The cnoc is a not-for-profit organization established to determine and implement best practices of Neurodevelopmental and psychosocial services for individuals with pediatric and congenital heart disease and their families through clinical, quality improvement, and research initiatives.

501(c)(3) charity; gifts are tax-deductible.
80¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
6 of 6
filings with a surplus
Average surplus $87K a year · 32% of revenue · last 6 filings
Looks good: a surplus in 6 of the last 6 filings.
Pt I · Ln 19 · 6 filings
Spent on programs
80%
of spending
Looks good: 80% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
37 mo
of spending, in cash
Looks good: 37.3 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $6K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$64K
10% of total assets
Looks good: liabilities are 10% of assets; 50% or less.
Pt X · Ln 26
Independent board members
22
of 22 voting members
Looks good: 22 of 22 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$323K
+55% vs prior year
Spent
$173K
To programs
80%
Net assets
$592K
By yearFY2020–FY2025
Revenue
$323K
FY2024▲ +55%
Tap a bar for its year
Revenue by fiscal year
FY2020$224K
FY2021$257K
FY2022$297K
FY2023$209K
FY2024$323K
FY2025$319K
Expenses
$173K
FY2024▲ +75%
Tap a bar for its year
Expenses by fiscal year
FY2020$185K
FY2021$191K
FY2022$257K
FY2023$99K
FY2024$173K
FY2025$202K
Net assets
$592K
FY2024▲ +36%
Tap a bar for its year
Net assets by fiscal year
FY2020$213K
FY2021$279K
FY2022$320K
FY2023$434K
FY2024$592K
FY2025$735K

From the FY2024 Form 990 · see the original

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You’re viewing the FY2024 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Sep 2016.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

80 cents of each dollar spent went to programs.

Program services 80% · $139K Management & general 20% · $34K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

23 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
Co-Chair
$0Pt VII · Sec A
Co-Vice Chair
$0Pt VII · Sec A
Co-Vice Chair
$0Pt VII · Sec A
Secretary
$0Pt VII · Sec A
$0Pt VII · Sec A
Immediate Past Chair
$0Pt VII · Sec A
Immediate Past Chair
$0Pt VII · Sec A
See Cardiac Neurodevelopmental Outcome Collaborative executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Improves neurodevelopmental and psychosocial services for children with heart disease and their families.

Questions for Cardiac Neurodevelopmental Outcome Collaborative

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Your first name shows with your question. Cardiac Neurodevelopmental Outcome Collaborative answers here, for everyone.

Provided by the organization

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3 programs · $139K · in their own filed words · FY2024
01

Provide training, education, and relevant information to members through publications, the annual symposium, and the website and to foster community outreach through these same forums.

$139Kprogram expense
02

Cnoc's neurodevelopmental core lab (NDC) and data analysis core (dac) are researching the development of infants, toddlers and preschoolers who have undergone neonatal cardiac surgery using a limited list of demographic, neurodevelopmental, medical history and surgical variables.

Pt IX · col B
03

The purpose of the inaugural cnoc investigator award is to provide funding support for cnoc members to leverage the cnoc infrastructure to conduct research AND/OR quality improvement science aimed at improving neurodevelopmental, psychosocial outcomes, AND/OR quality of life for children and families affected by congenital heart disease…

Pt IX · col B

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2022
Total grants receivedfrom 1 funder$6K
Grants paid · 1 grant · $50K · 2022–2022

By the numbers

The FY2024 990, line by line.

1The main four
Money inPt VIII
$323K
Ln 12
Fees for servicesLn 2g$307K
Investment incomeLn 3$15K
Money outPt IX
$173K
Ln 25
Programscol B$139K
Managementcol C$34K
Owns and owesPt X
$592K
net assets · Ln 32
Cash and savingsLn 1–2$537K
Total assetsLn 16$655K
LiabilitiesLn 26$64K
PeoplePt VI, VII
23
listed · VII A
PaidVII A0
Voting boardVI 1a22
IndependentVI 1b22
2In more detail
Revenue in detailPt VIII
Fees for servicesLn 2g$307K
Investment incomeLn 3$15K
Gains on assetsLn 7$908
Total revenueLn 12$323K
Assets in detailPt X, end of year
CashLn 1$537K
Cash and savings togetherLn 1–2$537K
InvestmentsLn 11–13$115K
Total assetsLn 16$655K
LiabilitiesLn 26$64K
Net assetsLn 32$592K
OperationsPt I, VI
EmployeesI 50
VolunteersI 6127
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$400K$537K
InvestmentsLn 11–13$84K$115K
Total assetsLn 16$486K$655K
LiabilitiesLn 26$52K$64K
Net assetsLn 32$434K$592K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Management feesLn 11a$62K$46K$15K
Accounting feesLn 11c$2K$2K
Office expensesLn 13$2K$2K
Information technologyLn 14$7K$7K
Conferences, conventions and meetingsLn 19$79K$79K
InsuranceLn 23$720$720
Other expenses (24a–d)Ln 24$21K$6K$14K
Total functional expensesLn 25$173K$139K$34K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest $319K$202K$117K$735K 990 PDF
FY2024 Viewing $323K$173K$150K$592K 990 PDF
FY2023 $209K$99K$110K$434K 990 PDF
FY2022 $297K$257K$40K$320K 990 PDF
FY2021 $257K$191K$67K$279K 990 PDF
FY2020 $224K$185K$39K$213K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2024 990 (6 parts)
Part I · Summary $322,742 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $0$0
I-9 Program service revenuePrior year $204,300$307,360
I-10 Investment incomePrior year $4,579$15,382
I-11 Other revenuePrior year $0$0
I-12 Total revenuePrior year $208,879$322,742
I-13 Grants and similar amounts paidPrior year $0$0
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $98,798$173,063
I-18 Total expensesPrior year $98,798$173,063
I-19 Revenue less expensesPrior year $110,081$149,679
Part VI · Governance 22 of 22 board members independent, 4 to look at
VI-1a Voting members of the governing body22
VI-1b Independent voting members22
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
Part VIII · Statement of revenue $322,742 across 4 lines filed
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $307,360$307,360
VIII-3 Investment incomeExcluded from tax $14,474$14,474
VIII-7 Net gain or loss on sales of assetsExcluded from tax $908$908
VIII-12 Total revenueRelated to mission $307,360 · Unrelated business $0 · Excluded from tax $15,382$322,742
Part IX · Statement of functional expenses $173,063 across 7 lines filed
IX-11a Management feesPrograms $46,404 · Management $15,468$61,872
IX-11c Accounting feesManagement $2,115$2,115
IX-13 Office expensesManagement $1,669$1,669
IX-14 Information technologyPrograms $7,058$7,058
IX-19 Conferences, conventions and meetingsPrograms $78,820$78,820
IX-23 InsuranceManagement $720$720
IX-24 Other expenses (24a–d)Programs $6,422 · Management $14,387$20,809
IX-25 Total functional expensesPrograms $138,704 · Management $34,359 · Fundraising $0$173,063
Part X · Balance sheet $655,327 assets, 10 lines filed
X-1 Cash, non-interest-bearingStart of year $399,584$537,293
X-9 Prepaid expenses and deferred chargesStart of year $1,955$2,737
X-11 Publicly traded securitiesStart of year $83,972$115,297
X-16 Total assetsStart of year $485,511$655,327
X-17 Accounts payable and accrued expensesStart of year $1,968$3,125
X-19 Deferred revenueStart of year $50,000$60,450
X-26 Total liabilitiesStart of year $51,968$63,575
X-27 Net assets without donor restrictionsStart of year $433,543$591,752
X-32 Total net assets or fund balancesStart of year $433,543$591,752
X-33 Total liabilities and net assetsStart of year $485,511$655,327
Part XI · Reconciliation of net assets $591,752 net assets at year end
XI-1 Total revenue$322,742
XI-2 Total expenses$173,063
XI-3 Revenue less expenses$149,679
XI-4 Net assets at start of year$433,543
XI-5 Net unrealized gains (losses) on investments$8,530
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$591,752

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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