Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding of how TANGO2 mutations affect people at the most basic cellular and biochemical pathway levels.

501(c)(3) charity; gifts are tax-deductible.
93¢ of each $1 spent went to programs.
$37K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · Pay: Part VII

Before you give

FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 5
filings with a surplus
Average surplus $70K a year · 15% of revenue · last 5 filings
Worth a look: a surplus in 2 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
93%
of spending
Looks good: 93% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$37K
to officers and key staff · 21% of spending
Worth a look: pay to officers and key staff is 21% of spending; over 20%.
Pt VII · Sec A
49 mo
of spending, in cash
Looks good: 49.0 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
8
named funders · $791K
Looks good: 8 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$335
0.05% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
9
of 9 voting members
Looks good: 9 of 9 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$658K
Spent
$179K
To programs
93%
Net assets
$728K
By yearFY2020–FY2024
Revenue
$658K
FY2020
Tap a bar for its year
Revenue by fiscal year
FY2020$658K
FY2021$348K
FY2022$452K
FY2023$265K
FY2024$604K
Expenses
$179K
FY2020
Tap a bar for its year
Expenses by fiscal year
FY2020$179K
FY2021$288K
FY2022$474K
FY2023$410K
FY2024$626K
Net assets
$728K
FY2020
Tap a bar for its year
Net assets by fiscal year
FY2020$728K
FY2021$789K
FY2022$767K
FY2023$623K
FY2024$600K

From the FY2020 Form 990 · figures checked against the IRS filing · see the original

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You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Sep 2018.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

93 cents of each dollar spent went to programs.

Program services 93% · $166K Management & general 5% · $8K Fundraising 2% · $4K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

4 people listed on the 990; $37K paid to officers and key staff.

Part VII, Section A · reportable compensation
Executive Director
$37,319Pt VII · Sec A
$0Pt VII · Sec A
Vice President and Secretary
$0Pt VII · Sec A
$0Pt VII · Sec A

Ann Geffen’s $97K as Executive Director is at the 67th percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 3 named individuals · Part VII

NameFY2024FY2023FY2022FY2021FY2020
Ann Geffen$96,750$93,085$83,835$79,010$37,319
Deena Chisholm$87,292$84,500$38,205——
Destiny Braden$32,083————

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Tango2 Research Foundation Incorporated executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Fund and guide research to find a cure for TANGO2 related disease.

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Provided by the organization

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2 programs · $166K · in their own filed words · FY2020
01

We funded 5 international research projects to learn more about the basic mechanisms of TANGO2

$122Kprogram expense
02

Natural History study recruitment, Community Outreach, Family Outreach, Research Committee coordination

$44Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 8 funders →
Grants paid · 29 grants · $653K · 2020–2024
Baylor College of MedicineFY2024$61,520
Brigham and Women S HospitalFY2024$25,000
University of RochesterFY2024$20,000
UpmcFY2024$14,800
Coastal Carolina UniversityFY2024$5,000
Baylor College of MedicineFY2023$43,000
Coastal Carolina UniversityFY2023$25,000
Concordia UniversityFY2023$25,000
Uplifting AthletesFY2023$20,000
Brigham and Women S HospitalFY2023$20,000
Vanderbilt UniversityFY2023$5,000
University of RochesterFY2023$5,000
University of MichiganFY2023$5,000
UpmcFY2023$5,000
University of TorinoFY2023$5,000
University of RochesterFY2022$32,500
Vanderbilt UniversityFY2022$20,000
University of TorinoFY2022$20,000
See all 29 grants →

By the numbers

The FY2020 990, line by line.

1The main four
Money inPt VIII
$658K
Ln 12
Gifts and grantsLn 1h$658K
Money outPt IX
$179K
Ln 25
Programscol B$166K
Managementcol C$8K
Fundraisingcol D$4K
Owns and owesPt X
$728K
net assets · Ln 32
Cash and savingsLn 1–2$729K
Total assetsLn 16$729K
LiabilitiesLn 26$335
PeoplePt VI, VII
4
listed · VII A
PaidVII A1
Voting boardVI 1a9
IndependentVI 1b9
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$658K
Government grantsLn 1e$0
Noncash giftsLn 1g$0
Fundraising eventsLn 1c$0
Total revenueLn 12$658K
Assets in detailPt X, end of year
CashLn 1$729K
Cash and savings togetherLn 1–2$729K
Total assetsLn 16$729K
LiabilitiesLn 26$335
Net assetsLn 32$728K
OperationsPt I, VI
EmployeesI 51
VolunteersI 615
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY20End FY20
Cash and savingsLn 1–2$249K$729K
Total assetsLn 16$249K$729K
LiabilitiesLn 26$0$335
Net assetsLn 32$249K$728K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$42K$42K
Grants to domestic individualsLn 2$0
Grants and assistance to foreign recipientsLn 3$80K$80K
Pay of current officers, directors and key staffLn 5$37K$30K$4K$3K
Pay of disqualified personsLn 6$0
Payroll taxesLn 10$3K$2K$326$273
InsuranceLn 23$2K$2K
All other expensesLn 24e$14K$11K$2K$346
Total functional expensesLn 25$179K$166K$8K$4K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $604K$626K−$22K$600K 990 PDF
FY2023 $265K$410K−$144K$623K 990 PDF
FY2022 $452K$474K−$22K$767K 990 PDF
FY2021 $348K$288K$60K$789K 990 PDF
FY2020 Viewing $658K$179K$479K$728K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support F · Foreign O · Explanations
See the full FY2020 990 (6 parts)
Part I · Summary $657,747 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $187,904$657,747
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$0
I-11 Other revenuePrior year $0$0
I-12 Total revenuePrior year $187,904$657,747
I-13 Grants and similar amounts paidPrior year $15,000$122,400
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$40,364
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $19,436$15,744
I-18 Total expensesPrior year $34,436$178,508
I-19 Revenue less expensesPrior year $153,468$479,239
Part VI · Governance 9 of 9 board members independent, no flags
VI-1a Voting members of the governing body9
VI-1b Independent voting members9
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $657,747 across 10 lines filed
VIII-1a Federated campaigns$0
VIII-1b Membership dues$0
VIII-1c Fundraising events$0
VIII-1d Related organizations$0
VIII-1e Government grants$0
VIII-1f All other contributions, gifts and grants$657,747
VIII-1g Noncash contributions (included above)$0
VIII-1h Total contributions, gifts and grants$657,747
VIII-8 Net income from fundraising eventsUnrelated business $0 · Excluded from tax $0$0
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$657,747
Part IX · Statement of functional expenses $178,508 across 8 lines filed
IX-1 Grants to domestic organizationsPrograms $42,400$42,400
IX-2 Grants to domestic individuals$0
IX-3 Grants and assistance to foreign recipientsPrograms $80,000$80,000
IX-5 Pay of current officers, directors and key staffPrograms $30,000 · Management $4,000 · Fundraising $3,318$37,318
IX-6 Pay of disqualified persons$0
IX-10 Payroll taxesPrograms $2,447 · Management $326 · Fundraising $273$3,046
IX-23 InsuranceManagement $1,506$1,506
IX-24e All other expensesPrograms $11,392 · Management $2,500 · Fundraising $346$14,238
IX-25 Total functional expensesPrograms $166,239 · Management $8,332 · Fundraising $3,937$178,508
Part X · Balance sheet $728,707 assets, 8 lines filed
X-1 Cash, non-interest-bearingStart of year $249,133$728,707
X-16 Total assetsStart of year $249,133$728,707
X-17 Accounts payable and accrued expenses$335
X-26 Total liabilitiesStart of year $0$335
X-27 Net assets without donor restrictionsStart of year $249,133$728,372
X-28 Net assets with donor restrictionsStart of year $0$0
X-32 Total net assets or fund balancesStart of year $249,133$728,372
X-33 Total liabilities and net assetsStart of year $249,133$728,707
Part XI · Reconciliation of net assets $728,372 net assets at year end
XI-1 Total revenue$657,747
XI-2 Total expenses$178,508
XI-3 Revenue less expenses$479,239
XI-4 Net assets at start of year$249,133
XI-5 Net unrealized gains (losses) on investments$0
XI-6 Donated services and use of facilities$0
XI-7 Investment expenses$0
XI-8 Prior period adjustments$0
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$728,372

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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