Raising money to fight als and help people with als and their families.

501(c)(3) charity; gifts are tax-deductible.
94¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
5 of 6
filings with a surplus
Average surplus $454K a year · 19% of revenue · last 6 filings
Fine: a surplus in 5 of the last 6 filings.
Pt I · Ln 19 · 6 filings
Spent on programs
94%
of spending
Looks good: 94% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
9 mo
of spending, in cash
Looks good: 9.2 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $500
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$3K
0.3% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
9
of 9 voting members
Looks good: 9 of 9 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$1.9M
Spent
$1.1M
To programs
94%
Net assets
$819K
By yearFY2020–FY2025
Revenue
$1.9M
FY2020
Tap a bar for its year
Revenue by fiscal year
FY2020$1.9M
FY2021$1.7M
FY2022$2.5M
FY2023$2.8M
FY2024$2.7M
FY2025$2.8M
Expenses
$1.1M
FY2020
Tap a bar for its year
Expenses by fiscal year
FY2020$1.1M
FY2021$1.7M
FY2022$2.3M
FY2023$1.5M
FY2024$3.1M
FY2025$2.2M
Net assets
$819K
FY2020
Tap a bar for its year
Net assets by fiscal year
FY2020$819K
FY2021$890K
FY2022$1.2M
FY2023$2.5M
FY2024$2.1M
FY2025$2.8M

From the FY2020 Form 990 (year ending August 2020) · figures checked against the IRS filing · see the original

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You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Oct 2019.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

94 cents of each dollar spent went to programs.

Program services 94% · $1.0M Management & general 6% · $61K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

9 people listed on the 990.

Part VII, Section A · reportable compensation · most recent filed roster (FY2019); the FY2020 filing did not itemize Part VII
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Vice Preside
$0Pt VII · Sec A
$0Pt VII · Sec A
Treasurer
$0Pt VII · Sec A
$0Pt VII · Sec A
See Never Surrender INC executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Fundraising to combat ALS and support those affected by it.

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Provided by the organization

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1 program · $1.0M · in their own filed words · FY2019
01

Raising money to fight als and help people with als and their families.

$1.0Mprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 1 funder$500
Grants paid · 11 grants · $5.8M · 2020–2024
Massachusetts General HospitalFY2024$932,000
Essentia HealthFY2024$20,997
Als AssociationFY2023$1,000,000
Als Therapy Development InstituteFY2023$500,000
Massachusetts General HospitalFY2023$432,000
Miller Dwan FoundationMN · FY2023$90,000
Massachusetts General HospitalFY2022$300,000
Individual RecipientFY2022$50,000
Essentia Health FoundationMN · FY2022$21,035
Als AssociationFY2021$1,335,000
Als AssociationFY2020$1,126,000

By the numbers

The FY2020 990, line by line.

1The main four
Money inPt VIII
$1.9M
Ln 12
Gifts and grantsLn 1h$1.5M
Other incomeLn 4–11$309K
Money outPt IX
$1.1M
Ln 25
Programscol B$1.0M
Managementcol C$61K
Owns and owesPt X
$819K
net assets · Ln 32
Cash and savingsLn 1–2$818K
Total assetsLn 16$822K
LiabilitiesLn 26$3K
PeoplePt VI, VII
9
listed · VII A
PaidVII A0
Voting boardVI 1a9
IndependentVI 1b9
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$1.5M
Noncash giftsLn 1g$398K
Other incomeLn 4–11$309K
Total revenueLn 12$1.9M
Assets in detailPt X, end of year
CashLn 1$818K
Cash and savings togetherLn 1–2$818K
Total assetsLn 16$822K
LiabilitiesLn 26$3K
Net assetsLn 32$819K
OperationsPt I, VI
EmployeesI 55
Fiscal year endsHeaderAugust
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY20End FY20
Cash and savingsLn 1–2$39K$818K
Total assetsLn 16$42K$822K
LiabilitiesLn 26$12K$3K
Net assetsLn 32$30K$819K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$400K$400K
Other salaries and wagesLn 7$57K$28K$28K
Other employee benefitsLn 9$6K$3K$3K
Payroll taxesLn 10$5K$3K$3K
Legal feesLn 11b$2K$2K
Accounting feesLn 11c$800$800
Advertising and promotionLn 12$310K$310K
Office expensesLn 13$5K$5K
OccupancyLn 16$103K$103K
TravelLn 17$7K$7K
InsuranceLn 23$5K$5K
Other expenses (24a–d)Ln 24$145K$145K
All other expensesLn 24e$24K$9K$15K
Total functional expensesLn 25$1.1M$1.0M$61K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest $2.8M$2.2M$645K$2.8M 990 PDF
FY2024 $2.7M$3.1M−$385K$2.1M 990 PDF
FY2023 $2.8M$1.5M$1.3M$2.5M 990 PDF
FY2022 $2.5M$2.3M$276K$1.2M 990 PDF
FY2021 $1.7M$1.7M$71K$890K 990 PDF
FY2020 Viewing $1.9M$1.1M$789K$819K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support M · Noncash O · Explanations
See the full FY2020 990 (6 parts)
Part I · Summary $1,857,739 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $67,657$1,549,078
I-9 Program service revenue$0
I-10 Investment income$0
I-11 Other revenuePrior year $7,222$308,661
I-12 Total revenuePrior year $74,879$1,857,739
I-13 Grants and similar amounts paid$400,000
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $22,301$68,000
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $22,520$600,657
I-18 Total expensesPrior year $44,821$1,068,657
I-19 Revenue less expensesPrior year $30,058$789,082
Part VI · Governance 9 of 9 board members independent, 1 to look at
VI-1a Voting members of the governing body9
VI-1b Independent voting members9
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $1,857,739 across 5 lines filed
Lines not itemized here account for $6,698 of total revenue; see the IRS return.
VIII-1f All other contributions, gifts and grants$1,549,078
VIII-1g Noncash contributions (included above)$397,500
VIII-1h Total contributions, gifts and grants$1,549,078
VIII-8 Net income from fundraising events$301,963
VIII-12 Total revenueRelated to mission $6,698$1,857,739
Part IX · Statement of functional expenses $1,068,657 across 13 lines filed
IX-1 Grants to domestic organizationsPrograms $400,000$400,000
IX-7 Other salaries and wagesPrograms $28,481 · Management $28,481$56,962
IX-9 Other employee benefitsPrograms $3,000 · Management $3,000$6,000
IX-10 Payroll taxesPrograms $2,519 · Management $2,519$5,038
IX-11b Legal feesManagement $1,500$1,500
IX-11c Accounting feesManagement $800$800
IX-12 Advertising and promotionPrograms $309,612$309,612
IX-13 Office expensesManagement $4,538$4,538
IX-16 OccupancyPrograms $102,729$102,729
IX-17 TravelPrograms $6,886$6,886
IX-23 InsuranceManagement $5,033$5,033
IX-24 Other expenses (24a–d)Programs $145,474$145,474
IX-24e All other expensesPrograms $9,145 · Management $14,940$24,085
IX-25 Total functional expensesPrograms $1,007,846 · Management $60,811 · Fundraising $0$1,068,657
Part X · Balance sheet $821,848 assets, 8 lines filed
X-1 Cash, non-interest-bearingStart of year $38,712$818,232
X-9 Prepaid expenses and deferred chargesStart of year $3,227$3,616
X-16 Total assetsStart of year $41,939$821,848
X-17 Accounts payable and accrued expensesStart of year $2,381$2,708
X-26 Total liabilitiesStart of year $11,881$2,708
X-27 Net assets without donor restrictionsStart of year $30,058$819,140
X-32 Total net assets or fund balancesStart of year $30,058$819,140
X-33 Total liabilities and net assetsStart of year $41,939$821,848
Part XI · Reconciliation of net assets $819,140 net assets at year end
XI-1 Total revenue$1,857,739
XI-2 Total expenses$1,068,657
XI-3 Revenue less expenses$789,082
XI-4 Net assets at start of year$30,058
XI-10 Net assets at end of year$819,140

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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