Form 990 for the fiscal year ending December 2023 (IRS tax year 2023).
Connects families with Krabbe disease to comprehensive information and resources.
- Type
- Public charity (501(c)(3)) · Diseases & Disorders
- Location
- Rosemount, MN
- Website
- www.krabbeconnect.org
- Filings
- 5 on file (2020–2023)
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Summary of the Filing
Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Anne Rugari’s $24K as Vice President/Treasurer is at the 15th percentile of top reported officer pay among 902 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2022 | FY2021 | FY2020 |
|---|---|---|---|
| Anne Rugari | $24,350 | $16,400 | $15,200 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Where the work happens
Patient Engagement
Providing information and resources for krabbe disease through krabbeconnect website, facebook, and social medial channels. Engagement with families affected by the disease by offering support and connections for managing care of the patients.
Research and Development
Krabbeconnect produced a poster to discuss the patient burden of krabbe disease. Research conducted to collect data from patients to capture the unmet needs in the krabbe community. The research will serve as a tool to clinicians, scientists, researchers, and industry to help with the advancement of new novel treatments in the krabbe…
Patient Advocacy and Advancement
Board members routinely attend conferences and meetings that involve the rare disease community to support the needs of the krabbe patients and their families. Krabbeconnect also participates in networking opportunities with other advocacy foundations joining together to have a voice for the patients.
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 74% | — | — |
| Overhead ratio | 26% | — | — |
| Fundraising cost ratio | 0% | — | — |
| Revenue growth | 47% | — | — |
| Accounting fee ratio | 0.6% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
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Filings & Schedule Manifest
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Sources
Names, privacy, and removal requests More
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