Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jul 2019.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
79 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
18 people listed on the 990; $885K paid to officers and key staff.
Andrea Goodman’s $300K as CEO is at the 89th percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Andrea Goodman | $300,303 | $258,050 | $176,612 | — | — | — |
| Danielle Carnival | — | — | — | — | $142,188 | $252,866 |
| Sonya Elling | — | $194,838 | — | — | — | — |
| Laura Pazze Dalle | — | — | — | $192,023 | — | — |
| Aditi Narayan Minkoff | $160,778 | $153,495 | — | — | — | — |
| Aditi Narayan | — | — | $136,199 | $154,815 | $123,600 | $116,908 |
| Dustin Watson | $154,595 | — | — | — | — | — |
| Michael Lecker | $148,955 | $139,867 | — | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Mobilizes the ALS community to advocate for policy change and research progress to end ALS.
Questions for I Am Als
Your first name shows with your question. I Am Als answers here, for everyone.
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Community organizing and communicationi am als builds and sustains a national movement by equipping community members those living with and impacted by als to take collective action. Through weekly community teams, digital actions, events, story-sharing, awareness campaigns, and communications, the organization trains and equips…
Government affairs, policy, and researchi am als leverages the expertise and lived experience of the als community to drive urgent federal policy and systems change. The legislative programs are intended to force multiply als research and treatment resources by using federal policy and funding buckets to maximize investments.
Community supporti am als offers a multi-pronged, person-centered support portfolio of programs for people living with als, caregivers, and loved ones as they navigate the emotional, practical, and informational challenges of the disease.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $2.5M | $2.4M |
| InvestmentsLn 11–13 | $792K | $794K |
| Total assetsLn 16 | $3.4M | $3.5M |
| LiabilitiesLn 26 | $58K | $99K |
| Net assetsLn 32 | $3.4M | $3.4M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $358K | $294K | $36K | $29K |
| Other salaries and wagesLn 7 | $1.1M | $948K | $63K | $112K |
| Pension plan contributionsLn 8 | $19K | $16K | $856 | $2K |
| Other employee benefitsLn 9 | $208K | $175K | $12K | $21K |
| Payroll taxesLn 10 | $105K | $88K | $7K | $10K |
| Accounting feesLn 11c | $67K | $67K | ||
| Lobbying feesLn 11d | $94K | $94K | ||
| Other fees for servicesLn 11g | $277K | $235K | $35K | $7K |
| Advertising and promotionLn 12 | $7K | $2K | $5K | |
| Office expensesLn 13 | $152K | $74K | $56K | $22K |
| Information technologyLn 14 | $80K | $44K | $19K | $17K |
| OccupancyLn 16 | $11K | $8K | $3K | |
| TravelLn 17 | $42K | $33K | $9K | $155 |
| Conferences, conventions and meetingsLn 19 | $3K | $663 | $3K | |
| InsuranceLn 23 | $10K | $10K | ||
| Other expenses (24a–d)Ln 24 | $12K | $8K | $4K | |
| Total functional expensesLn 25 | $2.6M | $2.0M | $326K | $224K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $2.6M | $2.6M | −$3K | $3.4M | 990 PDF |
| FY2024 | $4.1M | $2.6M | $1.6M | $3.4M | 990 PDF |
| FY2023 | $2.3M | $2.2M | $152K | $1.8M | 990 PDF |
| FY2022 | $1.6M | $2.3M | −$660K | $1.6M | 990 PDF |
| FY2021 | $3.3M | $2.4M | $971K | $2.4M | 990 PDF |
| FY2020 | $1.6M | $2.4M | −$734K | $931K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $2,566,419 revenue, 12 lines filed
Part VI · Governance 13 of 13 board members independent, 1 to look at
Part VIII · Statement of revenue $2,566,419 across 6 lines filed
Part IX · Statement of functional expenses $2,569,335 across 16 lines filed
Part X · Balance sheet $3,450,337 assets, 14 lines filed
Part XI · Reconciliation of net assets $3,351,753 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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