Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Apr 2000.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
54 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
8 people listed on the 990; $58K paid to officers and key staff.
Tammy Crawford’s $39K as President & Executive Dire is at the 34th percentile of top reported officer pay among 2216 $100K–1M arts & culture nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Tammy Crawford | $38,954 | $77,414 | $94,232 | $60,000 | $57,500 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
- Loans to or from officersSch L · Pt II1 listed
Programs and updates
Improves Lyme disease diagnostics, treatment, prevention, and patient advocacy.
Questions for Focus on Lyme Foundation
Your first name shows with your question. Focus on Lyme Foundation answers here, for everyone.
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Scientific conferences, educational forums and research activities related to the primary purpose of the foundation.
Distribution of funds to organizations whose primary purpose and activities enhance the health & welfare of children and / or to organizations assisting in the research, treatment, testing and diagnosis of lyme and other tick-born diseases.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $53K | $41K |
| Total assetsLn 16 | $65K | $47K |
| LiabilitiesLn 26 | $535 | $0 |
| Net assetsLn 32 | $64K | $47K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $2K | $2K | ||
| Pay of current officers, directors and key staffLn 5 | $58K | $58K | ||
| Other employee benefitsLn 9 | $7K | $7K | ||
| Payroll taxesLn 10 | $4K | $4K | ||
| Legal feesLn 11b | $6K | $540 | $6K | |
| Accounting feesLn 11c | $6K | $6K | ||
| Other fees for servicesLn 11g | $5K | $5K | ||
| Advertising and promotionLn 12 | $785 | $785 | ||
| Office expensesLn 13 | $3K | $92 | $3K | |
| TravelLn 17 | $5K | $5K | ||
| Other expenses (24a–d)Ln 24 | $92K | $89K | $3K | |
| All other expensesLn 24e | $3K | $3K | $676 | |
| Total functional expensesLn 25 | $192K | $104K | $87K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $180K | $150K | $30K | $49K | 990 PDF |
| FY2023 | $184K | $265K | −$81K | $19K | 990 PDF |
| FY2022 | $233K | $201K | $32K | $100K | 990 PDF |
| FY2021 | $161K | $141K | $20K | $67K | 990 PDF |
| FY2020 Viewing | $174K | $192K | −$18K | $47K | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $173,968 revenue, 12 lines filed
Part VI · Governance 0 of 8 board members independent, 2 to look at
Part VIII · Statement of revenue $173,968 across 4 lines filed
Part IX · Statement of functional expenses $191,600 across 12 lines filed
Part X · Balance sheet $46,648 assets, 6 lines filed
Part XI · Reconciliation of net assets $46,648 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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