I Am Als EIN 83-2016277 Form 990 (PDF) Claim this org

I Am Als FY2021 filing

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Mobilizes the ALS community to advocate for policy change and research progress to end ALS. For fiscal year 2021 it reported $3.3M in revenue, $2.4M in expenses, and $2.4M in net assets.Pt I

Type
Public charity (501(c)(3)) · Health Care
Location
Chicago, IL
Website
www.iamals.org
Filings
5 on file (2020–2021)
Revenue
$3.3MFY2021
Expenses
$2.4M
Net assets
$2.4M
People
15
Filings
5
Updates
0
More identity details & actions ⌄
EIN  83-2016277 Public charity (501(c)(3)) Chicago, IL
Form 990 (PDF)
You’re viewing the FY2021 filing — not the latest on file. See the latest (FY2024) →
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Figures match the IRS filing checked 8/26/26 · see original: IRS
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Size
$1–10M
What they do
Mobilizes the ALS community to advocate for policy change and research progress to end ALS.
Leadership
Suzanne Anthony · Chief Operating Officer · $147K
Money in and out
$3.3M revenue, $2.4M expenses
Bottom line
77% program efficiency
Where the money goes · FY2021
Total revenue
$3.3M
Pt VIII · Ln 12
Total expenses
$2.4M
Pt IX · Ln 25
Net assets
$2.4M
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): $971K
Where spending went · Part IX cols B–D
Program services $0.77 Management & general $0.19 Fundraising $0.04
Program efficiency
77%
of spending reaches programs
Operating runway
8.2mo
months of highly liquid reserves at operating expense rate
Surplus margin
+29%
revenue over expenses, this year

Summary of the Filing

Part I · fiscal year 2021 · Form 990
Revenue
$3.3M
FY2021▲ +105%
Expenses
$2.4M
FY2021+0.3%
Total assets
$2.4M
FY2021▲ +133%
Total liabilities
$55K
FY2021▼ -52%
Total revenue
$3.3M
Pt VIII · Ln 12
Total expenses
$2.4M
Pt IX · Ln 25
Net assets
$2.4M
Pt X · Ln 32
Revenue less expensesPt I · Ln 19$971K
Total assetsPt X · Ln 16$2.4M
Program-expense ratioPt IX · col B77%
Voting members of governing bodyPt I · Ln 311
Independent voting membersPt I · Ln 410
Mission & Programs · Part III

Where the work happens

3 program services account for $1.8M of program spending, described in the organization's own filed words · FY2021.
01

Mobilize patients and their networks and transform public understanding - provide a way for those impacted by als to serve as a driving force in making progress in the als fight. Ensure that those outside of the als community know what als is and provide tools for an army of empowered advocates to make real progress on policy and…

$1.4Mprogram expense
02

Deliver for Patients

Deliver a comprehensive navigation program servicing als patients and their families to empower patients and their families with relevant medical and research information, support them emotionally, connect them with practical resources, and help them build a community around them.

$419Kprogram expense
03

Increase research funding, patient access to treatment, and speeding of treatments and cures. Build an als research platform to enable transformative research and execute on legislative priorities to dramatically increase research funding, improve patient access to potentially life-changing therapies, and deliver needed services and care…

$34Kprogram expense

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Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CI Am Als
EINHdr · item D83-2016277
Principal addressHdr · item CChicago, IL
WebsiteHdr · item Jwww.iamals.org
Year of formationHdr · item Lpending
State of legal domicileHdr · item MIL
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFHealth Care (E86)
Ruling yearIRS BMFJul 2019

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a11
Independent voting membersPt VI · Ln 1b10
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13Yes
Document retention policyPt VI · Ln 14Yes
CEO/top-official compensation independently reviewedPt VI · Ln 15aYes
Family or business relationships among officers/directorsPt VI · Ln 2Yes

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
Chief Operating Officer
$146,813Pt VII · Sec A
Dir., Then Interim CEO (from 06/21)
$143,645Pt VII · Sec A
CEO (until 07/2021)
$142,188Pt VII · Sec A
Communications & Organizing Director
$139,375Pt VII · Sec A
Director of Community Support
$123,600Pt VII · Sec A
Co-Founder
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A

Andrea Goodman’s $258K as CEO is at the 84th percentile of top reported officer pay among 3116 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 8 named individuals · Part VII

NameFY2024FY2023FY2022FY2021FY2020
Andrea Goodman$258,050$176,612
Danielle Carnival$142,188$252,866
Sonya Elling$194,838
Laura Pazze Dalle$192,023
Aditi Narayan$136,199$154,815$123,600$116,908
Aditi Narayan Minkoff$153,495
Suzanne Anthony$146,813
Michael Slaby See Schd L$143,645

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Statement of Revenue

Part VIII
Contributions & grants100%$3.3M
Investment income$2K
Other revenue$5K
— government grantsLn 1e$234K
Total revenueLn 12$3.3M

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.77 Management & general $0.19 Fundraising $0.04
Program services77%$1.8M
Management & general19%$461K
Fundraising4%$93K
Total functional expensesLn 25$2.4M

Balance Sheet

Part X · end of year
CashLn 1$1.6M
Total assetsLn 16$2.4M
Total liabilitiesLn 26$55K
Total net assetsLn 32$2.4M
Months of cash on handcomputed8.2

Financial Metrics

Form 990 · FY2021 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $1.6M · Operating expenses/yr $2.4M
8.2 months
Where the money goes
Program services
Program services $1.8M · Total expenses $2.4M
77%
Management & General
Management & general $461K · Total expenses $2.4M
19%
Fundraising
Fundraising $93K · Total expenses $2.4M
4%
Cost to raise $1
Fundraising expense (2-yr avg) $52K · Solicited contributions (2-yr avg) $2.4M
$0.02 to raise $1 (2-yr avg)
Where the money comes from
Contribution dependence
Contributions & grants $3.3M · Total revenue $3.3M
100%
Government reliance
Government grants $234K · Total revenue $3.3M
7%
Earned-income share
Program service revenue $0 · Total revenue $3.3M
0%
Investment reliance
Investment income $2K · Total revenue $3.3M
+0.07%
Program self-sufficiency
Program service revenue $0 · Total expenses $2.4M
0%
Growth & trend
Revenue growth (YoY)
This year $3.3M · Prior year $1.6M
+105%
Net-asset trend (YoY)
End of year $2.4M · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $3.3M · Expenses $2.4M
+29%
Liabilities-to-Assets
Total liabilities — · Total assets $2.4M
Net-asset ratio
Net assets $2.4M · Total assets $2.4M
98%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) — · Other securities (Pt X, ln 12) — · Total assets (Pt X, ln 16) $2.4M
Excludes program-related investments (Pt X, ln 13)
People & payroll
Highest Reported Total Compensation
Individual Suzanne Anthony · Reported title CHIEF OPERATING OFFICER · Highest reported compensation $147K · Total expenses $2.4M
6%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $1.2M · Total expenses $2.4M
51%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 77%
Overhead ratio 19%
Fundraising cost ratio 3%
Revenue growth 105%
Accounting fee ratio 3%

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 36 funders →
Grants paid · 3 grants · $500K · 2020–2020
Als AssociationVA · FY2020$100,000

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2024 (Latest)$4.1M revenue · ⤓ 990 PDF
FY2023$2.3M revenue · ⤓ 990 PDF
FY2022$1.6M revenue · ⤓ 990 PDF
FY2021$3.3M revenue · viewing · ⤓ 990 PDF
FY2020$1.6M revenue · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2021IRS
Classification, formation year, addressIRS Business Master File
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