Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jan 2011.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
75 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
7 people listed on the 990; $248K paid to officers and key staff.
Marissa Penrod’s $150K as Founder & CEO is at the 72nd percentile of top reported officer pay among 3869 $1–10M human services nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Marissa Penrod | $149,600 | $141,600 | $113,913 | $104,083 | $80,000 |
| Jordan Montanino | — | $106,333 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Funds research for Duchenne muscular dystrophy cures and supports affected families.
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To assist families with expenses directly related to the care of a child diagnosed with duchenne muscular dystrophy.
To fund cutting edge research in order to find a cure or treatment for duchenne muscular dystrophy.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $1.2M | $1.8M |
| InvestmentsLn 11–13 | $0 | $17K |
| Land, buildings, equipmentLn 10c | $1K | $2K |
| Total assetsLn 16 | $1.3M | $1.8M |
| LiabilitiesLn 26 | $37K | $56K |
| Net assetsLn 32 | $1.3M | $1.8M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $142K | $99K | $21K | $21K |
| Other salaries and wagesLn 7 | $252K | $146K | $7K | $99K |
| Other employee benefitsLn 9 | $44K | $27K | $3K | $13K |
| Payroll taxesLn 10 | $33K | $21K | $2K | $10K |
| Legal feesLn 11b | $2K | $983 | $110 | $1K |
| Accounting feesLn 11c | $15K | $3K | $11K | $1K |
| Other fees for servicesLn 11g | $106K | $71K | $20K | $16K |
| Advertising and promotionLn 12 | $2 | $2 | ||
| Office expensesLn 13 | $18K | $5K | $6K | $7K |
| Information technologyLn 14 | $669 | $42 | $627 | |
| OccupancyLn 16 | $16K | $10K | $1K | $4K |
| TravelLn 17 | $858 | $798 | $60 | |
| Conferences, conventions and meetingsLn 19 | $24K | $22K | $1K | $693 |
| Depreciation, depletion and amortizationLn 22 | $762 | $475 | $54 | $233 |
| Other expenses (24a–d)Ln 24 | $486K | $451K | $2K | $32K |
| Total functional expensesLn 25 | $1.1M | $857K | $75K | $206K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $1.0M | $1.4M | −$397K | $1.4M | 990 PDF |
| FY2023 Viewing | $1.6M | $1.1M | $493K | $1.8M | 990 PDF |
| FY2022 | $1.1M | $928K | $196K | $1.3M | 990 PDF |
| FY2021 | $882K | $738K | $144K | $1.1M | 990 PDF |
| FY2020 | $899K | $920K | −$20K | $931K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $1,632,088 revenue, 12 lines filed
Part VI · Governance 5 of 6 board members independent, no flags
Part VIII · Statement of revenue $1,632,088 across 6 lines filed
Part IX · Statement of functional expenses $1,138,805 across 15 lines filed
Part X · Balance sheet $1,819,066 assets, 14 lines filed
Part XI · Reconciliation of net assets $1,762,764 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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