Milas Miracle Foundation INC FY2020 filing

Claim this org

(tell your story, add context, and more) Claim it free, then get the verified mark for $100 a year.

How does your 990 look to donors? Take the 10-Question Audit

The mission of mila's Miracle Foundation is to find and fund paths to a cure for batten and other life-threatening neurological disorders. Families in this community have been pivotal in raising the necessary funds and awareness. Together with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. Through our fundraising - which includes grassroots efforts, individuals and family foundations, and events - our foundation's work has focused on four primary program initiatives to date: an antisense oligonucleotide (aso) clinical trial & the expansion of personal medicines (underway); a cln7 gene therapy trial (underway); basic science research for batten disease (two grant projects complete and two more underway); and a batten & neurodegenerative disease program clinic (first clinic launched & underway). Additionally, we are focused on helping to grow the new field of truly personal medi

501(c)(3) charity; gifts are tax-deductible.
93¢ of each $1 spent went to programs.
$100K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · Pay: Part VII

Before you give

FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
1 of 4
filings with a surplus
Average deficit $159K a year · 35% of revenue · last 4 filings
Concern: a surplus in 1 of the last 4 filings.
Pt I · Ln 19 · 4 filings
Spent on programs
93%
of spending
Looks good: 93% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$100K
to officers and key staff · 13% of spending
Looks good: pay to officers and key staff is 13% of spending; 15% or less.
Pt VII · Sec A
8 mo
of spending, in cash
Looks good: 7.9 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
4
named funders · $94K
Looks good: 4 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
5
of 5 voting members
Looks good: 5 of 5 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$194K
Spent
$792K
To programs
93%
Net assets
$893K
By yearFY2020–FY2024
Revenue
$194K
FY2020
Tap a bar for its year
Revenue by fiscal year
FY2020$194K
FY2021$264K
FY2022$650K
FY2023$21K
FY2024$707K
Expenses
$792K
FY2020
Tap a bar for its year
Expenses by fiscal year
FY2020$792K
FY2021$505K
FY2022$661K
FY2023Not on file
FY2024$493K
Net assets
$893K
FY2020
Tap a bar for its year
Net assets by fiscal year
FY2020$893K
FY2021$653K
FY2022$641K
FY2023$270K
FY2024$484K

From the FY2020 Form 990 · figures checked against the IRS filing · see the original

Give Claim
You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Oct 2017.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

93 cents of each dollar spent went to programs.

Program services 93% · $739K Management & general 5% · $41K Fundraising 1% · $12K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

Something off? Claim to add context

Who runs it and what they're paid

6 people listed on the 990; $100K paid to officers and key staff.

Part VII, Section A · reportable compensation
$100,000Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Vice Chair
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A

Julia Vitarello’s $113K as President is at the 77th percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 1 named individual · Part VII

NameFY2024FY2023FY2022FY2021FY2020
Julia Vitarello$113,470$110,000$110,000$104,583$100,000

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Milas Miracle Foundation INC executive salaries →

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research and clinical trials for cures for Batten and other neurological disorders.

Questions for Milas Miracle Foundation INC

Tap to ask. Milas Miracle Foundation INC sees how many people are interested.

Your first name shows with your question. Milas Miracle Foundation INC answers here, for everyone.

1 program · $739K · in their own filed words · FY2020
01

Through Our Fundraising

Which includes grassroots efforts, individuals and family foundations, and events - MMF is working hard to start and fund new treatments that could help children with batten and other life- threatening neurological disorders.

$739Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record
Grants received · FY2024
Total grants receivedfrom 4 funders$94K
See all 4 funders →

By the numbers

The FY2020 990, line by line.

1The main four
Money inPt VIII
$194K
Ln 12
Gifts and grantsLn 1h$194K
Investment incomeLn 3$400
Money outPt IX
$792K
Ln 25
Programscol B$739K
Managementcol C$41K
Fundraisingcol D$12K
Owns and owesPt X
$893K
net assets · Ln 32
Cash and savingsLn 1–2$520K
Total assetsLn 16$893K
LiabilitiesLn 26$0
PeoplePt VI, VII
6
listed · VII A
PaidVII A1
Voting boardVI 1a5
IndependentVI 1b5
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$194K
Investment incomeLn 3$400
Total revenueLn 12$194K
Assets in detailPt X, end of year
CashLn 1$1K
SavingsLn 2$519K
Cash and savings togetherLn 1–2$520K
Notes and loans receivableLn 7$374K
Total assetsLn 16$893K
LiabilitiesLn 26$0
Net assetsLn 32$893K
OperationsPt I, VI
EmployeesI 52
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY20End FY20
Cash and savingsLn 1–2$1.5M$520K
Total assetsLn 16$1.5M$893K
LiabilitiesLn 26$0$0
Net assetsLn 32$1.5M$893K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Pay of current officers, directors and key staffLn 5$100K$78K$15K$7K
Other salaries and wagesLn 7$50K$39K$8K$4K
Payroll taxesLn 10$12K$9K$2K$834
Other fees for servicesLn 11g$611K$610K$612
Advertising and promotionLn 12$3K$3K
Office expensesLn 13$396$396
TravelLn 17$3K$3K
Conferences, conventions and meetingsLn 19$370$370
InsuranceLn 23$1K$1K
Other expenses (24a–d)Ln 24$12K$12K
Total functional expensesLn 25$792K$739K$41K$12K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 LatestFiled with the IRS Nov 17, 2025 $707K$493K$214K$484K 990 PDF
FY2023Filed with the IRS Sep 11, 2024 $21K$270K 990 PDF
FY2022Filed with the IRS Nov 15, 2023 $650K$661K−$12K$641K 990 PDF
FY2021Filed with the IRS Oct 28, 2022 $264K$505K−$241K$653K 990 PDF
FY2020 ViewingFiled with the IRS Nov 15, 2021 $194K$792K−$598K$893K 990 PDF

Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2020 990 (6 parts)
Part I · Summary $194,010 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $1,258,360$193,610
I-9 Program service revenue$0
I-10 Investment incomePrior year $494$400
I-11 Other revenue$0
I-12 Total revenuePrior year $1,258,854$194,010
I-13 Grants and similar amounts paid$0
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $162,315$161,559
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $554,562$630,234
I-18 Total expensesPrior year $716,877$791,793
I-19 Revenue less expensesPrior year $541,977−$597,783
Part VI · Governance 5 of 5 board members independent, 3 to look at
VI-1a Voting members of the governing body5
VI-1b Independent voting members5
VI-2 Family or business relationship among officers or directorsYes
VI-13 Written whistleblower policyNo
VI-15a Process for setting top official's payNo
VI-12a Written conflict of interest policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $194,010 across 4 lines filed
VIII-1f All other contributions, gifts and grants$193,610
VIII-1h Total contributions, gifts and grants$193,610
VIII-3 Investment incomeExcluded from tax $400$400
VIII-12 Total revenueExcluded from tax $400$194,010
Part IX · Statement of functional expenses $791,793 across 10 lines filed
IX-5 Pay of current officers, directors and key staffPrograms $77,569 · Management $15,278 · Fundraising $7,153$100,000
IX-7 Other salaries and wagesPrograms $38,785 · Management $7,639 · Fundraising $3,576$50,000
IX-10 Payroll taxesPrograms $8,947 · Management $1,778 · Fundraising $834$11,559
IX-11g Other fees for servicesPrograms $610,468 · Management $612$611,080
IX-12 Advertising and promotionManagement $2,791$2,791
IX-13 Office expensesManagement $396$396
IX-17 TravelPrograms $3,067$3,067
IX-19 Conferences, conventions and meetingsPrograms $370$370
IX-23 InsuranceManagement $1,024$1,024
IX-24 Other expenses (24a–d)Management $11,506$11,506
IX-25 Total functional expensesPrograms $739,206 · Management $41,024 · Fundraising $11,563$791,793
Part X · Balance sheet $893,276 assets, 8 lines filed
X-1 Cash, non-interest-bearingStart of year $172,866$1,008
X-2 Savings and temporary cash investmentsStart of year $1,318,193$518,592
X-7 Notes and loans receivable$373,676
X-16 Total assetsStart of year $1,491,059$893,276
X-26 Total liabilitiesStart of year $0$0
X-27 Net assets without donor restrictionsStart of year $691,059$893,276
X-32 Total net assets or fund balancesStart of year $1,491,059$893,276
X-33 Total liabilities and net assetsStart of year $1,491,059$893,276
Part XI · Reconciliation of net assets $893,276 net assets at year end
XI-1 Total revenue$194,010
XI-2 Total expenses$791,793
XI-3 Revenue less expenses−$597,783
XI-4 Net assets at start of year$1,491,059
XI-10 Net assets at end of year$893,276

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

Similar organizations you could support · Compare with another nonprofit

Names, privacy, and removal requests More

The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.

Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.

We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.

Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.

If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.

Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.

If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.

All figures are derived from public IRS Form 990 filings and are presented without evaluation of any organization. philanthropy.org does not rate, score, or rank organizations, including the pay comparisons above.