Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Dec 1998.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
85 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
4 people listed on the 990; $189K paid to officers and key staff.
Patty Keating’s $118K as Executive Director is at the 87th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 |
|---|---|---|
| Patty Keating | $118,377 | $98,019 |
| Michele Rayes | $70,866 | $54,342 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Hypoparathyroidism Association INC is a disease and medical nonprofit based in Frisco, TX, formed in 1998.
Questions for Hypoparathyroidism Association INC
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During the year, Hypopara Association significantly expanded its patient support, advocacy, research, and global outreach initiatives. The organization launched a new Genetic Testing Program focused on bringing cascade genetic testing directly to patients and their families.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $258K | $317K |
| Total assetsLn 16 | $258K | $317K |
| LiabilitiesLn 26 | $6K | $29K |
| Net assetsLn 32 | $252K | $288K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $20K | $20K | ||
| Other salaries and wagesLn 7 | $190K | $135K | $54K | |
| Payroll taxesLn 10 | $14K | $10K | $4K | |
| Accounting feesLn 11c | $2K | $2K | ||
| Advertising and promotionLn 12 | $6K | $6K | ||
| Office expensesLn 13 | $26K | $26K | ||
| Information technologyLn 14 | $4K | $4K | ||
| TravelLn 17 | $180 | $180 | ||
| Conferences, conventions and meetingsLn 19 | $274K | $274K | ||
| InsuranceLn 23 | $3K | $3K | ||
| Other expenses (24a–d)Ln 24 | $103K | $103K | ||
| Total functional expensesLn 25 | $643K | $543K | $99K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $701K | $643K | $58K | $288K | 990 PDF |
| FY2024 | $458K | $432K | $26K | $252K | 990 PDF |
| FY2023 | $241K | $202K | $39K | $271K | 990 PDF |
| FY2022 | $117K | $166K | 990 PDF | ||
| FY2021 | $109K | $138K | 990 PDF | ||
| FY2020 | $106K | $98K | 990 PDF | ||
| FY2019 | $57K | $71K | 990 PDF | ||
| FY2018 | $69K | $59K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $700,642 revenue, 12 lines filed
Part VI · Governance 5 of 5 board members independent, 4 to look at
Part VIII · Statement of revenue $700,642 across 5 lines filed
Part IX · Statement of functional expenses $642,607 across 11 lines filed
Part X · Balance sheet $316,974 assets, 8 lines filed
Part XI · Reconciliation of net assets $288,269 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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