Our mission is to provide advocacy, education, and resources to individuals who fit the Pda profile of autism and their families along with the professionals who support them.

501(c)(3) charity; gifts are tax-deductible.
57¢ of each $1 spent went to programs.
$74K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · Pay: Part VII

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 2
filings with a surplus
Average surplus $92K a year · 19% of revenue · last 2 filings
Looks good: a surplus in 2 of the last 2 filings.
Pt I · Ln 19 · 2 filings
Spent on programs
57%
of spending
Worth a look: 57% of spending went to programs; under 65%.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$74K
to officers and key staff · 18% of spending
Fine: pay to officers and key staff is 18% of spending; 15% to 20%.
Pt VII · Sec A
6 mo
of spending, in cash
Looks good: 5.6 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
3
named funders · $7K
Looks good: 3 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
11
of 11 voting members
Looks good: 11 of 11 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$503K
+12% vs prior year
Spent
$415K
To programs
57%
Net assets
$194K
By yearFY2023–FY2025
Revenue
$503K
FY2025▲ +12%
Tap a bar for its year
Revenue by fiscal year
FY2023$109K
FY2024$450K
FY2025$503K
Expenses
$415K
FY2025▲ +17%
Tap a bar for its year
Expenses by fiscal year
FY2023Not on file
FY2024$355K
FY2025$415K
Net assets
$194K
FY2025▲ +84%
Tap a bar for its year
Net assets by fiscal year
FY2023$33K
FY2024$105K
FY2025$194K

From the FY2025 Form 990 · see the original

Give Claim

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Dec 2022.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

57 cents of each dollar spent went to programs.

Program services 57% · $235K Management & general 33% · $138K Fundraising 10% · $42K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

12 people listed on the 990; $74K paid to officers and key staff.

Part VII, Section A · reportable compensation
President & Executive Director
$73,645Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A

Diane Gould Demarteau’s $74K as President & Executive Director is at the 51st percentile of top reported officer pay among 1031 $100K–1M civil rights & advocacy nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 1 named individual · Part VII

NameFY2025FY2024FY2023
Diane Gould Demarteau$73,645$40,625$20,656

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Pda North America executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Advocates for individuals with PDA autism, offering education and resources to families and professionals.

Questions for Pda North America

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Provided by the organization

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3 programs · $180K · in their own filed words · FY2025
01

Pda north america's annual conference was a three-day hybrid event that brings together leading experts, clinicians, educators, caregivers, and autistic individuals to deepen understanding of pathological demand avoidance (pda). Over 500 attendees participated in the 2025 conference.

$112Kprogram expense
02

Pda north america's live webinars are held virtually via zoom and feature expert speakers and lived-experience voices, designed to educate clinicians, educators, and caregivers about pathological demand avoidance (pda). These interactive sessions feature expert-led presentations and question and answer sessions.

$40Kprogram expense
03

Pda north america offers a number of pre-recorded webinars and conference sessions through the online pda north america learning lab. It offers trainings for parents & professionals, 50+ webinars, digital downloads and resources for those looking to broaden their understanding and support of pathological demand avoidance (pda).

$28Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record
Grants received · FY2024
Total grants receivedfrom 3 funders$7K
See all 3 funders →

By the numbers

The FY2025 990, line by line.

1The main four
Money inPt VIII
$503K
Ln 12
Fees for servicesLn 2g$427K
Gifts and grantsLn 1h$74K
Investment incomeLn 3$2K
Money outPt IX
$415K
Ln 25
Programscol B$235K
Managementcol C$138K
Fundraisingcol D$42K
Owns and owesPt X
$194K
net assets · Ln 32
Cash and savingsLn 1–2$194K
Total assetsLn 16$194K
LiabilitiesLn 26$0
PeoplePt VI, VII
12
listed · VII A
PaidVII A1
Voting boardVI 1a11
IndependentVI 1b11
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$74K
Fees for servicesLn 2g$427K
Investment incomeLn 3$2K
Total revenueLn 12$503K
Assets in detailPt X, end of year
CashLn 1$101K
SavingsLn 2$92K
Cash and savings togetherLn 1–2$194K
Total assetsLn 16$194K
LiabilitiesLn 26$0
Net assetsLn 32$194K
OperationsPt I, VI
EmployeesI 53
VolunteersI 60
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$108K$194K
Total assetsLn 16$108K$194K
LiabilitiesLn 26$3K$0
Net assetsLn 32$105K$194K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Pay of current officers, directors and key staffLn 5$74K$29K$37K$7K
Other salaries and wagesLn 7$129K$49K$51K$29K
Payroll taxesLn 10$16K$6K$7K$3K
Legal feesLn 11b$2K$2K
Accounting feesLn 11c$6K$6K
Other fees for servicesLn 11g$104K$77K$27K
Advertising and promotionLn 12$442$442
Office expensesLn 13$5K$2K$2K$943
TravelLn 17$2K$2K
Conferences, conventions and meetingsLn 19$64K$64K
InsuranceLn 23$2K$791$892$369
Other expenses (24a–d)Ln 24$10K$4K$4K$1K
Total functional expensesLn 25$415K$235K$138K$42K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $503K$415K$88K$194K 990 PDF
FY2024 $450K$355K$96K$105K 990 PDF
FY2023 $109K$33K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2025 990 (6 parts)
Part I · Summary $503,239 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $60,922$74,271
I-9 Program service revenuePrior year $377,909$426,992
I-10 Investment incomePrior year $0$2,231
I-11 Other revenuePrior year $11,613−$255
I-12 Total revenuePrior year $450,444$503,239
I-13 Grants and similar amounts paidPrior year $0$0
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $110,591$219,129
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $244,032$195,632
I-18 Total expensesPrior year $354,623$414,761
I-19 Revenue less expensesPrior year $95,821$88,478
Part VI · Governance 11 of 11 board members independent, 3 to look at
VI-1a Voting members of the governing body11
VI-1b Independent voting members11
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $503,239 across 5 lines filed
Lines not itemized here account for −$255 of total revenue; see the IRS return.
VIII-1f All other contributions, gifts and grants$74,271
VIII-1h Total contributions, gifts and grants$74,271
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $426,992$426,992
VIII-3 Investment incomeExcluded from tax $2,231$2,231
VIII-12 Total revenueRelated to mission $426,737 · Unrelated business $0 · Excluded from tax $2,231$503,239
Part IX · Statement of functional expenses $414,761 across 12 lines filed
IX-5 Pay of current officers, directors and key staffPrograms $29,458 · Management $36,823 · Fundraising $7,365$73,646
IX-7 Other salaries and wagesPrograms $48,814 · Management $51,411 · Fundraising $29,126$129,351
IX-10 Payroll taxesPrograms $6,220 · Management $7,012 · Fundraising $2,900$16,132
IX-11b Legal feesManagement $2,500$2,500
IX-11c Accounting feesManagement $5,500$5,500
IX-11g Other fees for servicesPrograms $76,811 · Management $27,238$104,049
IX-12 Advertising and promotionManagement $442$442
IX-13 Office expensesPrograms $2,023 · Management $2,280 · Fundraising $943$5,246
IX-17 TravelPrograms $1,851$1,851
IX-19 Conferences, conventions and meetingsPrograms $64,181$64,181
IX-23 InsurancePrograms $791 · Management $892 · Fundraising $369$2,052
IX-24 Other expenses (24a–d)Programs $4,441 · Management $4,159 · Fundraising $1,211$9,811
IX-25 Total functional expensesPrograms $234,590 · Management $138,257 · Fundraising $41,914$414,761
Part X · Balance sheet $193,652 assets, 8 lines filed
X-1 Cash, non-interest-bearingStart of year $108,413$101,421
X-2 Savings and temporary cash investments$92,231
X-16 Total assetsStart of year $108,413$193,652
X-17 Accounts payable and accrued expensesStart of year $3,239$0
X-26 Total liabilitiesStart of year $3,239$0
X-27 Net assets without donor restrictionsStart of year $105,174$193,652
X-32 Total net assets or fund balancesStart of year $105,174$193,652
X-33 Total liabilities and net assetsStart of year $108,413$193,652
Part XI · Reconciliation of net assets $193,652 net assets at year end
XI-1 Total revenue$503,239
XI-2 Total expenses$414,761
XI-3 Revenue less expenses$88,478
XI-4 Net assets at start of year$105,174
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$193,652

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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