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Global Dare Foundation

Tax-deductible

South Portland, ME501(c)(3)Diseases & Disorders EIN 84-3343395Revenue $290K in FY2025

On file with the IRSdefeatadultrefsumeverywhere.org443 Western Ave Ste 1054, 04106-1726 · South Portland, METax-exempt since Nov 2019Publicly supported charity — 170(b)(1)(A)(vi)

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Global DARE Foundations mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease by supporting research, education initiatives, awareness campaigns, and advocacy.

501(c)(3) charity; gifts are tax-deductible.
84¢ of each $1 spent went to programs.
Run by 8 volunteers.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Spent on programs
84%
of spending
Looks good: 84% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
27 mo
of spending, in cash
Looks good: 26.7 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $14K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$5K
1% of total assets
Looks good: liabilities are 1% of assets; 50% or less.
Pt X · Ln 26
Independent board members
8
of 8 voting members
Looks good: 8 of 8 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$290K
+70% vs prior year
Spent
$176K
To programs
84%
Net assets
$390K
By yearFY2022–FY2025
Revenue
$290K
FY2025▲ +70%
Tap a bar for its year
Revenue by fiscal year
FY2022$68K
FY2023$59K
FY2024$171K
FY2025$290K
Net assets
$390K
FY2025▲ +41%
Tap a bar for its year
Net assets by fiscal year
FY2022$178K
FY2023$175K
FY2024$276K
FY2025$390K

From the FY2025 Form 990 · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Nov 2019.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

84 cents of each dollar spent went to programs.

Program services 84% · $147K Management & general 15% · $27K Fundraising 1% · $2K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

8 people listed on the 990.

Part VII, Section A · reportable compensation
Susan Kuranoff
Vice President
$0Pt VII · Sec A
$0Pt VII · Sec A
Heidi Page
Treasurer
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
See Global Dare Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Promote awareness and improve quality of life for those with Adult Refsum Disease through research and education.

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Provided by the organization

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3 programs · $147K · in their own filed words · FY2025
01

Prioritize and Advance Research

Formed a patient-led research network to guide and advance a coordinated research roadmap for Adult Refsum Disease. Supported scientific leadership and issued a research grant to advance priority research initiatives and strengthen the foundation for future clinical studies.

$127Kprogram expense
02

Expanding Global Awareness

Increased awareness of Adult Refsum Disease through participation in national conferences and targeted educational outreach. Shared educational resources to improve recognition of symptoms and support earlier diagnosis.

$12Kprogram expense
03

Convening Scientific and Patient Communities

Convened scientific experts and individuals living with Adult Refsum Disease to strengthen collaboration, share research priorities, and align efforts to accelerate progress. Hosted community gatherings to foster connection, education, and engagement among affected individuals and families.

$8Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Charities Aid Foundation AmericaFY2024$14K
Total grants receivedfrom 1 funder$14K
Grants paid · 1 grant · $35K · 2025–2025
Mass General Brigham IncorporatedMA · FY2025$35,000

By the numbers

The FY2025 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$290K
Ln 12
Gifts and grantsLn 1h$290K
Money outPt IX
$176K
Ln 25
Programscol B$147K
Managementcol C$27K
Fundraisingcol D$2K
Owns and owesPt X
$390K
net assets · Ln 32
Cash and savingsLn 1–2$393K
Total assetsLn 16$395K
LiabilitiesLn 26$5K
PeoplePt VI, VII
8
listed · VII A
PaidVII A0
Voting boardVI 1a8
IndependentVI 1b8
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$290K
Total revenueLn 12$290K
Assets in detailPt X, end of year
CashLn 1$393K
Cash and savings togetherLn 1–2$393K
Total assetsLn 16$395K
LiabilitiesLn 26$5K
Net assetsLn 32$390K
OperationsPt I, VI
EmployeesI 50
VolunteersI 68
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$276K$393K
Total assetsLn 16$276K$395K
LiabilitiesLn 26$0$5K
Net assetsLn 32$276K$390K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$35K$35K
Grants and assistance to foreign recipientsLn 3$25K$25K
Legal feesLn 11b$200$200
Accounting feesLn 11c$4K$4K
Other fees for servicesLn 11g$90K$69K$19K$2K
Advertising and promotionLn 12$524$498$26
Office expensesLn 13$589$19$547$23
Information technologyLn 14$3K$3K
TravelLn 17$7K$7K
Conferences, conventions and meetingsLn 19$11K$11K
Other expenses (24a–d)Ln 24$114$114
Total functional expensesLn 25$176K$147K$27K$2K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $290K$176K$114K$390K 990 PDF
FY2024 $171K$276K 990 PDF
FY2023 $59K$175K 990 PDF
FY2022 $68K$178K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support F · Foreign O · Explanations
See the full FY2025 990 (6 parts)
Part I · Summary $290,078 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $171,005$290,078
I-9 Program service revenue$0
I-10 Investment income$0
I-11 Other revenue$0
I-12 Total revenuePrior year $171,005$290,078
I-13 Grants and similar amounts paidPrior year $35,000$59,829
I-14 Benefits paid to members$0
I-15 Salaries and benefits$0
I-16a Professional fundraising feesPrior year $1,623$0
I-17 Other expensesPrior year $33,174$116,662
I-18 Total expensesPrior year $69,797$176,491
I-19 Revenue less expensesPrior year $101,208$113,587
Part VI · Governance 8 of 8 board members independent, 3 to look at
VI-1a Voting members of the governing body8
VI-1b Independent voting members8
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $290,078 across 4 lines filed
VIII-1f All other contributions, gifts and grants$290,078
VIII-1h Total contributions, gifts and grants$290,078
VIII-8 Net income from fundraising events$0
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$290,078
Part IX · Statement of functional expenses $176,491 across 11 lines filed
IX-1 Grants to domestic organizationsPrograms $35,000$35,000
IX-3 Grants and assistance to foreign recipientsPrograms $24,829$24,829
IX-11b Legal feesManagement $200$200
IX-11c Accounting feesManagement $4,447$4,447
IX-11g Other fees for servicesPrograms $69,170 · Management $18,576 · Fundraising $2,084$89,830
IX-12 Advertising and promotionManagement $498 · Fundraising $26$524
IX-13 Office expensesPrograms $19 · Management $547 · Fundraising $23$589
IX-14 Information technologyManagement $2,507$2,507
IX-17 TravelPrograms $7,443$7,443
IX-19 Conferences, conventions and meetingsPrograms $11,008$11,008
IX-24 Other expenses (24a–d)Management $114$114
IX-25 Total functional expensesPrograms $147,469 · Management $26,889 · Fundraising $2,133$176,491
Part X · Balance sheet $394,508 assets, 8 lines filed
X-1 Cash, non-interest-bearingStart of year $276,322$393,083
X-4 Accounts receivable$1,425
X-16 Total assetsStart of year $276,322$394,508
X-17 Accounts payable and accrued expenses$4,599
X-26 Total liabilitiesStart of year $0$4,599
X-27 Net assets without donor restrictionsStart of year $276,322$389,909
X-32 Total net assets or fund balancesStart of year $276,322$389,909
X-33 Total liabilities and net assetsStart of year $276,322$394,508
Part XI · Reconciliation of net assets $389,909 net assets at year end
XI-1 Total revenue$290,078
XI-2 Total expenses$176,491
XI-3 Revenue less expenses$113,587
XI-4 Net assets at start of year$276,322
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$389,909

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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