The Foundation's mission is to advance the science and improve the practice of value assessment in healthcare. The Foundation's goal is to build a platform that facilitates robust and rigorous patient-centered value assessment of health technologies tailored to the needs and interests of individual decision makers.

501(c)(3) charity; gifts are tax-deductible.
70¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

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FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
1 of 6
filings with a surplus
Average deficit $73K a year · 3% of revenue · last 6 filings
Concern: a surplus in 1 of the last 6 filings.
Pt I · Ln 19 · 6 filings
Spent on programs
70%
of spending
Fine: 70% of spending went to programs; 65% to 75%.
Pt IX · Ln 25 · col B
19 mo
of spending, in cash
Looks good: 18.7 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $100K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$88K
3% of total assets
Looks good: liabilities are 3% of assets; 50% or less.
Pt X · Ln 26
Independent board members
9
of 9 voting members
Looks good: 9 of 9 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$3.3M
Spent
$1.7M
To programs
70%
Net assets
$2.6M
By yearFY2020–FY2025
Revenue
$3.3M
FY2020
Tap a bar for its year
Revenue by fiscal year
FY2020$3.3M
FY2021$1.7M
FY2022$2.5M
FY2023$2.9M
FY2024$2.3M
FY2025$1.6M
Expenses
$1.7M
FY2020
Tap a bar for its year
Expenses by fiscal year
FY2020$1.7M
FY2021$2.3M
FY2022$2.8M
FY2023$3.2M
FY2024$2.9M
FY2025$1.8M
Net assets
$2.6M
FY2020
Tap a bar for its year
Net assets by fiscal year
FY2020$2.6M
FY2021$2.0M
FY2022$1.6M
FY2023$1.3M
FY2024$717K
FY2025$450K

From the FY2020 Form 990 · figures checked against the IRS filing · see the original

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You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Sep 2019.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

70 cents of each dollar spent went to programs.

Program services 70% · $1.2M Management & general 22% · $366K Fundraising 8% · $139K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

10 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
$0Pt VII · Sec A
Treasurer
$0Pt VII · Sec A
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A

Richard Chapman’s $233K as Chief Science Officer is at the 71st percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 7 named individuals · Part VII

NameFY2025FY2024FY2023FY2022
Jason Spangler$77,150$391,169$335,000$140,802
Richard Chapman$233,155$279,786$270,375$257,500
Tiffany Huth$228,154$224,151$210,000$182,606
Erica Malik$171,500$210,000$101,625—
Zhwen Xie———$120,080
Ushma Amish Patel$109,980———
Vipan Sood Mbarph Mrpharms———$1,053

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Improves healthcare value assessment through scientific advancement and practice improvement.

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Provided by the organization

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3 programs · $1.2M · in their own filed words · FY2020
01

Research Projects

The Foundation develops open-source value models for specific diseases as a laboratory for developing next-generation methods for value assessment.

$799Kprogram expense
02

Media Communications

The Foundation collaborates with healthcare stakeholders to engage in research, methods development, and health economic modeling focused on five core areas:1- Developing open-source platforms for measuring value2- Building tools to support decision making3- Improving the science of value measurement4- Conducting research to understand…

$213Kprogram expense
03

Stakeholder and Patient Engagement

Through intentional planning and practice, we seek to ensure patients are full participants and equal partners in our research design, execution, and evaluation.

$163Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Total grants receivedfrom 1 funder$100K
Grants paid · 3 grants · $165K · 2022–2023
Unitemized GrantFY2023$50,000

By the numbers

The FY2020 990, line by line.

1The main four
Money inPt VIII
$3.3M
Ln 12
Gifts and grantsLn 1h$3.3M
Fees for servicesLn 2g$30K
Investment incomeLn 3$4K
Money outPt IX
$1.7M
Ln 25
Programscol B$1.2M
Managementcol C$366K
Fundraisingcol D$139K
Owns and owesPt X
$2.6M
net assets · Ln 32
Cash and savingsLn 1–2$2.6M
Total assetsLn 16$2.6M
LiabilitiesLn 26$88K
PeoplePt VI, VII
10
listed · VII A
PaidVII A0
Voting boardVI 1a9
IndependentVI 1b9
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$3.3M
Fees for servicesLn 2g$30K
Investment incomeLn 3$4K
Total revenueLn 12$3.3M
Assets in detailPt X, end of year
CashLn 1$1.6M
SavingsLn 2$1.0M
Cash and savings togetherLn 1–2$2.6M
Total assetsLn 16$2.6M
LiabilitiesLn 26$88K
Net assetsLn 32$2.6M
OperationsPt I, VI
EmployeesI 55
VolunteersI 638
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY20End FY20
Cash and savingsLn 1–2$805K$2.6M
Total assetsLn 16$1.2M$2.6M
LiabilitiesLn 26$211K$88K
Net assetsLn 32$944K$2.6M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Other salaries and wagesLn 7$33K$24K$9K
Other employee benefitsLn 9$3K$2K$721
Payroll taxesLn 10$3K$2K$967
Management feesLn 11a$756K$413K$205K$139K
Legal feesLn 11b$29K$29K
Accounting feesLn 11c$28K$28K
Other fees for servicesLn 11g$757K$675K$81K$550
Office expensesLn 13$32K$21K$11K$11
Information technologyLn 14$44$44
OccupancyLn 16$3K$3K$609
TravelLn 17$12K$12K$90$18
Conferences, conventions and meetingsLn 19$23K$23K
InsuranceLn 23$790$790
Total functional expensesLn 25$1.7M$1.2M$366K$139K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest $1.6M$1.8M−$210K$450K 990 PDF
FY2024 $2.3M$2.9M−$611K$717K 990 PDF
FY2023 $2.9M$3.2M−$306K$1.3M 990 PDF
FY2022 $2.5M$2.8M−$325K$1.6M 990 PDF
FY2021 $1.7M$2.3M−$594K$2.0M 990 PDF
FY2020 Viewing $3.3M$1.7M$1.6M$2.6M 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2020 990 (6 parts)
Part I · Summary $3,290,037 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $2,434,391$3,256,150
I-9 Program service revenuePrior year $0$30,275
I-10 Investment incomePrior year $0$3,612
I-11 Other revenuePrior year $0$0
I-12 Total revenuePrior year $2,434,391$3,290,037
I-13 Grants and similar amounts paidPrior year $0$0
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$38,951
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $1,490,241$1,641,762
I-18 Total expensesPrior year $1,490,241$1,680,713
I-19 Revenue less expensesPrior year $944,150$1,609,324
Part VI · Governance 9 of 9 board members independent, 3 to look at
VI-1a Voting members of the governing body9
VI-1b Independent voting members9
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $3,290,037 across 5 lines filed
VIII-1f All other contributions, gifts and grants$3,256,150
VIII-1h Total contributions, gifts and grants$3,256,150
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $30,275$30,275
VIII-3 Investment incomeExcluded from tax $3,612$3,612
VIII-12 Total revenueRelated to mission $30,275 · Unrelated business $0 · Excluded from tax $3,612$3,290,037
Part IX · Statement of functional expenses $1,680,713 across 13 lines filed
IX-7 Other salaries and wagesPrograms $24,166 · Management $8,667$32,833
IX-9 Other employee benefitsPrograms $2,012 · Management $721$2,733
IX-10 Payroll taxesPrograms $2,418 · Management $967$3,385
IX-11a Management feesPrograms $413,128 · Management $204,641 · Fundraising $138,727$756,496
IX-11b Legal feesManagement $28,910$28,910
IX-11c Accounting feesManagement $27,800$27,800
IX-11g Other fees for servicesPrograms $675,208 · Management $81,361 · Fundraising $550$757,119
IX-13 Office expensesPrograms $21,247 · Management $10,947 · Fundraising $11$32,205
IX-14 Information technologyPrograms $44$44
IX-16 OccupancyPrograms $2,504 · Management $609$3,113
IX-17 TravelPrograms $12,331 · Management $90 · Fundraising $18$12,439
IX-19 Conferences, conventions and meetingsPrograms $22,846$22,846
IX-23 InsuranceManagement $790$790
IX-25 Total functional expensesPrograms $1,175,904 · Management $365,503 · Fundraising $139,306$1,680,713
Part X · Balance sheet $2,641,128 assets, 11 lines filed
X-1 Cash, non-interest-bearingStart of year $805,322$1,610,542
X-2 Savings and temporary cash investments$1,003,612
X-4 Accounts receivableStart of year $349,241$25,000
X-9 Prepaid expenses and deferred chargesStart of year $250$1,974
X-16 Total assetsStart of year $1,154,813$2,641,128
X-17 Accounts payable and accrued expensesStart of year $210,663$87,654
X-26 Total liabilitiesStart of year $210,663$87,654
X-27 Net assets without donor restrictionsStart of year $791,150$1,700,074
X-28 Net assets with donor restrictionsStart of year $153,000$853,400
X-32 Total net assets or fund balancesStart of year $944,150$2,553,474
X-33 Total liabilities and net assetsStart of year $1,154,813$2,641,128
Part XI · Reconciliation of net assets $2,553,474 net assets at year end
XI-1 Total revenue$3,290,037
XI-2 Total expenses$1,680,713
XI-3 Revenue less expenses$1,609,324
XI-4 Net assets at start of year$944,150
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$2,553,474

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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