Global Dare Foundation
Promote awareness and improve quality of life for those with Adult Refsum Disease through research and education. For fiscal year 2025 it reported $290K in revenue, $176K in expenses, and $390K in net assets.Pt I
- Type
- Public charity (501(c)(3)) · Diseases & Disorders
- Location
- South Portland, ME
- Filings
- 4 on file (2022–2025)
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Summary of the Filing
Where the work happens
Prioritize and Advance Research
Formed a patient-led research network to guide and advance a coordinated research roadmap for Adult Refsum Disease. Supported scientific leadership and issued a research grant to advance priority research initiatives and strengthen the foundation for future clinical studies.
Expanding Global Awareness
Increased awareness of Adult Refsum Disease through participation in national conferences and targeted educational outreach. Shared educational resources to improve recognition of symptoms and support earlier diagnosis.
Convening Scientific and Patient Communities
Convened scientific experts and individuals living with Adult Refsum Disease to strengthen collaboration, share research priorities, and align efforts to accelerate progress. Hosted community gatherings to foster connection, education, and engagement among affected individuals and families.
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Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 84% | — | — |
| Overhead ratio | 15% | — | — |
| Fundraising cost ratio | 0.7% | — | — |
| Revenue growth | 70% | — | — |
| Legal fee ratio | 0.1% | — | — |
| Accounting fee ratio | 3% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
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Filings & Schedule Manifest
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Sources
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