The Graeme McDaniel Foundation is dedicated to funding congenital heart defect research and supporting heart families in a charitable capacity.

501(c)(3) charity; gifts are tax-deductible.
99¢ of each $1 spent went to programs.
Run by 50 volunteers.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
3 of 4
filings with a surplus
Average surplus $34K a year · 7% of revenue · last 4 filings
Fine: a surplus in 3 of the last 4 filings.
Pt I · Ln 19 · 4 filings
Spent on programs
99%
of spending
Looks good: 99% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
<1 mo
of spending, in cash
Plus $787K in investments, Pt X · Ln 11–13
Fine: 0.3 months of spending in cash, plus $787K in investments.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
8
named funders · $89K
Looks good: 8 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
5
of 5 voting members
Looks good: 5 of 5 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$893K
+31% vs prior year
Spent
$974K
To programs
99%
Net assets
$811K
By yearFY2022–FY2025
Revenue
$893K
FY2025▲ +31%
Tap a bar for its year
Revenue by fiscal year
FY2022$170K
FY2023$334K
FY2024$489K
FY2024$682K
FY2025$893K
Expenses
$974K
FY2025▲ ×103
Tap a bar for its year
Expenses by fiscal year
FY2022$51K
FY2023$307K
FY2024$416K
FY2024$9K
FY2025$974K
Net assets
$811K
FY2025▼ -9%
Tap a bar for its year
Net assets by fiscal year
FY2022$118K
FY2023$145K
FY2024$219K
FY2024$892K
FY2025$811K

From the FY2025 Form 990 · figures checked against the IRS filing · see the original

Give Claim

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Sep 2021.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

99 cents of each dollar spent went to programs.

Program services 99% · $961K Management & general 1% · $13K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

5 people listed on the 990.

Part VII, Section A · reportable compensation
President & CEO
$0Pt VII · Sec A
Chairman of the Board
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
See The Graeme McDaniel Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research for congenital heart defects and supports affected families.

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Provided by the organization

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1 program · $961K · in their own filed words · FY2025
01

Raised over $940,000 in funds that provided grants for congenital heart defect research to hospitals and support for families affected by children with congentital heart defects. In 2025, a total of 12 CHD research projects totaling $956,950 were funded as well as $4000 in support for 2 families to cover expenses after their heart babies…

$961Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 8 funders →
Grants paid · 18 grants · $1.7M · 2021–2025
Texas Children's HospitalTX · FY2025$130,000
Polyvascular INCFY2025$115,000
Ucsd School of Medicinerady Children's Hospital of San DiegoFY2025$100,000
Duke UniversityNC · FY2025$99,090
Ut Health Science Center at HoustonFY2025$94,270
Johns Hopkins UniversityMD · FY2025$57,000
Texas Children's HospitalTX · FY2023$150,000
Ut Health Science Center at HoustonFY2023$100,000
Duke UniversityNC · FY2023$99,999
Ut Health Science Center at HoustonFY2022$150,000
Texas Children's HospitalTX · FY2022$100,000
Texas Children's HospitalTX · FY2021$50,000

By the numbers

The FY2025 990, line by line.

1The main four
Money inPt VIII
$893K
Ln 12
Other incomeLn 4–11$559K
Gifts and grantsLn 1h$318K
Investment incomeLn 3$17K
Money outPt IX
$974K
Ln 25
Programscol B$961K
Managementcol C$13K
Owns and owesPt X
$811K
net assets · Ln 32
Cash and savingsLn 1–2$24K
Total assetsLn 16$811K
LiabilitiesLn 26$0
PeoplePt VI, VII
5
listed · VII A
PaidVII A0
Voting boardVI 1a5
IndependentVI 1b5
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$318K
Investment incomeLn 3$17K
Other incomeLn 4–11$559K
Total revenueLn 12$893K
Assets in detailPt X, end of year
CashLn 1$24K
Cash and savings togetherLn 1–2$24K
InvestmentsLn 11–13$787K
Total assetsLn 16$811K
LiabilitiesLn 26$0
Net assetsLn 32$811K
OperationsPt I, VI
EmployeesI 50
VolunteersI 650
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$792K$24K
InvestmentsLn 11–13$100K$787K
Total assetsLn 16$892K$811K
LiabilitiesLn 26$0$0
Net assetsLn 32$892K$811K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$957K$957K
Grants to domestic individualsLn 2$4K$4K
Office expensesLn 13$556$556
InsuranceLn 23$333$333
Other expenses (24a–d)Ln 24$12K$12K
Total functional expensesLn 25$974K$961K$13K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $893K$974K−$81K$811K 990 PDF
FY2024 $489K$416K$74K$219K 990 PDF
FY2023 $334K$307K$27K$145K 990 PDF
FY2022 $170K$51K$118K$118K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2025 990 (6 parts)
Part I · Summary $893,013 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $268,459$317,572
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$16,655
I-11 Other revenuePrior year $413,901$558,786
I-12 Total revenuePrior year $682,360$893,013
I-13 Grants and similar amounts paidPrior year $4,000$960,950
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $5,416$13,028
I-18 Total expensesPrior year $9,416$973,978
I-19 Revenue less expensesPrior year $672,944−$80,965
Part VI · Governance 5 of 5 board members independent, 4 to look at
VI-1a Voting members of the governing body5
VI-1b Independent voting members5
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
Part VIII · Statement of revenue $893,013 across 5 lines filed
VIII-1f All other contributions, gifts and grants$317,572
VIII-1h Total contributions, gifts and grants$317,572
VIII-3 Investment incomeExcluded from tax $16,655$16,655
VIII-8 Net income from fundraising eventsExcluded from tax $558,786$558,786
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $575,441$893,013
Part IX · Statement of functional expenses $973,978 across 5 lines filed
IX-1 Grants to domestic organizationsPrograms $956,950$956,950
IX-2 Grants to domestic individualsPrograms $4,000$4,000
IX-13 Office expensesManagement $556$556
IX-23 InsuranceManagement $333$333
IX-24 Other expenses (24a–d)Management $12,139$12,139
IX-25 Total functional expensesPrograms $960,950 · Management $13,028 · Fundraising $0$973,978
Part X · Balance sheet $810,893 assets, 6 lines filed
X-1 Cash, non-interest-bearingStart of year $791,858$24,238
X-12 Other securitiesStart of year $100,000$786,655
X-16 Total assetsStart of year $891,858$810,893
X-26 Total liabilitiesStart of year $0$0
X-32 Total net assets or fund balancesStart of year $891,858$810,893
X-33 Total liabilities and net assetsStart of year $891,858$810,893
Part XI · Reconciliation of net assets $810,893 net assets at year end
XI-1 Total revenue$893,013
XI-2 Total expenses$973,978
XI-3 Revenue less expenses−$80,965
XI-4 Net assets at start of year$891,858
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$810,893

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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