Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jan 2023.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
92 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
13 people listed on the 990; $1.1M paid to officers and key staff.
Nancy Smith’s $226K as President & Executive Director is at the 81st percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 |
|---|---|---|---|
| Nancy Smith | $225,515 | $223,601 | $104,173 |
| Charity Hope Secretary | $183,727 | $168,657 | — |
| Sandra Harrell Director | $158,945 | $157,012 | — |
| Allison Hastings | $140,130 | $123,074 | — |
| Olga Trujillo Director | — | $139,031 | — |
| Olga Trujillo Dir Ldr Dev | $115,334 | — | — |
| Liam Esposito | $113,858 | $100,892 | — |
| Jannette Brickman | $107,290 | $105,857 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Advocates to stop disabling people from being victimized, criminalized, or institutionalized.
Questions for Activating Change INC
Your first name shows with your question. Activating Change INC answers here, for everyone.
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Creating Pathways to Healing
This year, we supported 40 multidisciplinary collaborations across the country providing sustained assistance to redesign local responses to survivors with disabilities. We trained 2,830 professionals and delivered 832 high-touch consultations to help frontline advocates respond to survivors' complex needs.
Expanding Deaf Services and Advocacy
We trained 291 deaf advocates and delivered 128 tailored consultations rooted in language justice and healing. We supported 116 hearing providers to become more culturally responsive and trauma informed.
Ending Criminalization and Incarceration
Through our defending access initiative, we expanded partnerships and deepened engagement in the public defense space. We presented at two in-person national conferences, delivered 13 trainings across four states reaching over 400 justice system professionals, and hosted a virtual event alongside the release of a co-authored white paper…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $1.3M | $2.4M |
| Total assetsLn 16 | $2.8M | $2.7M |
| LiabilitiesLn 26 | $217K | $183K |
| Net assetsLn 32 | $2.6M | $2.5M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $210K | $210K | ||
| Pay of current officers, directors and key staffLn 5 | $696K | $657K | $37K | $3K |
| Other salaries and wagesLn 7 | $1.6M | $1.5M | $81K | |
| Pension plan contributionsLn 8 | $52K | $51K | $866 | |
| Other employee benefitsLn 9 | $291K | $284K | $8K | |
| Payroll taxesLn 10 | $183K | $175K | $7K | $176 |
| Accounting feesLn 11c | $31K | $31K | ||
| Professional fundraising feesLn 11e | $4K | $4K | ||
| Other fees for servicesLn 11g | $410K | $357K | $45K | $8K |
| Advertising and promotionLn 12 | $12K | $12K | ||
| Office expensesLn 13 | $86K | $49K | $31K | $7K |
| Information technologyLn 14 | $8K | $5K | $4K | |
| TravelLn 17 | $55K | $51K | $4K | |
| Conferences, conventions and meetingsLn 19 | $3K | $3K | ||
| InsuranceLn 23 | $12K | $12K | ||
| Other expenses (24a–d)Ln 24 | $229 | $229 | ||
| Total functional expensesLn 25 | $3.7M | $3.4M | $259K | $22K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $3.6M | $3.7M | −$54K | $2.5M | 990 PDF |
| FY2024 | $4.4M | $3.8M | $548K | $2.6M | 990 PDF |
| FY2023 | $2.7M | $3.4M | −$697K | $2.0M | 990 PDF |
| FY2022 | $2.8M | $569K | $2.3M | $2.7M | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $3,616,441 revenue, 12 lines filed
Part VI · Governance 4 of 5 board members independent, no flags
Part VIII · Statement of revenue $3,616,441 across 6 lines filed
Part IX · Statement of functional expenses $3,670,724 across 16 lines filed
Part X · Balance sheet $2,690,803 assets, 11 lines filed
Part XI · Reconciliation of net assets $2,507,351 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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