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Rare Village Foundation

Tax-deductible

McKinney, TX501(c)(3)Since 2019Medical ResearchEIN 83-4699994Revenue $3.7M in FY2025

On file with the IRSrarevillage.org6808 Old Glory CT, 75071-4734 · McKinney, TXTax-exempt since Mar 2020Publicly supported charity — 170(b)(1)(A)(vi)

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To fight for cures for Rare diseases and empower individuals with Rare diseases to live their best lives through local community education, inspiring advocacy, and timely connection to critical research that leads to cures

501(c)(3) charity; gifts are tax-deductible.
89¢ of each $1 spent went to programs.
Run by 21 volunteers and 1 employee.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
5 of 5
filings with a surplus
Average surplus $658K a year · 24% of revenue · last 5 filings
Looks good: a surplus in 5 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
89%
of spending
Looks good: 89% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
17 mo
of spending, in cash
Looks good: 16.8 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
4
named funders · $35K
Looks good: 4 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
0
of 4 voting members
Concern: none of 4 voting members are independent.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$3.7M
+5% vs prior year
Spent
$2.4M
To programs
89%
Net assets
$3.3M
By yearFY2020–FY2025
Revenue
$3.7M
FY2025▲ +5%
Tap a bar for its year
Revenue by fiscal year
FY2020$39K
FY2021$2.3M
FY2022$1.4M
FY2023$2.6M
FY2024$3.5M
FY2025$3.7M
Expenses
$2.4M
FY2025▼ -25%
Tap a bar for its year
Expenses by fiscal year
FY2020Not on file
FY2021$1.4M
FY2022$1.1M
FY2023$2.1M
FY2024$3.1M
FY2025$2.4M
Net assets
$3.3M
FY2025▲ +64%
Tap a bar for its year
Net assets by fiscal year
FY2020$84K
FY2021$959K
FY2022$1.2M
FY2023$1.7M
FY2024$2.0M
FY2025$3.3M

From the FY2025 Form 990 · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Mar 2020.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

89 cents of each dollar spent went to programs.

Program services 89% · $2.1M Management & general 3% · $80K Fundraising 7% · $172K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

4 people listed on the 990.

Part VII, Section A · reportable compensation
Gina Hann
Vice President Secretary Director
$0Pt VII · Sec A
Kasey Wolleben
President Director
$0Pt VII · Sec A
Amy Sowell
Treasurer Director
$0Pt VII · Sec A
Amber Freed
Director
$0Pt VII · Sec A
See Rare Village Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Fights for rare disease cures and empowers patients through education, advocacy, and research connections.

Questions for Rare Village Foundation

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Provided by the organization

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1 program · $2.1M · in their own filed words · FY2025
01

Donated millions dollars to research initiatives

$2.1Mprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Greater Worcester Community Foundation INCFY2025$20K
Spartanburg County FoundationFY2025$8K
Our Change FoundationFY2025$7K
The Spivey Family Foundation INCFY2025$500
Total grants receivedfrom 4 funders$35K
See all 4 funders →
Grants paid · 38 grants · $5.2M · 2021–2024
For Henry Ahc INCMA · FY2024$842,626
Individual RecipientFY2024$599,152
Individual RecipientFY2024$304,722
Individual RecipientFY2024$291,521
Sonshine FoundationFY2024$161,526
Individual RecipientFY2024$130,727
Individual RecipientFY2024$120,550
Northwestern UniversityIL · FY2024$109,091
Individual RecipientFY2024$105,288
University of MissouriFY2024$91,488
Individual RecipientFY2024$75,831
Seattle Childrens HospitalFY2024$50,000
Ichan School of MedicineFY2024$38,000
Universit of PennFY2024$35,027
IxcellsFY2024$27,621
University of StrasburgFY2024$18,046
Individual RecipientFY2024$11,238
Individual RecipientFY2024$11,237
See all 38 grants →

By the numbers

The FY2025 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$3.7M
Ln 12
Gifts and grantsLn 1h$3.7M
Investment incomeLn 3$202
Money outPt IX
$2.4M
Ln 25
Programscol B$2.1M
Managementcol C$80K
Fundraisingcol D$172K
Owns and owesPt X
$3.3M
net assets · Ln 32
Cash and savingsLn 1–2$3.3M
Total assetsLn 16$3.3M
LiabilitiesLn 26$0
PeoplePt VI, VII
4
listed · VII A
PaidVII A0
Voting boardVI 1a4
IndependentVI 1b0
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$3.7M
Fundraising eventsLn 1c$126K
Investment incomeLn 3$202
Total revenueLn 12$3.7M
Assets in detailPt X, end of year
CashLn 1$3.3M
Cash and savings togetherLn 1–2$3.3M
Total assetsLn 16$3.3M
LiabilitiesLn 26$0
Net assetsLn 32$3.3M
OperationsPt I, VI
EmployeesI 51
VolunteersI 621
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$2.0M$3.3M
Total assetsLn 16$2.0M$3.3M
LiabilitiesLn 26$0$0
Net assetsLn 32$2.0M$3.3M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$2.1M$2.1M
Other salaries and wagesLn 7$25K$25K
Other fees for servicesLn 11g$252K$80K$172K
Total functional expensesLn 25$2.4M$2.1M$80K$172K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $3.7M$2.4M$1.3M$3.3M 990 PDF
FY2024 $3.5M$3.1M$348K$2.0M 990 PDF
FY2023 $2.6M$2.1M$479K$1.7M 990 PDF
FY2022 $1.4M$1.1M$244K$1.2M 990 PDF
FY2021 $2.3M$1.4M$924K$959K 990 PDF
FY2020 $39K$84K 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2025 990 (6 parts)
Part I · Summary $3,660,787 revenue, 12 lines filed
I-8 Contributions and grants$3,660,585
I-9 Program service revenue$0
I-10 Investment income$202
I-11 Other revenue$0
I-12 Total revenue$3,660,787
I-13 Grants and similar amounts paid$2,090,899
I-14 Benefits paid to members$0
I-15 Salaries and benefits$25,212
I-16a Professional fundraising fees$0
I-17 Other expenses$252,125
I-18 Total expenses$2,368,236
I-19 Revenue less expenses$1,292,551
Part VI · Governance 0 of 4 board members independent, no flags
VI-1a Voting members of the governing body4
VI-1b Independent voting members0
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $3,660,787 across 6 lines filed
VIII-1c Fundraising events$125,825
VIII-1f All other contributions, gifts and grants$3,534,760
VIII-1h Total contributions, gifts and grants$3,660,585
VIII-3 Investment incomeRelated to mission $202$202
VIII-8 Net income from fundraising events$0
VIII-12 Total revenueRelated to mission $202 · Unrelated business $0 · Excluded from tax $0$3,660,787
Part IX · Statement of functional expenses $2,368,236 across 3 lines filed
IX-1 Grants to domestic organizationsPrograms $2,090,899$2,090,899
IX-7 Other salaries and wagesPrograms $25,212$25,212
IX-11g Other fees for servicesManagement $80,111 · Fundraising $172,014$252,125
IX-25 Total functional expensesPrograms $2,116,111 · Management $80,111 · Fundraising $172,014$2,368,236
Part X · Balance sheet $3,322,255 assets, 5 lines filed
X-1 Cash, non-interest-bearingStart of year $2,029,704$3,322,255
X-16 Total assetsStart of year $2,029,704$3,322,255
X-26 Total liabilitiesStart of year $0$0
X-32 Total net assets or fund balancesStart of year $2,029,704$3,322,255
X-33 Total liabilities and net assetsStart of year $2,029,704$3,322,255
Part XI · Reconciliation of net assets $3,322,255 net assets at year end
XI-1 Total revenue$3,660,787
XI-2 Total expenses$2,368,236
XI-3 Revenue less expenses$1,292,551
XI-4 Net assets at start of year$2,029,704
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$3,322,255

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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