Raising awareness of aortic disease and marfan syndrome

501(c)(3) charity; gifts are tax-deductible.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78

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FY2023 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 2
filings with a surplus
Average surplus $247K a year · 96% of revenue · last 2 filings
Looks good: a surplus in 2 of the last 2 filings.
Pt I · Ln 19 · 2 filings
Spent on programs
0%
of spending
Concern: 0% of spending went to programs; under 50%.
Pt IX · Ln 25 · col B
4136 mo
of spending, in cash
Looks good: 4135.9 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $2K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
12
of 12 voting members
Looks good: 12 of 12 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$333K
Spent
$963
To programs
0%
Net assets
$332K
By yearFY2023–FY2024
Revenue
$333K
FY2023
Tap a bar for its year
Revenue by fiscal year
FY2023$333K
FY2024$185K
Expenses
$963
FY2023
Tap a bar for its year
Expenses by fiscal year
FY2023$963
FY2024$22K
Net assets
$332K
FY2023
Tap a bar for its year
Net assets by fiscal year
FY2023$332K
FY2024$495K

From the FY2023 Form 990 · see the original

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You’re viewing the FY2023 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jan 2024.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

What each dollar paid for.

Management & general 100% · $963

Form 990 Part IX, line 25. Every line is in By the numbers.

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Who runs it and what they're paid

12 people listed on the 990.

Part VII, Section A · reportable compensation
President & Chairman
$0Pt VII · Sec A
Secretary & Treasurer
$0Pt VII · Sec A
Program Director
$0Pt VII · Sec A
Social Media Director
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
See Michael Henter Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Educates the public about aortic disease and Marfan syndrome.

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Provided by the organization

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1 program · in their own filed words · FY2023
01

Raising awareness for marfan syndrome, promoting general heart health and screenings, and advancing research related to genetic cardiovascular conditions

Pt IX · col B

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 1 funder$2K
Grants paid · 1 grant · $20K · 2024–2024
The Marfan Foundation INCNY · FY2024$20,000

By the numbers

The FY2023 990, line by line.

1The main four
Money inPt VIII
$333K
Ln 12
Gifts and grantsLn 1h$252K
Other incomeLn 4–11$79K
Investment incomeLn 3$2K
Money outPt IX
$963
Ln 25
Managementcol C$963
Owns and owesPt X
$332K
net assets · Ln 32
Cash and savingsLn 1–2$332K
Total assetsLn 16$332K
LiabilitiesLn 26$0
PeoplePt VI, VII
12
listed · VII A
PaidVII A0
Voting boardVI 1a12
IndependentVI 1b12
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$252K
Noncash giftsLn 1g$22K
Fundraising eventsLn 1c$67K
Investment incomeLn 3$2K
Other incomeLn 4–11$79K
Total revenueLn 12$333K
Assets in detailPt X, end of year
CashLn 1$332K
Cash and savings togetherLn 1–2$332K
Total assetsLn 16$332K
LiabilitiesLn 26$0
Net assetsLn 32$332K
OperationsPt I, VI
EmployeesI 50
VolunteersI 616
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY23End FY23
Cash and savingsLn 1–2$332K
Total assetsLn 16$0$332K
LiabilitiesLn 26$0$0
Net assetsLn 32$0$332K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Office expensesLn 13$768$768
Information technologyLn 14$195$195
Total functional expensesLn 25$963$0$963$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $185K$22K$163K$495K 990 PDF
FY2023 Viewing $333K$963$332K$332K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2023 990 (6 parts)
Part I · Summary $332,869 revenue, 12 lines filed
I-8 Contributions and grants$251,888
I-9 Program service revenue$0
I-10 Investment income$1,886
I-11 Other revenue$79,095
I-12 Total revenue$332,869
I-13 Grants and similar amounts paid$0
I-14 Benefits paid to members$0
I-15 Salaries and benefits$0
I-16a Professional fundraising fees$0
I-17 Other expenses$963
I-18 Total expenses$963
I-19 Revenue less expenses$331,906
Part VI · Governance 12 of 12 board members independent, 4 to look at
VI-1a Voting members of the governing body12
VI-1b Independent voting members12
VI-2 Family or business relationship among officers or directorsYes
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $332,869 across 7 lines filed
Lines not itemized here account for $2,930 of total revenue; see the IRS return.
VIII-1c Fundraising events$67,273
VIII-1f All other contributions, gifts and grants$184,615
VIII-1g Noncash contributions (included above)$21,557
VIII-1h Total contributions, gifts and grants$251,888
VIII-3 Investment incomeExcluded from tax $1,886$1,886
VIII-8 Net income from fundraising eventsExcluded from tax $76,165$76,165
VIII-12 Total revenueRelated to mission $2,930 · Unrelated business $0 · Excluded from tax $78,051$332,869
Part IX · Statement of functional expenses $963 across 2 lines filed
IX-13 Office expensesManagement $768$768
IX-14 Information technologyManagement $195$195
IX-25 Total functional expensesPrograms $0 · Management $963 · Fundraising $0$963
Part X · Balance sheet $331,906 assets, 5 lines filed
X-1 Cash, non-interest-bearing$331,906
X-16 Total assetsStart of year $0$331,906
X-26 Total liabilitiesStart of year $0$0
X-32 Total net assets or fund balancesStart of year $0$331,906
X-33 Total liabilities and net assetsStart of year $0$331,906
Part XI · Reconciliation of net assets $331,906 net assets at year end
XI-1 Total revenue$332,869
XI-2 Total expenses$963
XI-3 Revenue less expenses$331,906
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$331,906

Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File

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