Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in May 2018.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
98 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
7 people listed on the 990; $60K paid to officers and key staff.
Brittany Williams’s $42K as Executive Director is at the 28th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Brittany Williams | $42,330 | $41,663 | $41,662 | $21,803 | $14,100 |
| Betty Westbrook | $19,763 | $16,200 | $18,589 | $10,830 | $1,225 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Helps children with lymphedema receive necessary care and support.
Questions for Brylan's Feat Foundation
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Providing supplies, compression garments and medical expense reimbursements to children with lymphedema. More than 100 children benefitted
Camp Watchme special camp for children with lymphedema. More than 25 children and their families benefitted
Public awareness and support through website, email, personal and telephone conferences. Over 100 children benefitted
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $67K | $100K |
| Total assetsLn 16 | $67K | $100K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $67K | $100K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $820 | $820 | ||
| Grants to domestic individualsLn 2 | $138K | $138K | ||
| Grants and assistance to foreign recipientsLn 3 | $22K | $22K | ||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $60K | $60K | ||
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $0 | |||
| Pension plan contributionsLn 8 | $0 | |||
| Other employee benefitsLn 9 | $0 | |||
| Payroll taxesLn 10 | $0 | |||
| Management feesLn 11a | $0 | |||
| Legal feesLn 11b | $1K | $1K | ||
| Accounting feesLn 11c | $0 | |||
| Lobbying feesLn 11d | $0 | |||
| Investment management feesLn 11f | $0 | |||
| Other fees for servicesLn 11g | $0 | |||
| Advertising and promotionLn 12 | $6K | $6K | ||
| Office expensesLn 13 | $3K | $3K | ||
| Information technologyLn 14 | $0 | |||
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $5K | $5K | ||
| TravelLn 17 | $3K | $3K | ||
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $11K | $11K | ||
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $0 | |||
| InsuranceLn 23 | $87 | $87 | ||
| Other expenses (24a–d)Ln 24 | $11 | $11 | ||
| All other expensesLn 24e | $0 | |||
| Total functional expensesLn 25 | $249K | $245K | $4K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $257K | $304K | −$47K | $53K | 990 PDF |
| FY2023 | $136K | $100K | 990 PDF | ||
| FY2022 Viewing | $286K | $249K | $36K | $100K | 990 PDF |
| FY2021 | $186K | $67K | 990 PDF | ||
| FY2020 | $106K | $85K | 990 PDF |
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Schedules filed Part IV
See the full FY2022 990 (6 parts)
Part I · Summary $285,781 revenue, 12 lines filed
Part VI · Governance 7 of 7 board members independent, 4 to look at
Part VIII · Statement of revenue $285,781 across 8 lines filed
Part IX · Statement of functional expenses $249,362 across 30 lines filed
Part X · Balance sheet $99,888 assets, 6 lines filed
Part XI · Reconciliation of net assets $99,888 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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