Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Apr 2017.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
100 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
4 people listed on the 990.
Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Develops compounds to improve health for people with rare neurodegenerative disorders.
Questions for Spoonbill Foundation
Your first name shows with your question. Spoonbill Foundation answers here, for everyone.
Synthesis of GMP compound, and support for clinical trial activities including database support, shipping of study product, testing, etc.
Form 990 Part III, line 4, FY2020. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 81-5080532) · Dispute this lineFunders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $1.5M | $1.2M |
| Total assetsLn 16 | $1.5M | $1.2M |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $1.5M | $1.2M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $0 | $0 | ||
| Grants to domestic individualsLn 2 | $0 | $0 | ||
| Grants and assistance to foreign recipientsLn 3 | $0 | $0 | ||
| Benefits paid to or for membersLn 4 | $0 | $0 | ||
| Pay of officers and key staff (Part IX, line 5)Ln 5 | $0 | $0 | $0 | $0 |
| Pay of disqualified personsLn 6 | $0 | $0 | $0 | $0 |
| Other salaries and wagesLn 7 | $0 | $0 | $0 | $0 |
| Pension plan contributionsLn 8 | $0 | $0 | $0 | $0 |
| Other employee benefitsLn 9 | $0 | $0 | $0 | $0 |
| Payroll taxesLn 10 | $0 | $0 | $0 | $0 |
| Management feesLn 11a | $0 | $0 | $0 | $0 |
| Legal feesLn 11b | $85 | $0 | $85 | $0 |
| Accounting feesLn 11c | $80 | $0 | $80 | $0 |
| Other fees for servicesLn 11g | $477K | $477K | $0 | $0 |
| Office expensesLn 13 | $84 | $0 | $84 | $0 |
| Total functional expensesLn 25 | $478K | $477K | $249 | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 LatestFiled with the IRS Aug 11, 2025 | $25K | $4K | $21K | $802K | 990 PDF |
| FY2023Filed with the IRS Sep 23, 2024 | $29K | $33K | −$4K | $781K | 990 PDF |
| FY2022Filed with the IRS Sep 11, 2023 | $18K | $277K | −$259K | $785K | 990 PDF |
| FY2021Filed with the IRS Sep 14, 2022 | $90K | $237K | −$148K | $1.0M | 990 PDF |
| FY2020 ViewingFiled with the IRS Sep 27, 2021 | $134K | $478K | −$343K | $1.2M | 990 PDF |
Schedules filed Part IV
See the full FY2020 990
Part I · Summary $134,485 revenue, 12 lines filed
Part VI · Governance 4 of 4 board members independent, 4 to look at
Part VIII · Statement of revenue $134,485 across 11 lines filed
Part IX · Statement of functional expenses $477,592 across 15 lines filed
Part X · Balance sheet $1,191,526 assets, 8 lines filed
Part XI · Reconciliation of net assets $1,191,526 net assets at year end
Form 990 e-file FY2020 from the IRS (about our sources) · Classification, formation year and address from the IRS Business Master File
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