Our mission is to raise awareness and fund cutting-edge clinical research for pediatric brain cancer; focusing on cancer's biggest bully, dipg.

501(c)(3) charity; gifts are tax-deductible.
73¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 2
filings with a surplus
Average surplus $121K a year · 55% of revenue · last 2 filings
Looks good: a surplus in 2 of the last 2 filings.
Pt I · Ln 19 · 2 filings
Spent on programs
73%
of spending
Fine: 73% of spending went to programs; 65% to 75%.
Pt IX · Ln 25 · col B
140 mo
of spending, in cash
Looks good: 139.6 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $10K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
9
of 9 voting members
Looks good: 9 of 9 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$213K
Spent
$18K
To programs
73%
Net assets
$208K
By yearFY2024–FY2025
Revenue
$213K
FY2024
Tap a bar for its year
Revenue by fiscal year
FY2024$213K
FY2025$228K
Expenses
$18K
FY2024
Tap a bar for its year
Expenses by fiscal year
FY2024$18K
FY2025$180K
Net assets
$208K
FY2024
Tap a bar for its year
Net assets by fiscal year
FY2024$208K
FY2025$255K

From the FY2024 Form 990 · see the original

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You’re viewing the FY2024 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Apr 2023.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

73 cents of each dollar spent went to programs.

Program services 73% · $13K Management & general 27% · $5K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

9 people listed on the 990.

Part VII, Section A · reportable compensation
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Medical Director
$0Pt VII · Sec A
Legal Counsel
$0Pt VII · Sec A
Secretary
$0Pt VII · Sec A
$0Pt VII · Sec A
Vice Chairman
$0Pt VII · Sec A

Erin Slivka’s $8K as Chairwoman is at the 9th percentile of top reported officer pay among 1265 $100K–1M philanthropy & grantmaking nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

See The Ayla Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Fund research and raise awareness for pediatric brain cancer, especially DIPG.

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Provided by the organization

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1 program · $13K · in their own filed words · FY2024
01

Our mission is to raise awareness and funding for cutting-edge clinical research for pediatric brain cancer, focusing on DIPG/DMG. We have three strategic pillars to help fulfill this mission: ADVOCACY/AWARENESS, family support, and clinical research. 1.

$13Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Total grants receivedfrom 1 funder$10K
Grants paid · 2 grants · $140K · 2025–2025
The Cure Starts Now INCOH · FY2025$126,185
Unitemized GrantFY2025$13,800

By the numbers

The FY2024 990, line by line.

1The main four
Money inPt VIII
$213K
Ln 12
Gifts and grantsLn 1h$206K
Other incomeLn 4–11$6K
Investment incomeLn 3$2K
Money outPt IX
$18K
Ln 25
Programscol B$13K
Managementcol C$5K
Owns and owesPt X
$208K
net assets · Ln 32
Cash and savingsLn 1–2$208K
Total assetsLn 16$208K
LiabilitiesLn 26$0
PeoplePt VI, VII
9
listed · VII A
PaidVII A0
Voting boardVI 1a9
IndependentVI 1b9
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$206K
Noncash giftsLn 1g$2K
Fundraising eventsLn 1c$5K
Investment incomeLn 3$2K
Other incomeLn 4–11$6K
Total revenueLn 12$213K
Assets in detailPt X, end of year
CashLn 1$208K
Cash and savings togetherLn 1–2$208K
Total assetsLn 16$208K
LiabilitiesLn 26$0
Net assetsLn 32$208K
OperationsPt I, VI
EmployeesI 50
VolunteersI 624
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$13K$208K
Total assetsLn 16$13K$208K
LiabilitiesLn 26$0$0
Net assetsLn 32$13K$208K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$2K$2K
Accounting feesLn 11c$2K$2K
Advertising and promotionLn 12$5K$5K
Office expensesLn 13$113$113
Information technologyLn 14$4K$2K$2K
TravelLn 17$4K$4K
Other expenses (24a–d)Ln 24$1K$572$458
Total functional expensesLn 25$18K$13K$5K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest $228K$180K$47K$255K 990 PDF
FY2024 Viewing $213K$18K$195K$208K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2024 990 (6 parts)
Part I · Summary $213,229 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $0$205,514
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$2,103
I-11 Other revenuePrior year $0$5,612
I-12 Total revenuePrior year $0$213,229
I-13 Grants and similar amounts paidPrior year $0$1,518
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $0$16,358
I-18 Total expensesPrior year $0$17,876
I-19 Revenue less expensesPrior year $0$195,353
Part VI · Governance 9 of 9 board members independent, 4 to look at
VI-1a Voting members of the governing body9
VI-1b Independent voting members9
VI-2 Family or business relationship among officers or directorsYes
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-15a Process for setting top official's payNo
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $213,229 across 7 lines filed
Lines not itemized here account for −$900 of total revenue; see the IRS return.
VIII-1c Fundraising events$5,000
VIII-1f All other contributions, gifts and grants$200,514
VIII-1g Noncash contributions (included above)$1,500
VIII-1h Total contributions, gifts and grants$205,514
VIII-3 Investment incomeExcluded from tax $2,103$2,103
VIII-8 Net income from fundraising eventsExcluded from tax $6,512$6,512
VIII-12 Total revenueRelated to mission −$900 · Unrelated business $0 · Excluded from tax $8,615$213,229
Part IX · Statement of functional expenses $17,876 across 7 lines filed
IX-1 Grants to domestic organizationsPrograms $1,518$1,518
IX-11c Accounting feesManagement $1,941$1,941
IX-12 Advertising and promotionPrograms $4,657$4,657
IX-13 Office expensesPrograms $113$113
IX-14 Information technologyPrograms $1,928 · Management $2,352$4,280
IX-17 TravelPrograms $4,337$4,337
IX-24 Other expenses (24a–d)Programs $572 · Management $458$1,030
IX-25 Total functional expensesPrograms $13,125 · Management $4,751 · Fundraising $0$17,876
Part X · Balance sheet $207,930 assets, 5 lines filed
X-1 Cash, non-interest-bearingStart of year $12,577$207,930
X-16 Total assetsStart of year $12,577$207,930
X-26 Total liabilitiesStart of year $0$0
X-32 Total net assets or fund balancesStart of year $12,577$207,930
X-33 Total liabilities and net assetsStart of year $12,577$207,930
Part XI · Reconciliation of net assets $207,930 net assets at year end
XI-1 Total revenue$213,229
XI-2 Total expenses$17,876
XI-3 Revenue less expenses$195,353
XI-4 Net assets at start of year$12,577
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$207,930

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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