Rory Belle Foundation EIN 88-1920584 Form 990 (PDF) Claim this org

Rory Belle Foundation

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Brings joy to children and families facing NARS1 disease. For fiscal year 2024 it reported $302K in revenue, $104K in expenses, and $465K in net assets.Pt I

Type
Public charity (501(c)(3)) · Medical Research
Location
Denver, CO
Website
www.therorybellefoundation.org
Filings
3 on file (2022–2024)
Revenue
$302KFY2024
Expenses
$104K
Net assets
$465K
People
6
Filings
3
Updates
0
More identity details & actions ⌄
EIN  88-1920584 Public charity (501(c)(3)) Denver, CO
Form 990 (PDF)
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Size
$100K–1M
What they do
Brings joy to children and families facing NARS1 disease.
Leadership
Rachel Heilmann · Cofounderdirresearch
Money in and out
$302K revenue, $104K expenses
Bottom line
94% program efficiency
Where the money goes · FY2024
Total revenue
$302K
Pt VIII · Ln 12
Total expenses
$104K
Pt IX · Ln 25
Net assets
$465K
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): $198K
Where spending went · Part IX cols B–D
Program services $0.94 Management & general $0.02 Fundraising $0.04
Program efficiency
94%
of spending reaches programs▲ ×12 vs prior filing year
Operating runway
60.1mo
months of highly liquid reserves at operating expense rate
Surplus margin
+65%
revenue over expenses, this year▼ -33% vs prior filing year

Summary of the Filing

Part I · fiscal year 2024 · Form 990
Revenue
$302K
FY2024▲ +41%
Expenses
$104K
FY2024▲ ×20
Total assets
$468K
FY2024▲ +75%
Total liabilities
$3K
FY2024▲ ×16
Total revenue
$302K
Pt VIII · Ln 12
Total expenses
$104K
Pt IX · Ln 25
Net assets
$465K
Pt X · Ln 32
Revenue less expensesPt I · Ln 19$198K
Total assetsPt X · Ln 16$468K
Program-expense ratioPt IX · col B94%
Voting members of governing bodyPt I · Ln 36
Independent voting membersPt I · Ln 46

Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CRory Belle Foundation
EINHdr · item D88-1920584
Principal addressHdr · item CDenver, CO
WebsiteHdr · item Jwww.therorybellefoundation.org
Year of formationHdr · item Lpending
State of legal domicileHdr · item MCO
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFMedical Research (H20)
Ruling yearIRS BMFJul 2022

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a6
Independent voting membersPt VI · Ln 1b6
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13No
Document retention policyPt VI · Ln 14No
CEO/top-official compensation independently reviewedPt VI · Ln 15aNo
Family or business relationships among officers/directorsPt VI · Ln 2Yes

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
Cofounderdirresearch
$0Pt VII · Sec A
Board Chair Dir Dev
$0Pt VII · Sec A
$0Pt VII · Sec A
Executive Director
$0Pt VII · Sec A
$0Pt VII · Sec A
Dir of Patient Engage
$0Pt VII · Sec A
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Mission & Programs · Part III

Where the work happens

3 program services account for $98K of program spending, described in the organization's own filed words · FY2024.
01

Nars 1 Drug Repurposing Accomplishments

Funded and completed drug screening project.

$70Kprogram expense
02

Nars 1 Genetic Research Accomplishments

Established grant program, funded first grant, and identified additional grants to be awarded for 2025. Continued fundraising to support grant program. Grew research network and outlined research plan. Expanded patient registery and biorepository. Developed cell lines.

$21Kprogram expense
03

Nars 1 Disorder Awarness Accomplishments

Board members attended and contributed to scientific conferences. Received and deployed grant funding for translation services. Compiled NARS1 resources for impacted families. Grew NARS1 community through social media channels.

$7Kprogram expense

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Statement of Revenue

Part VIII
Contributions & grants$264K · 87%
Other revenue$31K · 10%
Investment income$8K · 2%
Contributions & grants87%$264K
Other revenue10%$31K
Investment income2%$8K
Total revenueLn 12$302K

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.94 Management & general $0.02 Fundraising $0.04
Program services94%$98K
Management & general2%$2K
Fundraising4%$4K
Total functional expensesLn 25$104K

Balance Sheet

Part X · end of year
CashLn 1$467K
Total assetsLn 16$468K
Total liabilitiesLn 26$3K
Total net assetsLn 32$465K
Months of cash on handcomputed53.7

Financial Metrics

Form 990 · FY2024 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $467K · Operating expenses (Pt IX) $104K · Less non-cash grants $11K · Cash operating expenses/yr $93K
60.1 months
Where the money goes
Program services
Program services $98K · Total expenses $104K
94%
Management & General
Management & general $2K · Total expenses $104K
2%
Fundraising
Fundraising $4K · Total expenses $104K
4%
Cost to raise $1
Fundraising expense (2-yr avg) $4K · Solicited contributions (2-yr avg) $229K
$0.02 to raise $1 (2-yr avg)
Where the money comes from
Contribution dependence
Contributions & grants $264K · Total revenue $302K
87%
Government reliance
Government grants — · Total revenue $302K
Earned-income share
Program service revenue $0 · Total revenue $302K
0%
Investment reliance
Investment income $8K · Total revenue $302K
+2%
Program self-sufficiency
Program service revenue $0 · Total expenses $104K
0%
Growth & trend
Revenue growth (YoY)
This year $302K · Prior year $215K
+41%
Net-asset trend (YoY)
End of year $465K · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $302K · Expenses $104K
+65%
Liabilities-to-Assets
Total liabilities — · Total assets $468K
Net-asset ratio
Net assets $465K · Total assets $468K
99%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) — · Other securities (Pt X, ln 12) — · Total assets (Pt X, ln 16) $468K
Excludes program-related investments (Pt X, ln 13)
People & payroll
Highest Reported Total Compensation
Individual Rachel Heilmann · Reported title COFOUNDERDIRRESEARCH · Highest reported compensation $0 · Total expenses $104K
0%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) — · Total expenses $104K
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 94%
Overhead ratio 2%
Fundraising cost ratio 1%
Revenue growth 41%
Legal fee ratio 0.04%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2024
James Gang INCFY2024$10K
Total grants receivedfrom 4 funders$31K
See all 4 funders →
Grants paid · 1 grant · $10K · 2024–2024
Uplifting Athletes INCPA · FY2024$10,000

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2024 (Latest)$302K revenue · viewing · ⤓ 990 PDF
FY2023$215K revenue · ⤓ 990 PDF
FY2022$60K revenue · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2024IRS
Classification, formation year, addressIRS Business Master File
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