Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jun 2016.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
80 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
15 people listed on the 990; $79K paid to officers and key staff.
Theresa Nelson’s $79K as Executive Director is at the 62nd percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Theresa Nelson | $78,718 | $63,178 | $50,000 | $29,167 | — |
| Judy Dierkhising | — | — | — | $20,833 | $50,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports individuals with ataxia through aid, education, and research funding.
Questions for Ataxia Connection INC
Your first name shows with your question. Ataxia Connection INC answers here, for everyone.
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Provided support groups and educational opportunities for individuals and caregivers dealing with the medical impact of ataxia.
Granted financial support for ataxia research and diagnosed individuals
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $229K | $131K |
| Total assetsLn 16 | $232K | $145K |
| LiabilitiesLn 26 | $9K | $19K |
| Net assetsLn 32 | $223K | $126K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $500 | $500 | ||
| Pay of current officers, directors and key staffLn 5 | $79K | $79K | ||
| Payroll taxesLn 10 | $9K | $9K | ||
| Legal feesLn 11b | $9K | $9K | ||
| Accounting feesLn 11c | $5K | $5K | ||
| Other fees for servicesLn 11g | $16K | $16K | ||
| Advertising and promotionLn 12 | $8K | $8K | ||
| Office expensesLn 13 | $851 | $851 | ||
| TravelLn 17 | $11K | $11K | ||
| InsuranceLn 23 | $2K | $2K | ||
| Other expenses (24a–d)Ln 24 | $136K | $121K | $15K | |
| All other expensesLn 24e | $19K | $16K | $3K | |
| Total functional expensesLn 25 | $295K | $235K | $59K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $197K | $295K | −$97K | $126K | 990 PDF |
| FY2023 | $178K | $187K | −$9K | $223K | 990 PDF |
| FY2022 | $82K | $233K | 990 PDF | ||
| FY2021 | $147K | $280K | 990 PDF | ||
| FY2020 | $84K | $215K | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $197,420 revenue, 12 lines filed
Part VI · Governance 14 of 14 board members independent, 1 to look at
Part VIII · Statement of revenue $197,420 across 5 lines filed
Part IX · Statement of functional expenses $294,711 across 12 lines filed
Part X · Balance sheet $145,424 assets, 8 lines filed
Part XI · Reconciliation of net assets $126,107 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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