Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Apr 2020.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
42 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
1 person listed on the 990; $100K paid to officers and key staff.
Victoria Reese’s $150K as CEO is at the 52nd percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|---|
| Victoria Reese | $150,000 | $100,000 | $33,333 | $26,147 | $12,664 |
| Lauren Hutton-Work | — | — | — | — | $12,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Empowering and educating Black women with MS, improving their health and well-being.
Questions for We Are Ill
Your first name shows with your question. We Are Ill answers here, for everyone.
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Wellness Week(end) 2024
The purpose of Wellness Week(end) is to promote balancing health and wellness while providing resources that foster positive habits and behavior. Living with MS presents challenges that are unique to each individual and for Black women living with MS, the challenges can be even more complex.
Community reachout events to raise awareness about MS
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $128K | $142K |
| Total assetsLn 16 | $128K | $142K |
| LiabilitiesLn 26 | $0 | $3K |
| Net assetsLn 32 | $128K | $139K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $0 | $0 | ||
| Grants to domestic individualsLn 2 | $0 | $0 | ||
| Grants and assistance to foreign recipientsLn 3 | $0 | $0 | ||
| Benefits paid to or for membersLn 4 | $0 | $0 | ||
| Pay of current officers, directors and key staffLn 5 | $100K | $0 | $100K | $0 |
| Pay of disqualified personsLn 6 | $0 | $0 | $0 | $0 |
| Other salaries and wagesLn 7 | $0 | $0 | $0 | $0 |
| Pension plan contributionsLn 8 | $0 | $0 | $0 | $0 |
| Other employee benefitsLn 9 | $0 | $0 | $0 | $0 |
| Payroll taxesLn 10 | $4K | $0 | $4K | $0 |
| Management feesLn 11a | $0 | $0 | $0 | $0 |
| Legal feesLn 11b | $8K | $0 | $8K | $0 |
| Accounting feesLn 11c | $6K | $0 | $6K | $0 |
| Lobbying feesLn 11d | $0 | $0 | $0 | $0 |
| Professional fundraising feesLn 11e | $0 | $0 | ||
| Investment management feesLn 11f | $0 | $0 | $0 | $0 |
| Other fees for servicesLn 11g | $236K | $0 | $236K | $0 |
| Advertising and promotionLn 12 | $29K | $29K | ||
| Office expensesLn 13 | $13K | $13K | ||
| Information technologyLn 14 | $2K | $2K | ||
| RoyaltiesLn 15 | $0 | $0 | ||
| OccupancyLn 16 | $4K | $4K | ||
| TravelLn 17 | $29K | $29K | ||
| Conferences, conventions and meetingsLn 19 | $15K | $15K | ||
| InsuranceLn 23 | $2K | $2K | ||
| All other expensesLn 24e | $370K | $342K | $28K | |
| Total functional expensesLn 25 | $817K | $342K | $476K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $1.1M | $1.2M | −$24K | $114K | 990 PDF |
| FY2024 Viewing | $828K | $817K | $10K | $139K | 990 PDF |
| FY2023 | $425K | $335K | $90K | $128K | 990 PDF |
| FY2022 | $206K | $195K | $11K | $38K | 990 PDF |
| FY2021 | $131K | $24K | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $827,791 revenue, 12 lines filed
Part VI · Governance 5 of 5 board members independent, 2 to look at
Part VIII · Statement of revenue $827,791 across 9 lines filed
Part IX · Statement of functional expenses $817,471 across 26 lines filed
Part X · Balance sheet $141,613 assets, 7 lines filed
Part XI · Reconciliation of net assets $138,786 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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