Form 990 for the fiscal year ending December 2021 (IRS tax year 2021).
Status and standing
Where the money goes
Statement of Functional Expenses
Financial health
Summary of the Filing
Balance Sheet
Statement of Revenue
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 34% | — | — |
| Overhead ratio | 66% | — | — |
| Fundraising cost ratio | 0% | — | — |
| Revenue growth | ×26 | — | — |
| Legal fee ratio | 22% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Leadership and pay
Officers, Directors & Key Employees
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|
| Amy Proal | $185,000 | $160,000 | $52,691 | $7,692 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Governance & Policies
Mission and programs
Funds research into health and complex illnesses.
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Where the work happens
We conceptualize collaborative research projects on ME/CFS, longcovid and related infection-associated chronic conditions. Our projects study "root cause" drivers of these conditions, and combine the skills of virologists, neuroscientists, pathologists, microbiome experts and patient advocates to maximize impact.
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Funders
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
Filing history
| Year | Revenue | Expenses | Change | Filing |
|---|---|---|---|---|
| FY2024 Latest | $4.3M | $14.1M | -75% | 990 PDF |
| FY2023 | $17.4M | $18.6M | -3% | 990 PDF |
| FY2022 | $17.9M | $4.3M | ×29 | 990 PDF |
| FY2021 Viewing | $623K | $34K | ×26 | 990 PDF |
| FY2020 | $24K | — | 990 PDF |
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Schedules filed Part IV
Not shown yet: ratings, outcomes, and peer benchmarks. A Form 990 doesn’t report them.
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