Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jan 2004.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
72 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
2 people listed on the 990; $79K paid to officers and key staff.
Kristine Shaughnessy’s $50K as Executive Director is at the 88th percentile of top reported officer pay among 153 <$100K diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|---|
| Kristine Shaughnessy | $50,160 | $79,040 | $82,080 | $79,040 | $79,040 |
| Victoria Miller | — | — | — | — | $2,348 |
| Catherine Howard | — | — | $1,250 | $2,250 | $1,287 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Trisomy 18 Support INC executive salaries →On this list? Claim this org
Something off? Claim to add context
Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Fund research and support families affected by Trisomy 18 diagnoses.
Questions for Trisomy 18 Support INC
Your first name shows with your question. Trisomy 18 Support INC answers here, for everyone.
Know this org? Add your story
Education and Support Programs
Trisomy 18's nationally-recognized program supports and educates both patient families and medical providers who treat families and children with trisomy 18 though direct service calls to support program staff, workshops, public presentations, educational materials and technology enabled peer support PROGRAMS.THE research advocacy and…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $105K | $61K |
| Land, buildings, equipmentLn 10c | $811 | $0 |
| Total assetsLn 16 | $113K | $61K |
| LiabilitiesLn 26 | $5K | $5K |
| Net assetsLn 32 | $108K | $56K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $85K | $63K | $4K | $18K |
| Payroll taxesLn 10 | $7K | $5K | $277 | $1K |
| Accounting feesLn 11c | $2K | $2K | ||
| Other fees for servicesLn 11g | $39K | $29K | $4K | $7K |
| TravelLn 17 | $808 | $808 | ||
| Depreciation, depletion and amortizationLn 22 | $811 | $811 | ||
| InsuranceLn 23 | $725 | $725 | ||
| Other expenses (24a–d)Ln 24 | $5K | $3K | $2K | |
| All other expensesLn 24e | $327 | $170 | $157 | |
| Total functional expensesLn 25 | $141K | $102K | $13K | $26K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $90K | $85K | $5K | $61K | 990 PDF |
| FY2024 Viewing | $89K | $141K | −$52K | $56K | 990 PDF |
| FY2023 | $133K | $148K | −$15K | $108K | 990 PDF |
| FY2022 | $196K | $134K | $62K | $122K | 990 PDF |
| FY2021 | $216K | $119K | $97K | $61K | 990 PDF |
More to add? Claim this org
Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $89,168 revenue, 12 lines filed
Part VI · Governance 5 of 8 board members independent, 5 to look at
Part VIII · Statement of revenue $89,168 across 3 lines filed
Part IX · Statement of functional expenses $140,721 across 9 lines filed
Part X · Balance sheet $60,553 assets, 9 lines filed
Part XI · Reconciliation of net assets $55,953 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
Similar organizations you could support · Compare with another nonprofit
Names, privacy, and removal requests More
The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.
Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.
We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.
Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.
If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.
Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.
If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.
Your org? Add context
Made it to the end? Claim this org