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Sdhb Coalition INC FY2022 filing

Tax-deductible

Doylestown, PA501(c)(3)Medical Research EIN 81-1914857Revenue $159K in FY2022Latest return filed Apr 12, 2026

On file with the IRSsdhbcoalition.orgDoylestown, PATax-exempt since Aug 2016Publicly supported — 509(a)(2)

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Our mission is to educate healthcare professional and patients in the Sdhb genetic mutation as well as its role and impact in this orphan disease, namely pheochromocytoma and paraganglioma and to sponsor research with the goal of finding better treatment options and/or a cure...

501(c)(3) charity; gifts are tax-deductible.
100¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2022 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
1 of 6
filings with a surplus
Average deficit $41K a year · 26% of revenue · last 6 filings
Concern: a surplus in 1 of the last 6 filings.
Pt I · Ln 19 · 6 filings
Spent on programs
100%
of spending
Looks good: 100% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
30 mo
of spending, in cash
Looks good: 29.5 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $10K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
9
of 9 voting members
Looks good: 9 of 9 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$159K
+249% vs prior year
Spent
$128K
To programs
100%
Net assets
$314K
By yearFY2020–FY2025
Revenue
$159K
FY2022▲ +249%
Tap a bar for its year
Revenue by fiscal year
FY2020$146K
FY2021$46K
FY2022$159K
FY2023$210K
FY2024$177K
FY2025$200K
Expenses
$128K
FY2022▲ +72%
Tap a bar for its year
Expenses by fiscal year
FY2020$172K
FY2021$75K
FY2022$128K
FY2023$353K
FY2024$216K
FY2025$240K
Net assets
$314K
FY2022▲ +11%
Tap a bar for its year
Net assets by fiscal year
FY2020$313K
FY2021$283K
FY2022$314K
FY2023$171K
FY2024$133K
FY2025$93K

From the FY2022 Form 990 · see the original

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You’re viewing the FY2022 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Aug 2016.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

100 cents of each dollar spent went to programs.

Program services 100% · $128K

Form 990 Part IX, line 25. Every line is in By the numbers.

Something off? Claim to add context

Who runs it and what they're paid

7 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Xiaokui Zhang
Vice Preside
$0Pt VII · Sec A
See Sdhb Coalition INC executive salaries →

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Educates about SDHB genetic mutations and funds research for better treatments for pheochromocytoma and paraganglioma.

Questions for Sdhb Coalition INC

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1 program · in their own filed words · FY2022
01

Our mission is to educate healthcare professional and patients in the SDHB genetic mutation as well as its role and impact in this orphan disease, namely pheochromocytoma and paraganglioma and to sponsor research with the goal of finding better treatment options AND/OR a cure...

Pt IX · col B

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
The Papa Family Charitable TrustFY2024$10K
Total grants receivedfrom 1 funder$10K
Grants paid · 13 grants · $818K · 2020–2025
University of ArizonaFY2025$70,000
The Board of Trustees of the Leland Stanford Junior UniversityCA · FY2025$70,000
University of ArizonaFY2024$75,000
The Board of Trustees of the Leland Stanford Junior UniversityCA · FY2024$75,000
University of ArizonaFY2023$100,000
The Board of Trustees of the Leland Stanford Junior UniversityCA · FY2023$100,000
University of FloridaFL · FY2023$38,500
University of AlabamaFY2022$115,000
The Broad Institute INCMA · FY2021$37,245
University of AlabamaFY2021$25,000
University of FloridaFY2020$50,000
The Broad Institute INCMA · FY2020$37,245
University of AlabamaFY2020$25,000

By the numbers

The FY2022 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$159K
Ln 12
Gifts and grantsLn 1h$187K
Money outPt IX
$128K
Ln 25
Programscol B$128K
Owns and owesPt X
$314K
net assets · Ln 32
Cash and savingsLn 1–2$314K
Total assetsLn 16$314K
LiabilitiesLn 26$0
PeoplePt VI, VII
7
listed · VII A
PaidVII A0
Voting boardVI 1a9
IndependentVI 1b9
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$187K
Fundraising eventsLn 1c$172K
Total revenueLn 12$159K
Assets in detailPt X, end of year
CashLn 1$314K
Cash and savings togetherLn 1–2$314K
Total assetsLn 16$314K
LiabilitiesLn 26$0
Net assetsLn 32$314K
OperationsPt I, VI
EmployeesI 50
VolunteersI 69
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY22End FY22
Cash and savingsLn 1–2$283K$314K
Total assetsLn 16$283K$314K
LiabilitiesLn 26$0$0
Net assetsLn 32$283K$314K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$115K$115K
Legal feesLn 11b$917$917
Accounting feesLn 11c$475$475
Other fees for servicesLn 11g$9K$9K
InsuranceLn 23$2K$2K
Total functional expensesLn 25$128K$128K$0$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 LatestFiled with the IRS Apr 12, 2026 $200K$240K−$40K$93K 990 PDF
FY2024Filed with the IRS May 12, 2025 $177K$216K−$39K$133K 990 PDF
FY2023Filed with the IRS May 9, 2024 $210K$353K−$143K$171K 990 PDF
FY2022 ViewingFiled with the IRS May 10, 2023 $159K$128K$31K$314K 990 PDF
FY2021Filed with the IRS May 10, 2022 $46K$75K−$29K$283K 990 PDF
FY2020Filed with the IRS May 14, 2021 $146K$172K−$26K$313K 990 PDF

Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2022 990 (6 parts)
Part I · Summary $158,646 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $45,508$186,578
I-9 Program service revenue$0
I-10 Investment income$0
I-11 Other revenue−$27,932
I-12 Total revenuePrior year $45,508$158,646
I-13 Grants and similar amounts paidPrior year $62,245$115,000
I-14 Benefits paid to members$0
I-15 Salaries and benefits$0
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $12,325$12,906
I-18 Total expensesPrior year $74,570$127,906
I-19 Revenue less expensesPrior year −$29,062$30,740
Part VI · Governance 9 of 9 board members independent, 4 to look at
VI-1a Voting members of the governing body9
VI-1b Independent voting members9
VI-2 Family or business relationship among officers or directorsYes
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $158,646 across 5 lines filed
VIII-1c Fundraising events$171,670
VIII-1f All other contributions, gifts and grants$14,908
VIII-1h Total contributions, gifts and grants$186,578
VIII-8 Net income from fundraising events−$27,932
VIII-12 Total revenue$158,646
Part IX · Statement of functional expenses $127,906 across 5 lines filed
IX-1 Grants to domestic organizationsPrograms $115,000$115,000
IX-11b Legal feesPrograms $917$917
IX-11c Accounting feesPrograms $475$475
IX-11g Other fees for servicesPrograms $9,427$9,427
IX-23 InsurancePrograms $2,087$2,087
IX-25 Total functional expensesPrograms $127,906 · Management $0 · Fundraising $0$127,906
Part X · Balance sheet $314,209 assets, 6 lines filed
X-1 Cash, non-interest-bearingStart of year $283,469$314,209
X-16 Total assetsStart of year $283,469$314,209
X-26 Total liabilitiesStart of year $0$0
X-27 Net assets without donor restrictionsStart of year $283,469$314,209
X-32 Total net assets or fund balancesStart of year $283,469$314,209
X-33 Total liabilities and net assetsStart of year $283,469$314,209
Part XI · Reconciliation of net assets $314,209 net assets at year end
XI-1 Total revenue$158,646
XI-2 Total expenses$127,906
XI-3 Revenue less expenses$30,740
XI-4 Net assets at start of year$283,469
XI-10 Net assets at end of year$314,209

Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File

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