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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
Families of Spinal Muscular Atrophy Cure sma leads the way to a world without SPINAL MUSCULAR ATROPHY, the number one genetic cause of death for… 36-3320440 · FY2024 Elk Grove Vlg, IL $15.2M $14.0M $10.6M 77% 13% 61 501(c)(3)
The Parent Project for Muscular Dystrophy Research INC The PARENT PROJECT MUSCULAR DYSTROPHY (ppmd) fights to end duchenne. We accelerate RESEARCH, raise our voices… 31-1405490 · FY2024 Washington, DC $14.3M $12.9M $12.6M 88% 5% 28 501(c)(3)
Team Gleason Foundation (1)Help to provide individuals with neuro-muscular diseases or injuries with leading edge technology… 45-3689316 · FY2024 New Orleans, LA $8.5M $7.5M $9.6M 80% 10% 13 501(c)(3)
Kirk H and Joann P Gibson Family Foundation for Parkinsons Research Our mission is to improve the quality of life of those living with parkinson's through the development and… 82-4716374 · FY2024 Farmington Hills, MI $7.7M $1.3M $17.2M 60% 23% 7 501(c)(3)
Jett Foundation INC JETT FOUNDATION empowers people and families impacted by duchenne muscular dystrophy through the development… 04-3563445 · FY2024 Norwell, MA $5.1M $3.4M $10.4M 74% 15% 14 501(c)(3)
Coming Together for a Cure INC Provide a renewed hope for people with muscular dystrophy and other life-threatening diseases by advancing… 47-2585356 · FY2024 Wichita, KS $4.0M $4.0M $51.4K 94% 0% 501(c)(3)
Cure Duchenne Coordinating and funding research necessary to find a CURE for DUCHENNE muscular dystrophy. Also, improving… 20-0299958 · FY2024 Mission Viejo, CA $3.9M $9.2M $30.9M 80% 10% 30 501(c)(3)
Cure Jm Foundation To find better treatments and a CURE for juvenile myositis and improve the lives of families. 35-2222262 · FY2023 Leesburg, VA $2.3M $2.1M $2.4M 80% 15% 11 501(c)(3)
Collaborative Trajectory Analysis Project To advance understanding of disease progression in duchenne muscular dystrophy by fostering collaboration… 93-4558784 · FY2024 Cambridge, MA $1.9M $1.1M $952.4K 71% 11% 501(c)(3)
Inadcure Foundation INC Research towards possible treatment and cure for infantile neuroaxonal dystrophy 81-4763783 · FY2025 Fairfield, NJ $1.6M $660.2K $1.5M 90% 3% 501(c)(3)
Foundation to Eradicate Duchenne INC The organization's mission is to provide research grants to fund aggressive research into treatments for… 71-0874241 · FY2024 Alexandria, VA $1.1M $827.9K $1.5M 79% 12% 501(c)(3)
Cure Lbsl Provide funding to rare disease research & support affected families 46-2829156 · FY2024 Arlington, VA $1.1M $845.2K $955.6K 100% 0% 1 501(c)(3)
A Foundation Building Strength INC To find treatments for nemaline myopathy. 26-1761329 · FY2024 Palo Alto, CA $1.0M $1.2M $3.4M 90% 7% 501(c)(3)
Choroideremia Research Foundation INC To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a… 04-3511754 · FY2024 Springfield, MA $964.8K $819.1K $956.7K 80% 11% 8 501(c)(3)
Friends of Fsh Research FRIENDS of FSH RESEARCH a 501c3 organization is working to impact the lives of those affected by FSH muscular… 86-1108537 · FY2024 Kirkland, WA $864.0K $1.3M $450.5K 99% 1% 501(c)(3)
Als Cure Project INC This year the ALS Cure Project in collabortion with Canadian and US partners continued to fund the multimodal… 84-3289802 · FY2024 Pleasanton, CA $860.4K $219.1K $484.6K 97% 2% 501(c)(3)
Tyler's Hope for Dystonia Cure INC The organization was established to advance research for a CURE, discover effective treatments, and to… 20-3733312 · FY2024 Alachua, FL $746.6K $640.9K $446.4K 93% 0% 2 501(c)(3)
Cure Cmd INC Cure CMD's mission is to bring research treatments and in the future a cure for Congenital Muscular… 26-2640975 · FY2024 Lakewood, CA $677.2K $442.5K $508.5K 68% 12% 5 501(c)(3)
Muscular Dystrophy Family Foundation INC We assist persons with neuromuscular diseases, including MUSCULAR DYSTROPHY. Each of the past 7 years, we… 35-1040153 · FY2024 Carmel, IN $635.1K $442.3K $1.0M 69% 12% 3 501(c)(3)
Charleys Fund INC To accelerate the development of life-saving treatments for duchenne muscular dystrophy "dmd" 20-2014968 · FY2024 Gt Barrington, MA $628.5K $492.0K $1.1M 92% 2% 3 501(c)(3)
Little Hercules Foundation INC LITTLE HERCULES FOUNDATION works to improve the lives of those diagnosed with and families facing duchenne… 46-1427334 · FY2024 Dublin, OH $612.6K $620.6K $26.4K 75% 4% 5 501(c)(3)
Kindness Over Muscular Dystrophy INC The mission of the organization is to provide charitable giving to support MUSCULAR DYSTROPHY research as… 84-2603015 · FY2024 Ridgefield, CT $508.9K $401.9K $334.4K 92% 6% 501(c)(3)
Jb's Keys to Dmd INC Jbs KEYS is dedicated to increasing awareness of duchenne muscular dystrophy (DMD) while appropriating funds… 27-1060320 · FY2024 Dover, MA $415.9K $339.4K $747.7K 70% 9% 1 501(c)(3)
Jar of Hope To conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and… 46-4134019 · FY2024 Manalapan, NJ $310.5K $423.1K $352.0K 83% 0% 2 501(c)(3)
Will Hardy Foundation This charitable corporation is organized and shall be operated exclusively for charitable, scientific and… 93-3881844 · FY2024 Henrico, VA $290.0K $2.1K $287.8K 100% 0% 501(c)(3)
Walking Strong INC WALKING STRONG helps duchenne families with their over-bearing medical needs that are most often not covered… 47-1648097 · FY2024 West Hills, CA $279.2K $229.0K $425.9K 80% 11% 1 501(c)(3)
Tall Cedars Foundation Raise money and awareness for muscular dystrophy assoc 23-2129677 · FY2024 Harrisburg, PA $267.1K $158.4K $2.6M 62% 7% 501(c)(3)
Michael's Cause INC To promote awareness of the disease duchenne muscular distrophy and to provide funds for additional research… 45-2808761 · FY2024 Staten Island, NY $257.6K $248.9K $876.6K 71% 13% 501(c)(3)
Finns Friends To enhance the quality of life for the families affected by duchenne muscular dystrophy. 85-0509538 · FY2024 Longview, TX $233.1K $207.9K $178.9K 78% 1% 501(c)(3)
Foundation to Fight H-Abc The Foundation will support organizations that are researching a cure for H-ABC Hypomyelenation with Atrophy… 81-0950905 · FY2024 Rockville, MD $206.3K $99.3K $501.0K 68% 29% 501(c)(3)
Fishing for MD Foundation INC To utilize fundraising activities, offshore FISHING sponsorships and tournament winnings to directly… 81-3450854 · FY2024 Dayton, MD $184.8K $260.5K $450.7K 82% 0% 3 501(c)(3)
Ryan's Quest INC The mission of RYAN'S QUEST is to increase awareness of duchenne muscular dystrophy with the purpose of… 26-1890529 · FY2024 Hamilton, NJ $161.0K $83.8K $1.5M 90% 0% 501(c)(3)
Connell Family Foundation INC Receive, administer & expend funds for charitable & educational purposes & activities designed to support… 92-1029074 · FY2024 Kansas City, MO $102.7K $65.0K $92.1K 100% 0% 501(c)(3)
Spinal Muscular Atrophy Research Team Various activities in order to raise awareness and funds to support RESEARCH and a cure for SPINAL MUSCULAR… 32-0284955 · FY2024 Lackawanna, NY $83.0K $11.1K $91.2K 11% 0% 501(c)(3)
Jordan Hays Foundation The foundation's mission is to organize fund raising activites to provide funds for research to find a cure… 27-2874778 · FY2024 Wentzville, MO $82.3K $13.1K 501(c)(3)
Zack Heger Foundation INC The Zack Heger Foundation is a 501c3 charitable foundation started in honor of our son Zack who was diagnosed… 56-2656657 · FY2024 Norwell, MA $68.9K $446.8K 501(c)(3)
The Neuromuscular Disease Foundation To promote and fund research for genetic neuromuscular disorders and diseases. Additionally, the foundation… 06-1789643 · FY2024 Beverly Hills, CA $65.4K $352.4K $660.3K 90% 2% 4 501(c)(3)
Hunters Hope for Duchenne and Degs1 Leukodystrophy INC 84-4970811 · FY2021 Hickman, NE $60.8K $0 501(c)(3)
Heal Dmd To ignite a movement of compassion, hope and love that will defeat Duchenne Muscular Dystrophy DMD. 92-2757865 · FY2025 Scottsdale, AZ $56.3K $5.0K $202.8K 0% 8% 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org
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