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The Coalition for Genetic Data FY2022 filing

Washington, DCUnknown exempt organizationEIN 87-4821255Revenue $732K in FY2022

On file with the IRSgeneticdataprotection.com2001 K Street Nw 3rd Floor North · Washington, DC

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To provide a unified and proactive voice to advance policies that ensure the privacy and security of an individual's Genetic Data and enable responsible innovation.

82¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Programs: Part IX

Before you give

FY2022 · Form 990Independent: from IRS data, not the org
Download 990
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
3 of 3
filings with a surplus
Average surplus $0 a year · under 1% of revenue · last 3 filings
Looks good: a surplus in 3 of the last 3 filings.
Pt I · Ln 19 · 3 filings
Spent on programs
82%
of spending
Looks good: 82% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
<1 mo
of spending, in cash
Concern: 0.2 months of spending in cash; under 2 weeks.
Pt X · Ln 1–2 · Pt I · Ln 18
Liabilities
$54K
100% of total assets
Concern: liabilities are 100% of assets; over 80%.
Pt X · Ln 26
Independent board members
3
of 3 voting members
Looks good: 3 of 3 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$732K
Spent
$732K
To programs
82%
Net assets
$0
By yearFY2022–FY2025
Revenue
$732K
FY2022
Tap a bar for its year
Revenue by fiscal year
FY2022$732K
FY2023$1.0M
FY2025$215K
Expenses
$732K
FY2022
Tap a bar for its year
Expenses by fiscal year
FY2022$732K
FY2023$1.0M
FY2025$215K
Net assets
$0
FY2022
Tap a bar for its year
Net assets by fiscal year
FY2022$0
FY2023$0
FY2025$0

From the FY2022 Form 990 · see the original

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You’re viewing the FY2022 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

82 cents of each dollar spent went to programs.

Program services 82% · $600K Management & general 18% · $132K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

4 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Ann Blackwood
Executive Director
$0Pt VII · Sec A
See The Coalition for Genetic Data executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Advocates for policies protecting genetic data privacy and enabling responsible innovation.

Questions for The Coalition for Genetic Data

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Your first name shows with your question. The Coalition for Genetic Data answers here, for everyone.

Provided by the organization

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1 program · $600K · in their own filed words · FY2022
01

The coalition for genetic data protection, inc. (CGDP) advocates for public policy on the state and federal levels that ensure the privacy and security of individuals' genetic data information, predominantly through lobbying and education.

$600Kprogram expense

By the numbers

The FY2022 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$732K
Ln 12
Gifts and grantsLn 1h$732K
Money outPt IX
$732K
Ln 25
Programscol B$600K
Managementcol C$132K
Owns and owesPt X
$0
net assets · Ln 32
Cash and savingsLn 1–2$12K
Total assetsLn 16$54K
LiabilitiesLn 26$54K
PeoplePt VI, VII
4
listed · VII A
PaidVII A0
Voting boardVI 1a3
IndependentVI 1b3
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$732K
Total revenueLn 12$732K
Assets in detailPt X, end of year
CashLn 1$12K
Cash and savings togetherLn 1–2$12K
Total assetsLn 16$54K
LiabilitiesLn 26$54K
Net assetsLn 32$0
OperationsPt I, VI
EmployeesI 50
VolunteersI 63
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY22End FY22
Cash and savingsLn 1–2$12K
Total assetsLn 16$0$54K
LiabilitiesLn 26$0$54K
Net assetsLn 32$0$0
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Management feesLn 11a$138K$7K$131K
Legal feesLn 11b$9K$9K
Lobbying feesLn 11d$530K$530K
Office expensesLn 13$665$215$450
Information technologyLn 14$292$292
Conferences, conventions and meetingsLn 19$8K$8K
Other expenses (24a–d)Ln 24$47K$47K
Total functional expensesLn 25$732K$600K$132K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest $215K$215K$0$0 990 PDF
FY2024 Not on file
FY2023 $1.0M$1.0M$0$0 990 PDF
FY2022 Viewing $732K$732K$0$0 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants O · Explanations
See the full FY2022 990 (6 parts)
Part I · Summary $731,976 revenue, 12 lines filed
I-8 Contributions and grants$731,976
I-9 Program service revenue$0
I-10 Investment income$0
I-11 Other revenue$0
I-12 Total revenue$731,976
I-13 Grants and similar amounts paid$0
I-14 Benefits paid to members$0
I-15 Salaries and benefits$0
I-16a Professional fundraising fees$0
I-17 Other expenses$731,976
I-18 Total expenses$731,976
I-19 Revenue less expenses$0
Part VI · Governance 3 of 3 board members independent, 4 to look at
VI-1a Voting members of the governing body3
VI-1b Independent voting members3
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
Part VIII · Statement of revenue $731,976 across 3 lines filed
VIII-1f All other contributions, gifts and grants$731,976
VIII-1h Total contributions, gifts and grants$731,976
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$731,976
Part IX · Statement of functional expenses $731,976 across 7 lines filed
IX-11a Management feesPrograms $6,900 · Management $131,100$138,000
IX-11b Legal feesPrograms $8,597$8,597
IX-11d Lobbying feesPrograms $529,874$529,874
IX-13 Office expensesPrograms $215 · Management $450$665
IX-14 Information technologyPrograms $292$292
IX-19 Conferences, conventions and meetingsPrograms $7,690$7,690
IX-24 Other expenses (24a–d)Programs $46,858$46,858
IX-25 Total functional expensesPrograms $600,426 · Management $131,550 · Fundraising $0$731,976
Part X · Balance sheet $54,469 assets, 8 lines filed
X-1 Cash, non-interest-bearing$11,998
X-4 Accounts receivable$42,471
X-16 Total assetsStart of year $0$54,469
X-17 Accounts payable and accrued expenses$44,107
X-19 Deferred revenue$10,362
X-26 Total liabilitiesStart of year $0$54,469
X-32 Total net assets or fund balancesStart of year $0$0
X-33 Total liabilities and net assetsStart of year $0$54,469
Part XI · Reconciliation of net assets $0 net assets at year end
XI-1 Total revenue$731,976
XI-2 Total expenses$731,976
XI-3 Revenue less expenses$0
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$0

Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File

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