13 | $11K | $7K | $3K | $2K |
| OccupancyLn 16 | $21K | $12K | $6K | $3K |
| Conferences, conventions and meetingsLn 19 | $21K | $21K | $9 | $5 |
| InsuranceLn 23 | $11K | $6K | $3K | $2K |
| Other expenses (24a–d)Ln 24 | $516K | $513K | $2K | $1K |
| All other expensesLn 24e | $4K | $3K | $277 | $159 |
| Total functional expensesLn 25 | $807K | $700K | $68K | $39K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $887K | $887K | −$809 | $439K | 990 PDF |
| FY2023 Viewing | $720K | $807K | −$87K | $433K | 990 PDF |
| FY2022 | $603K | $661K | −$58K | $510K | 990 PDF |
| FY2021 | $629K | $535K | $94K | $594K | 990 PDF |
| FY2020 | $549K | $459K | $91K | $494K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $720,101 revenue, 12 lines filed
Part VI · Governance 8 of 8 board members independent, no flags
Part VIII · Statement of revenue $720,101 across 9 lines filed
Part IX · Statement of functional expenses $806,644 across 12 lines filed
Part X · Balance sheet $464,290 assets, 12 lines filed
Part XI · Reconciliation of net assets $433,047 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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