Raising money to fight als and help people with als and their families.

501(c)(3) charity; gifts are tax-deductible.
95¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
5 of 6
filings with a surplus
Average surplus $454K a year · 19% of revenue · last 6 filings
Fine: a surplus in 5 of the last 6 filings.
Pt I · Ln 19 · 6 filings
Spent on programs
95%
of spending
Looks good: 95% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
15 mo
of spending, in cash
Looks good: 15.1 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $500
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$12K
0.4% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
8
of 8 voting members
Looks good: 8 of 8 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$2.8M
+4% vs prior year
Spent
$2.2M
To programs
95%
Net assets
$2.8M
By yearFY2020–FY2025
Revenue
$2.8M
FY2025▲ +4%
Tap a bar for its year
Revenue by fiscal year
FY2020$1.9M
FY2021$1.7M
FY2022$2.5M
FY2023$2.8M
FY2024$2.7M
FY2025$2.8M
Expenses
$2.2M
FY2025▼ -30%
Tap a bar for its year
Expenses by fiscal year
FY2020$1.1M
FY2021$1.7M
FY2022$2.3M
FY2023$1.5M
FY2024$3.1M
FY2025$2.2M
Net assets
$2.8M
FY2025▲ +31%
Tap a bar for its year
Net assets by fiscal year
FY2020$819K
FY2021$890K
FY2022$1.2M
FY2023$2.5M
FY2024$2.1M
FY2025$2.8M

From the FY2025 Form 990 (year ending August 2025) · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Oct 2019.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

95 cents of each dollar spent went to programs.

Program services 95% · $2.1M Management & general 3% · $67K Fundraising 2% · $42K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

8 people listed on the 990.

Part VII, Section A · reportable compensation · most recent filed roster (FY2024); the FY2025 filing did not itemize Part VII
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Treasurer
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
See Never Surrender INC executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Fundraising to combat ALS and support those affected by it.

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1 program · $2.1M · in their own filed words · FY2024
01

Raising money to fight als and help people with als and their families.

$2.1Mprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Total grants receivedfrom 1 funder$500
Grants paid · 11 grants · $5.8M · 2020–2024
Massachusetts General HospitalFY2024$932,000
Essentia HealthFY2024$20,997
Als AssociationFY2023$1,000,000
Als Therapy Development InstituteFY2023$500,000
Massachusetts General HospitalFY2023$432,000
Miller Dwan FoundationMN · FY2023$90,000
Massachusetts General HospitalFY2022$300,000
Individual RecipientFY2022$50,000
Essentia Health FoundationMN · FY2022$21,035
Als AssociationFY2021$1,335,000
Als AssociationFY2020$1,126,000

By the numbers

The FY2025 990, line by line.

1The main four
Money inPt VIII
$2.8M
Ln 12
Gifts and grantsLn 1h$2.3M
Other incomeLn 4–11$464K
Investment incomeLn 3$58K
Money outPt IX
$2.2M
Ln 25
Programscol B$2.1M
Managementcol C$67K
Fundraisingcol D$42K
Owns and owesPt X
$2.8M
net assets · Ln 32
Cash and savingsLn 1–2$2.7M
Total assetsLn 16$2.8M
LiabilitiesLn 26$12K
PeoplePt VI, VII
8
listed · VII A
PaidVII A0
Voting boardVI 1a8
IndependentVI 1b8
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$2.3M
Government grantsLn 1e$10K
Noncash giftsLn 1g$663K
Investment incomeLn 3$58K
Other incomeLn 4–11$464K
Total revenueLn 12$2.8M
Assets in detailPt X, end of year
CashLn 1$592K
SavingsLn 2$2.1M
Cash and savings togetherLn 1–2$2.7M
Land, buildings, equipmentLn 10c$19K
Total assetsLn 16$2.8M
LiabilitiesLn 26$12K
Net assetsLn 32$2.8M
OperationsPt I, VI
EmployeesI 55
Fiscal year endsHeaderAugust
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$2.1M$2.7M
Land, buildings, equipmentLn 10c$19K$19K
Total assetsLn 16$2.1M$2.8M
LiabilitiesLn 26$11K$12K
Net assetsLn 32$2.1M$2.8M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$955K$955K
Other salaries and wagesLn 7$181K$109K$36K$36K
Other employee benefitsLn 9$14K$8K$3K$3K
Payroll taxesLn 10$15K$9K$3K$3K
Accounting feesLn 11c$7K$7K
Advertising and promotionLn 12$19K$19K
OccupancyLn 16$6K$6K
TravelLn 17$13K$13K
Depreciation, depletion and amortizationLn 22$3K$3K
InsuranceLn 23$10K$8K$3K
Other expenses (24a–d)Ln 24$931K$931K
All other expensesLn 24e$18K$3K$16K
Total functional expensesLn 25$2.2M$2.1M$67K$42K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $2.8M$2.2M$645K$2.8M 990 PDF
FY2024 $2.7M$3.1M−$385K$2.1M 990 PDF
FY2023 $2.8M$1.5M$1.3M$2.5M 990 PDF
FY2022 $2.5M$2.3M$276K$1.2M 990 PDF
FY2021 $1.7M$1.7M$71K$890K 990 PDF
FY2020 $1.9M$1.1M$789K$819K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support M · Noncash O · Explanations
See the full FY2025 990 (6 parts)
Part I · Summary $2,818,004 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $2,151,891$2,295,812
I-9 Program service revenue$0
I-10 Investment incomePrior year $29,573$58,046
I-11 Other revenuePrior year $518,093$464,146
I-12 Total revenuePrior year $2,699,557$2,818,004
I-13 Grants and similar amounts paidPrior year $2,022,000$954,837
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $187,741$209,531
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $874,379$1,008,504
I-18 Total expensesPrior year $3,084,120$2,172,872
I-19 Revenue less expensesPrior year −$384,563$645,132
Part VI · Governance 8 of 8 board members independent, 1 to look at
VI-1a Voting members of the governing body8
VI-1b Independent voting members8
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $2,818,004 across 7 lines filed
Lines not itemized here account for $15,923 of total revenue; see the IRS return.
VIII-1e Government grants$10,000
VIII-1f All other contributions, gifts and grants$2,285,812
VIII-1g Noncash contributions (included above)$662,590
VIII-1h Total contributions, gifts and grants$2,295,812
VIII-3 Investment incomeExcluded from tax $58,046$58,046
VIII-8 Net income from fundraising events$448,223
VIII-12 Total revenueRelated to mission $15,923 · Excluded from tax $58,046$2,818,004
Part IX · Statement of functional expenses $2,172,872 across 12 lines filed
IX-1 Grants to domestic organizationsPrograms $954,837$954,837
IX-7 Other salaries and wagesPrograms $108,716 · Management $36,238 · Fundraising $36,238$181,192
IX-9 Other employee benefitsPrograms $8,259 · Management $2,753 · Fundraising $2,753$13,765
IX-10 Payroll taxesPrograms $8,746 · Management $2,914 · Fundraising $2,914$14,574
IX-11c Accounting feesManagement $7,000$7,000
IX-12 Advertising and promotionPrograms $18,685$18,685
IX-16 OccupancyPrograms $6,476$6,476
IX-17 TravelPrograms $13,111$13,111
IX-22 Depreciation, depletion and amortizationPrograms $3,439$3,439
IX-23 InsurancePrograms $7,747 · Management $2,582$10,329
IX-24 Other expenses (24a–d)Programs $931,039$931,039
IX-24e All other expensesPrograms $2,709 · Management $15,716$18,425
IX-25 Total functional expensesPrograms $2,063,764 · Management $67,203 · Fundraising $41,905$2,172,872
Part X · Balance sheet $2,763,898 assets, 12 lines filed
X-1 Cash, non-interest-bearingStart of year $159,396$591,841
X-2 Savings and temporary cash investmentsStart of year $1,924,169$2,137,215
X-4 Accounts receivableStart of year $7,542$8,000
X-9 Prepaid expenses and deferred chargesStart of year $7,000$7,350
X-10c Land, buildings and equipment, netStart of year $19,473$19,492
X-16 Total assetsStart of year $2,117,580$2,763,898
X-17 Accounts payable and accrued expensesStart of year $10,118$11,304
X-19 Deferred revenueStart of year $1,000$1,000
X-26 Total liabilitiesStart of year $11,118$12,304
X-27 Net assets without donor restrictionsStart of year $2,106,462$2,751,594
X-32 Total net assets or fund balancesStart of year $2,106,462$2,751,594
X-33 Total liabilities and net assetsStart of year $2,117,580$2,763,898
Part XI · Reconciliation of net assets $2,751,594 net assets at year end
XI-1 Total revenue$2,818,004
XI-2 Total expenses$2,172,872
XI-3 Revenue less expenses$645,132
XI-4 Net assets at start of year$2,106,462
XI-10 Net assets at end of year$2,751,594

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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