L-Cmd Research foundation's purpose is to urgently translate available technologies into impactful treatments for L-Cmd now.

501(c)(3) charity; gifts are tax-deductible.
98¢ of each $1 spent went to programs.
Run by 10 volunteers.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
4 of 5
filings with a surplus
Average surplus $378K a year · 67% of revenue · last 5 filings
Fine: a surplus in 4 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
98%
of spending
Looks good: 98% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
6 mo
of spending, in cash
Plus $1.8M in investments, Pt X · Ln 11–13
Looks good: 5.5 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $10K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$43K
2% of total assets
Looks good: liabilities are 2% of assets; 50% or less.
Pt X · Ln 26
Independent board members
7
of 9 voting members
Looks good: 7 of 9 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$333K
-6% vs prior year
Spent
$407K
To programs
98%
Net assets
$1.9M
By yearFY2020–FY2025
Revenue
$333K
FY2025▼ -6%
Tap a bar for its year
Revenue by fiscal year
FY2020$125K
FY2021$1.5M
FY2022$351K
FY2023$313K
FY2024$355K
FY2025$333K
Expenses
$407K
FY2025▲ +32%
Tap a bar for its year
Expenses by fiscal year
FY2020Not on file
FY2021$45K
FY2022$77K
FY2023$82K
FY2024$309K
FY2025$407K
Net assets
$1.9M
FY2025▼ -4%
Tap a bar for its year
Net assets by fiscal year
FY2020$9K
FY2021$1.4M
FY2022$1.7M
FY2023$2.0M
FY2024$2.0M
FY2025$1.9M

From the FY2025 Form 990 · see the original

Give Claim

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Mar 2021.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

98 cents of each dollar spent went to programs.

Program services 98% · $397K Management & general 2% · $9K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

9 people listed on the 990.

Part VII, Section A · reportable compensation
President
$0Pt VII · Sec A
Vice President
$0Pt VII · Sec A
Treasurer
$0Pt VII · Sec A
Secretary
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
See L-Cmd Research Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Accelerates developing treatments for L-CMD using existing technologies.

Questions for L-Cmd Research Foundation

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Provided by the organization

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1 program · $397K · in their own filed words · FY2025
01

L-CMD research foundation is focused on identifying and supporting research teams worldwide that are developing impactful treatments for L-CMD. In 2025, L-CMD research foundation supported projects involved in the discovery and development of treatments for L-CMD.

$397Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 1 funder$10K
Grants paid · 19 grants · $648K · 2021–2025
University of MassachussetsMA · FY2025$79,148
Curi BioFY2025$52,344
Ixcells BiotechnologiesFY2025$43,181
Synoligo BiotechnologiesFY2025$35,712
CellogicsFY2025$12,000
Hox INCFY2025$6,000
La Jolla LabsFY2025$5,400
University of MassachussetsMA · FY2024$79,148
Ixcells BiotechnologiesFY2024$45,048
La Jolla LabsFY2024$41,317
Pharmalegacy Research LLC DBA Bts ResearchFY2024$34,244
Curi BioFY2024$28,335
Synoligo BiotechnologiesFY2024$14,100
Everlum Bio INCFY2023$42,800
Ixcells BiotechnologiesFY2023$32,225
University of MarylandFY2022$46,523
See all 19 grants →

By the numbers

The FY2025 990, line by line.

1The main four
Money inPt VIII
$333K
Ln 12
Gifts and grantsLn 1h$272K
Investment incomeLn 3$75K
Money outPt IX
$407K
Ln 25
Programscol B$397K
Managementcol C$9K
Owns and owesPt X
$1.9M
net assets · Ln 32
Cash and savingsLn 1–2$188K
Total assetsLn 16$2.0M
LiabilitiesLn 26$43K
PeoplePt VI, VII
9
listed · VII A
PaidVII A0
Voting boardVI 1a9
IndependentVI 1b7
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$272K
Noncash giftsLn 1g$16K
Fundraising eventsLn 1c$26K
Investment incomeLn 3$75K
Gains on assetsLn 7$75K
Total revenueLn 12$333K
Assets in detailPt X, end of year
CashLn 1$188K
Cash and savings togetherLn 1–2$188K
InvestmentsLn 11–13$1.8M
Other assetsLn 15$2K
Total assetsLn 16$2.0M
LiabilitiesLn 26$43K
Net assetsLn 32$1.9M
OperationsPt I, VI
EmployeesI 50
VolunteersI 610
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$298K$188K
InvestmentsLn 11–13$1.7M$1.8M
Total assetsLn 16$2.0M$2.0M
LiabilitiesLn 26$0$43K
Net assetsLn 32$2.0M$1.9M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$300K$300K
Grants and assistance to foreign recipientsLn 3$98K$98K
Accounting feesLn 11c$4K$4K
InsuranceLn 23$1K$1K
Other expenses (24a–d)Ln 24$4K$4K
Total functional expensesLn 25$407K$397K$9K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $333K$407K−$74K$1.9M 990 PDF
FY2024 $355K$309K$45K$2.0M 990 PDF
FY2023 $313K$82K$231K$2.0M 990 PDF
FY2022 $351K$77K$274K$1.7M 990 PDF
FY2021 $1.5M$45K$1.4M$1.4M 990 PDF
FY2020 $125K$9K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support F · Foreign O · Explanations
See the full FY2025 990 (6 parts)
Part I · Summary $332,804 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $307,651$272,240
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $57,050$74,592
I-11 Other revenuePrior year −$9,882−$14,028
I-12 Total revenuePrior year $354,819$332,804
I-13 Grants and similar amounts paidPrior year $305,412$397,473
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $3,956$9,437
I-18 Total expensesPrior year $309,368$406,910
I-19 Revenue less expensesPrior year $45,451−$74,106
Part VI · Governance 7 of 9 board members independent, 2 to look at
VI-1a Voting members of the governing body9
VI-1b Independent voting members7
VI-2 Family or business relationship among officers or directorsYes
VI-15a Process for setting top official's payNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $332,804 across 8 lines filed
VIII-1c Fundraising events$26,255
VIII-1f All other contributions, gifts and grants$245,985
VIII-1g Noncash contributions (included above)$15,699
VIII-1h Total contributions, gifts and grants$272,240
VIII-3 Investment incomeExcluded from tax $89$89
VIII-7 Net gain or loss on sales of assetsExcluded from tax $74,503$74,503
VIII-8 Net income from fundraising eventsExcluded from tax −$14,028−$14,028
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $60,564$332,804
Part IX · Statement of functional expenses $406,910 across 5 lines filed
IX-1 Grants to domestic organizationsPrograms $299,943$299,943
IX-3 Grants and assistance to foreign recipientsPrograms $97,530$97,530
IX-11c Accounting feesManagement $4,375$4,375
IX-23 InsuranceManagement $1,180$1,180
IX-24 Other expenses (24a–d)Management $3,882$3,882
IX-25 Total functional expensesPrograms $397,473 · Management $9,437 · Fundraising $0$406,910
Part X · Balance sheet $1,981,405 assets, 11 lines filed
X-1 Cash, non-interest-bearingStart of year $298,130$187,879
X-4 Accounts receivableStart of year $2,894$5,015
X-11 Publicly traded securitiesStart of year $1,715,340$1,786,356
X-15 Other assetsStart of year $4,355$2,155
X-16 Total assetsStart of year $2,020,719$1,981,405
X-17 Accounts payable and accrued expenses$43,262
X-26 Total liabilitiesStart of year $0$43,262
X-27 Net assets without donor restrictionsStart of year $2,017,825$1,933,128
X-28 Net assets with donor restrictionsStart of year $2,894$5,015
X-32 Total net assets or fund balancesStart of year $2,020,719$1,938,143
X-33 Total liabilities and net assetsStart of year $2,020,719$1,981,405
Part XI · Reconciliation of net assets $1,938,143 net assets at year end
XI-1 Total revenue$332,804
XI-2 Total expenses$406,910
XI-3 Revenue less expenses−$74,106
XI-4 Net assets at start of year$2,020,719
XI-5 Net unrealized gains (losses) on investments−$8,470
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$1,938,143

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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