Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Nov 2019.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
97 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
9 people listed on the 990.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Researching ALS biomarkers and disease mechanisms to advance understanding and treatment.
Questions for Als Cure Project INC
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ALS Cure Project has funded Physics based modeling project using the worlds fastest supercomputer at Lawrence Livermore Labs to help identify and understand the ALS disease mechanism. The initial focus will be on the formation of the aberrant TAR DNA-binding protein 43 (TDP-43) inclusions or cluster that transition into pathological…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $0 | $89K |
| InvestmentsLn 11–13 | $0 | $0 |
| Land, buildings, equipmentLn 10c | $0 | $0 |
| Total assetsLn 16 | $0 | $93K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $0 | $93K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $420K | $420K | ||
| Grants to domestic individualsLn 2 | $0 | $0 | ||
| Grants and assistance to foreign recipientsLn 3 | $0 | $0 | ||
| Management feesLn 11a | $0 | $0 | $0 | $0 |
| Legal feesLn 11b | $7K | $0 | $7K | $0 |
| Accounting feesLn 11c | $0 | $0 | $0 | $0 |
| Lobbying feesLn 11d | $0 | $0 | $0 | $0 |
| Professional fundraising feesLn 11e | $0 | $0 | ||
| Investment management feesLn 11f | $0 | $0 | $0 | $0 |
| Other fees for servicesLn 11g | $0 | $0 | $0 | $0 |
| Advertising and promotionLn 12 | $91 | $0 | $0 | $91 |
| Office expensesLn 13 | $2K | $0 | $0 | $2K |
| Information technologyLn 14 | $181 | $0 | $0 | $181 |
| RoyaltiesLn 15 | $0 | $0 | $0 | $0 |
| OccupancyLn 16 | $0 | $0 | $0 | $0 |
| TravelLn 17 | $0 | $0 | $0 | $0 |
| Travel and entertainment for public officialsLn 18 | $0 | $0 | $0 | $0 |
| Conferences, conventions and meetingsLn 19 | $0 | $0 | $0 | $0 |
| InterestLn 20 | $0 | $0 | $0 | $0 |
| Payments to affiliatesLn 21 | $0 | $0 | $0 | $0 |
| Depreciation, depletion and amortizationLn 22 | $0 | $0 | $0 | $0 |
| InsuranceLn 23 | $1K | $0 | $1K | $0 |
| Total functional expensesLn 25 | $431K | $420K | $8K | $3K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $133K | $388K | −$255K | $485K | 990 PDF |
| FY2024 | $860K | $219K | $641K | $740K | 990 PDF |
| FY2023 | $164K | $244K | −$80K | $98K | 990 PDF |
| FY2022 | $158K | $246K | −$87K | $178K | 990 PDF |
| FY2021 | $405K | $232K | $173K | $265K | 990 PDF |
| FY2020 Viewing | $524K | $431K | $93K | $93K | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $523,773 revenue, 12 lines filed
Part VI · Governance 9 of 9 board members independent, 4 to look at
Part VIII · Statement of revenue $523,773 across 13 lines filed
Part IX · Statement of functional expenses $431,163 across 22 lines filed
Part X · Balance sheet $92,610 assets, 24 lines filed
Part XI · Reconciliation of net assets $92,610 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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