Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Nov 2019.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
97 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
8 people listed on the 990.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Researching ALS biomarkers and disease mechanisms to advance understanding and treatment.
Questions for Als Cure Project INC
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ALS Cure Project funded seed research in Organoids and Assembloids from the 2023 Innovation Symposium that we host. The research will use cortico-motor assembloids to investigate the contribution of cortical neuronal hyperactivity to ALS phentypes, to ultimately pinpoint molecular pathways contributing to motor neuron degeneration
The ALS Cure Project seeded 2 research project Barrow Neuro and Triparite selected from the ALS Innovation Symposim held virtual on November 17th and December 1stof 2021 that included 115 international ALS researchers from 10 nations where participants worked collaboratively in workshop styled breakouts to create the symposiums product.
ALS Cure Project continued to fund the Physics based modeling project using the worlds fastest supercomputer at Lawerance Livermore Lab to help idenity and understand the ALS disease mechanism.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $178K | $98K |
| Total assetsLn 16 | $178K | $98K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $178K | $98K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $238K | $238K | ||
| Grants to domestic individualsLn 2 | $0 | |||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $0 | |||
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $0 | |||
| Pension plan contributionsLn 8 | $0 | |||
| Other employee benefitsLn 9 | $0 | |||
| Payroll taxesLn 10 | $0 | |||
| Management feesLn 11a | $0 | |||
| Legal feesLn 11b | $0 | |||
| Accounting feesLn 11c | $0 | |||
| Lobbying feesLn 11d | $0 | |||
| Investment management feesLn 11f | $0 | |||
| Other fees for servicesLn 11g | $0 | |||
| Advertising and promotionLn 12 | $0 | |||
| Office expensesLn 13 | $2K | $2K | ||
| Information technologyLn 14 | $2K | $2K | ||
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $0 | |||
| TravelLn 17 | $0 | |||
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $0 | |||
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $0 | |||
| InsuranceLn 23 | $2K | $2K | ||
| All other expensesLn 24e | $0 | |||
| Total functional expensesLn 25 | $244K | $238K | $2K | $5K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $133K | $388K | −$255K | $485K | 990 PDF |
| FY2024 | $860K | $219K | $641K | $740K | 990 PDF |
| FY2023 Viewing | $164K | $244K | −$80K | $98K | 990 PDF |
| FY2022 | $158K | $246K | −$87K | $178K | 990 PDF |
| FY2021 | $405K | $232K | $173K | $265K | 990 PDF |
| FY2020 | $524K | $431K | $93K | $93K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $164,489 revenue, 12 lines filed
Part VI · Governance 8 of 8 board members independent, 4 to look at
Part VIII · Statement of revenue $164,489 across 4 lines filed
Part IX · Statement of functional expenses $244,328 across 29 lines filed
Part X · Balance sheet $98,318 assets, 6 lines filed
Part XI · Reconciliation of net assets $98,318 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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