Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in May 2019.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
87 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
9 people listed on the 990; $110K paid to officers and key staff.
Keith McArthur’s $86K as Executive Director is at the 78th percentile of top reported officer pay among 1265 $100K–1M philanthropy & grantmaking nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|---|
| Keith McArthur | $85,570 | $80,000 | $75,000 | $30,000 | $25,000 |
| Denise Rehner | — | $39,952 | $35,000 | $30,000 | $25,000 |
| Denise Saxondale | $18,029 | — | — | — | — |
| Lauren Williams | — | — | — | $2,230 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Fund research to find treatments and cures for GRIN disorder.
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CureGRIN awarded 3 grants worth $446,323 in the fiscal year. These include: 1) $200,000 to researchers at University of Auckland and University of Toronto to validate blood biomarkers. 2) $146,332 to researchers at University College London for GRIA Disorder drug discovery and 3) $99,992 to Columbia University for gene therapy trials on…
After years of COVID related delays, CureGRIN hosted a three-day conference in Boston. More than 300 families, researchers, clinicians and representatives from the biopharm industry participated, including over 230 in-person attendees. The conference received rave reviews from both families and researchers.
CureGRINs programs fall into two categories. 1) Improving the lives of people around the world living with GRI Disorders (GRIN, GRIA, GRIK and GRID), and their families, through research, education and connectivity. These programs include GRIConnect, development of educational content and the family ambassador program.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $779K | $855K |
| Total assetsLn 16 | $824K | $903K |
| LiabilitiesLn 26 | $3K | $496K |
| Net assetsLn 32 | $821K | $407K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $100K | $100K | ||
| Grants and assistance to foreign recipientsLn 3 | $346K | $346K | ||
| Pay of current officers, directors and key staffLn 5 | $112K | $48K | $9K | $55K |
| Other salaries and wagesLn 7 | $9K | $4K | $781 | $5K |
| Management feesLn 11a | $833 | $833 | ||
| Accounting feesLn 11c | $2K | $2K | ||
| Other fees for servicesLn 11g | $59K | $44K | $15K | |
| Advertising and promotionLn 12 | $8K | $4K | $76 | $4K |
| Office expensesLn 13 | $703 | $47 | $656 | |
| Information technologyLn 14 | $18K | $11K | $2K | $5K |
| TravelLn 17 | $5K | $5K | ||
| Conferences, conventions and meetingsLn 19 | $162K | $162K | ||
| Other expenses (24a–d)Ln 24 | $12K | $552 | $12K | |
| Total functional expensesLn 25 | $836K | $724K | $16K | $96K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $610K | $451K | $159K | $605K | 990 PDF |
| FY2024 | $539K | $499K | $39K | $447K | 990 PDF |
| FY2023 Viewing | $423K | $836K | −$414K | $407K | 990 PDF |
| FY2022 | $441K | $250K | $190K | $821K | 990 PDF |
| FY2021 | $237K | $207K | $31K | $631K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $422,728 revenue, 12 lines filed
Part VI · Governance 6 of 8 board members independent, 1 to look at
Part VIII · Statement of revenue $422,728 across 5 lines filed
Part IX · Statement of functional expenses $836,416 across 13 lines filed
Part X · Balance sheet $903,042 assets, 10 lines filed
Part XI · Reconciliation of net assets $407,429 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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