We are a patient-driven organization seeking a cure and working to improve patients' quality of life and life expectancy worldwide.

501(c)(3) charity; gifts are tax-deductible.
92¢ of each $1 spent went to programs.
Run by 57 volunteers and 4 employees.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
4 of 5
filings with a surplus
Average surplus $951K a year · 35% of revenue · last 5 filings
Fine: a surplus in 4 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
92%
of spending
Looks good: 92% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$360K
to officers and key staff · 12% of spending
Looks good: pay to officers and key staff is 12% of spending; 15% or less.
Pt VII · Sec A
27 mo
of spending, in cash
Looks good: 27.2 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
17
named funders · $913K
Looks good: 17 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$383K
6% of total assets
Looks good: liabilities are 6% of assets; 50% or less.
Pt X · Ln 26
Independent board members
12
of 12 voting members
Looks good: 12 of 12 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$3.8M
+3% vs prior year
Spent
$2.9M
To programs
92%
Net assets
$6.5M
By yearFY2021–FY2025
Revenue
$3.8M
FY2025▲ +3%
Tap a bar for its year
Revenue by fiscal year
FY2021$1.8M
FY2022$1.6M
FY2023$2.6M
FY2024$3.7M
FY2025$3.8M
Expenses
$2.9M
FY2025▲ +54%
Tap a bar for its year
Expenses by fiscal year
FY2021$105K
FY2022$542K
FY2023$3.4M
FY2024$1.9M
FY2025$2.9M
Net assets
$6.5M
FY2025▲ +17%
Tap a bar for its year
Net assets by fiscal year
FY2021$3.4M
FY2022$4.5M
FY2023$3.7M
FY2024$5.5M
FY2025$6.5M

From the FY2025 Form 990 · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Mar 2021.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

92 cents of each dollar spent went to programs.

Program services 92% · $2.7M Management & general 6% · $183K Fundraising 2% · $50K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

15 people listed on the 990; $360K paid to officers and key staff.

Part VII, Section A · reportable compensation
Dor & Clinical Affairs, Ed 11/25
$205,600Pt VII · Sec A
Medical Team Project Manager
$128,708Pt VII · Sec A
Executive Director 1/25-2/25
$25,456Pt VII · Sec A
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
$0Pt VII · Sec A

Compensation history total reportable pay by year · 6 named individuals · Part VII

NameFY2025FY2024FY2023FY2022
Kenneth Culver$205,600———
Ken Culver—$197,072$188,665—
Lonna Smith——$147,875$12,500
Sadia Yaakov$128,708———
Scott Schell———$92,811
Suzanne Houssainy$25,456$85,600——

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Alk Positive Incorporated executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Empowering ALK-positive cancer patients globally with research, education, and resources to improve their lives.

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Provided by the organization

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1 program · $2.7M · in their own filed words · FY2025
01

Alk positive, inc. Is a patient driven 501(c)(3) nonprofit corporation providing support, empathy, and research funding to change the future for alk-positive cancer patients. Alk-positive cancer is estimated to occur in approximately 100,000 patients worldwide every year.

$2.7Mprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 17 funders →
Grants paid · 12 grants · $3.4M · 2023–2025

By the numbers

The FY2025 990, line by line.

1The main four
Money inPt VIII
$3.8M
Ln 12
Gifts and grantsLn 1h$3.6M
Investment incomeLn 3$169K
Fees for servicesLn 2g$23K
Money outPt IX
$2.9M
Ln 25
Programscol B$2.7M
Managementcol C$183K
Fundraisingcol D$50K
Owns and owesPt X
$6.5M
net assets · Ln 32
Cash and savingsLn 1–2$6.5M
Total assetsLn 16$6.9M
LiabilitiesLn 26$383K
PeoplePt VI, VII
15
listed · VII A
PaidVII A3
Voting boardVI 1a12
IndependentVI 1b12
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$3.6M
Fundraising eventsLn 1c$79K
Fees for servicesLn 2g$23K
Investment incomeLn 3$169K
Other incomeLn 4–11$11K
Gains on assetsLn 7−$1K
Total revenueLn 12$3.8M
Assets in detailPt X, end of year
CashLn 1$1.8M
SavingsLn 2$4.8M
Cash and savings togetherLn 1–2$6.5M
Other assetsLn 15$85K
Total assetsLn 16$6.9M
LiabilitiesLn 26$383K
Net assetsLn 32$6.5M
OperationsPt I, VI
EmployeesI 54
VolunteersI 657
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$4.6M$6.5M
Total assetsLn 16$5.6M$6.9M
LiabilitiesLn 26$93K$383K
Net assetsLn 32$5.5M$6.5M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$1.6M$1.6M
Pay of current officers, directors and key staffLn 5$240K$192K$29K$20K
Other salaries and wagesLn 7$228K$182K$27K$19K
Pension plan contributionsLn 8$2K$2K$253$178
Other employee benefitsLn 9$12K$9K$1K$987
Payroll taxesLn 10$44K$35K$5K$4K
Accounting feesLn 11c$58K$58K
Other fees for servicesLn 11g$7K$6K$813$63
Advertising and promotionLn 12$4K$4K
Office expensesLn 13$399$383$12$4
Information technologyLn 14$69K$67K$2K$331
TravelLn 17$64K$63K$399
Conferences, conventions and meetingsLn 19$7K$7K
InterestLn 20$800$800
Depreciation, depletion and amortizationLn 22$28K$27K$850$283
InsuranceLn 23$5K$5K$699$48
Other expenses (24a–d)Ln 24$511K$457K$54K$279
All other expensesLn 24e$34K$29K$5K$750
Total functional expensesLn 25$2.9M$2.7M$183K$50K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $3.8M$2.9M$948K$6.5M 990 PDF
FY2024 $3.7M$1.9M$1.8M$5.5M 990 PDF
FY2023 $2.6M$3.4M−$785K$3.7M 990 PDF
FY2022 $1.6M$542K$1.1M$4.5M 990 PDF
FY2021 $1.8M$105K$1.7M$3.4M 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support J · Pay O · Explanations
See the full FY2025 990 (6 parts)
Part I · Summary $3,836,237 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $3,574,743$3,633,246
I-9 Program service revenuePrior year $8,938$22,946
I-10 Investment incomePrior year $129,332$169,075
I-11 Other revenuePrior year $10,110$10,970
I-12 Total revenuePrior year $3,723,123$3,836,237
I-13 Grants and similar amounts paidPrior year $852,344$1,573,518
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $513,422$525,939
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $512,733$788,471
I-18 Total expensesPrior year $1,878,499$2,887,928
I-19 Revenue less expensesPrior year $1,844,624$948,309
Part VI · Governance 12 of 12 board members independent, no flags
VI-1a Voting members of the governing body12
VI-1b Independent voting members12
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $3,836,237 across 9 lines filed
VIII-1c Fundraising events$79,378
VIII-1f All other contributions, gifts and grants$3,553,868
VIII-1h Total contributions, gifts and grants$3,633,246
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $22,946$22,946
VIII-3 Investment incomeExcluded from tax $170,108$170,108
VIII-7 Net gain or loss on sales of assetsExcluded from tax −$1,033−$1,033
VIII-8 Net income from fundraising eventsExcluded from tax −$927−$927
VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Related to mission $11,897$11,897
VIII-12 Total revenueRelated to mission $34,843 · Unrelated business $0 · Excluded from tax $168,148$3,836,237
Part IX · Statement of functional expenses $2,887,928 across 18 lines filed
IX-1 Grants to domestic organizationsPrograms $1,573,518$1,573,518
IX-5 Pay of current officers, directors and key staffPrograms $191,787 · Management $28,539 · Fundraising $20,084$240,410
IX-7 Other salaries and wagesPrograms $181,797 · Management $27,052 · Fundraising $19,038$227,887
IX-8 Pension plan contributionsPrograms $1,698 · Management $253 · Fundraising $178$2,129
IX-9 Other employee benefitsPrograms $9,427 · Management $1,403 · Fundraising $987$11,817
IX-10 Payroll taxesPrograms $34,859 · Management $5,187 · Fundraising $3,650$43,696
IX-11c Accounting feesManagement $57,782$57,782
IX-11g Other fees for servicesPrograms $6,002 · Management $813 · Fundraising $63$6,878
IX-12 Advertising and promotionFundraising $3,879$3,879
IX-13 Office expensesPrograms $383 · Management $12 · Fundraising $4$399
IX-14 Information technologyPrograms $67,330 · Management $1,652 · Fundraising $331$69,313
IX-17 TravelPrograms $63,201 · Fundraising $399$63,600
IX-19 Conferences, conventions and meetingsPrograms $6,807$6,807
IX-20 InterestManagement $800$800
IX-22 Depreciation, depletion and amortizationPrograms $27,209 · Management $850 · Fundraising $283$28,342
IX-23 InsurancePrograms $4,647 · Management $699 · Fundraising $48$5,394
IX-24 Other expenses (24a–d)Programs $457,173 · Management $53,670 · Fundraising $279$511,122
IX-24e All other expensesPrograms $28,873 · Management $4,532 · Fundraising $750$34,155
IX-25 Total functional expensesPrograms $2,654,711 · Management $183,244 · Fundraising $49,973$2,887,928
Part X · Balance sheet $6,855,964 assets, 15 lines filed
X-1 Cash, non-interest-bearingStart of year $1,547,913$1,780,753
X-2 Savings and temporary cash investmentsStart of year $3,005,670$4,765,386
X-3 Pledges and grants receivableStart of year $588,902$166,408
X-4 Accounts receivableStart of year $4,000$480
X-9 Prepaid expenses and deferred chargesStart of year $51,071$54,597
X-14 Intangible assetsStart of year $3,312$3,312
X-15 Other assetsStart of year $407,870$85,028
X-16 Total assetsStart of year $5,617,504$6,855,964
X-17 Accounts payable and accrued expensesStart of year $92,939$117,567
X-18 Grants payable$265,445
X-26 Total liabilitiesStart of year $92,939$383,012
X-27 Net assets without donor restrictionsStart of year $3,576,304$5,497,789
X-28 Net assets with donor restrictionsStart of year $1,948,261$975,163
X-32 Total net assets or fund balancesStart of year $5,524,565$6,472,952
X-33 Total liabilities and net assetsStart of year $5,617,504$6,855,964
Part XI · Reconciliation of net assets $6,472,952 net assets at year end
XI-1 Total revenue$3,836,237
XI-2 Total expenses$2,887,928
XI-3 Revenue less expenses$948,309
XI-4 Net assets at start of year$5,524,565
XI-5 Net unrealized gains (losses) on investments$78
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$6,472,952

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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