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Ann Steffens Scleroderma Research Foundation INC

Tax-deductible

Wells, NY501(c)(3)Medical ResearchEIN 81-1104933Revenue $53K in FY2024

On file with the IRSsteffens-scleroderma.orgPo Box 253, 12190-0253 · Wells, NYTax-exempt since Jun 2016Publicly supported charity — 170(b)(1)(A)(vi)

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To fund Research of sclerderma.

501(c)(3) charity; gifts are tax-deductible.
92¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
3 of 5
filings with a surplus
Average surplus $13K a year · 17% of revenue · last 5 filings
Worth a look: a surplus in 3 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
92%
of spending
Looks good: 92% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
19 mo
of spending, in cash
Looks good: 19.0 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $50
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
3
of 3 voting members
Looks good: 3 of 3 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$53K
-69% vs prior year
Spent
$80K
To programs
92%
Net assets
$127K
By yearFY2020–FY2024
Revenue
$53K
FY2024▼ -69%
Tap a bar for its year
Revenue by fiscal year
FY2020$41K
FY2021$54K
FY2022$42K
FY2023$170K
FY2024$53K
Expenses
$80K
FY2024▲ +21%
Tap a bar for its year
Expenses by fiscal year
FY2020$13K
FY2021$53K
FY2022$84K
FY2023$66K
FY2024$80K
Net assets
$127K
FY2024▼ -18%
Tap a bar for its year
Net assets by fiscal year
FY2020$93K
FY2021$93K
FY2022$51K
FY2023$155K
FY2024$127K

From the FY2024 Form 990 · see the original

Give Claim

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jun 2016.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

92 cents of each dollar spent went to programs.

Program services 92% · $74K Fundraising 8% · $7K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

3 people listed on the 990.

Part VII, Section A · reportable compensation
Amy Gietzen
Secretary
$0Pt VII · Sec A
Carla Gage
President
$0Pt VII · Sec A
$0Pt VII · Sec A
See Ann Steffens Scleroderma Research Foundation INC executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Funds research to find cures and treatments for scleroderma.

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Provided by the organization

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1 program · $74K · in their own filed words · FY2024
01

To fund research for sclerderma.

$74Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record
Grants received · FY2024
GE FoundationFY2024$50
Total grants receivedfrom 1 funder$50

By the numbers

The FY2024 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$53K
Ln 12
Gifts and grantsLn 1h$53K
Money outPt IX
$80K
Ln 25
Programscol B$74K
Fundraisingcol D$7K
Owns and owesPt X
$127K
net assets · Ln 32
Cash and savingsLn 1–2$127K
Total assetsLn 16$127K
LiabilitiesLn 26$0
PeoplePt VI, VII
3
listed · VII A
PaidVII A0
Voting boardVI 1a3
IndependentVI 1b3
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$53K
Fundraising eventsLn 1c$53K
Total revenueLn 12$53K
Assets in detailPt X, end of year
CashLn 1$127K
Cash and savings togetherLn 1–2$127K
Total assetsLn 16$127K
LiabilitiesLn 26$0
Net assetsLn 32$127K
OperationsPt I, VI
EmployeesI 50
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$155K$127K
Total assetsLn 16$155K$127K
LiabilitiesLn 26$0$0
Net assetsLn 32$155K$127K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
OccupancyLn 16$817$817
Conferences, conventions and meetingsLn 19$18K$12K$7K
Other expenses (24a–d)Ln 24$49K$49K
All other expensesLn 24e$12K$12K
Total functional expensesLn 25$80K$74K$0$7K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $53K$80K−$27K$127K 990 PDF
FY2023 $170K$66K$104K$155K 990 PDF
FY2022 $42K$84K−$42K$51K 990 PDF
FY2021 $54K$53K$724$93K 990 PDF
FY2020 $41K$13K$28K$93K 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2024 990 (6 parts)
Part I · Summary $52,694 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $170,019$52,694
I-9 Program service revenue$0
I-10 Investment income$0
I-11 Other revenue$0
I-12 Total revenuePrior year $170,019$52,694
I-13 Grants and similar amounts paid$0
I-14 Benefits paid to members$0
I-15 Salaries and benefits$0
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $66,430$80,147
I-18 Total expensesPrior year $66,430$80,147
I-19 Revenue less expensesPrior year $103,589−$27,453
Part VI · Governance 3 of 3 board members independent, 1 to look at
VI-1a Voting members of the governing body3
VI-1b Independent voting members3
VI-14 Document retention and destruction policyNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $52,694 across 4 lines filed
VIII-1c Fundraising events$52,694
VIII-1h Total contributions, gifts and grants$52,694
VIII-8 Net income from fundraising events$0
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$52,694
Part IX · Statement of functional expenses $80,147 across 4 lines filed
IX-16 OccupancyPrograms $817$817
IX-19 Conferences, conventions and meetingsPrograms $11,614 · Fundraising $6,541$18,155
IX-24 Other expenses (24a–d)Programs $49,336$49,336
IX-24e All other expensesPrograms $11,839$11,839
IX-25 Total functional expensesPrograms $73,606 · Management $0 · Fundraising $6,541$80,147
Part X · Balance sheet $127,219 assets, 5 lines filed
X-1 Cash, non-interest-bearingStart of year $154,673$127,219
X-16 Total assetsStart of year $154,673$127,219
X-26 Total liabilitiesStart of year $0$0
X-32 Total net assets or fund balancesStart of year $154,673$127,219
X-33 Total liabilities and net assetsStart of year $154,673$127,219
Part XI · Reconciliation of net assets $127,219 net assets at year end
XI-1 Total revenue$52,694
XI-2 Total expenses$80,147
XI-3 Revenue less expenses−$27,453
XI-4 Net assets at start of year$154,673
XI-7 Investment expenses−$1
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$127,219

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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