Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Apr 2020.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
60 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
5 people listed on the 990.
Emily Fraser’s $18K as Admin Director is at the 9th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Improves life quality for families impacted by Duchenne muscular dystrophy.
Questions for Finns Friends
Your first name shows with your question. Finns Friends answers here, for everyone.
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Charleys Fund
For research to find a cure for duchenne muscular dystrophy
Jett Foundation
Empowers people and families impacted by duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a duchenne journey
Hunter's Heart Foundation
Providing comprehensive support and resources, championing research and treatment advancements, and raising public awareness about DMD
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $139K | $154K |
| Total assetsLn 16 | $139K | $154K |
| LiabilitiesLn 26 | $923 | $0 |
| Net assetsLn 32 | $138K | $154K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $60K | $60K | ||
| Grants to domestic individualsLn 2 | $50K | $50K | ||
| Legal feesLn 11b | $8K | $8K | ||
| Accounting feesLn 11c | $8K | $8K | ||
| Other fees for servicesLn 11g | $11K | $11K | ||
| Advertising and promotionLn 12 | $5K | $5K | ||
| Office expensesLn 13 | $15K | $15K | ||
| OccupancyLn 16 | $3K | $3K | ||
| TravelLn 17 | $9K | $9K | ||
| Conferences, conventions and meetingsLn 19 | $5K | $5K | ||
| Other expenses (24a–d)Ln 24 | $8K | $8K | ||
| All other expensesLn 24e | $1K | $1K | ||
| Total functional expensesLn 25 | $183K | $110K | $73K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $233K | $208K | $25K | $179K | 990 PDF |
| FY2023 Viewing | $212K | $183K | $29K | $154K | 990 PDF |
| FY2022 | $128K | $138K | 990 PDF | ||
| FY2021 | $69K | $26K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $212,357 revenue, 12 lines filed
Part VI · Governance 5 of 5 board members independent, 4 to look at
Part VIII · Statement of revenue $212,357 across 5 lines filed
Part IX · Statement of functional expenses $183,113 across 12 lines filed
Part X · Balance sheet $153,736 assets, 6 lines filed
Part XI · Reconciliation of net assets $153,736 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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