Lymedisease Org
Advocates nationwide for stronger patient voices, research, and legislative change to improve Lyme disease treatment. For fiscal year 2024 it reported $569K in revenue, $682K in expenses, and $1.6M in net assets.Pt I
- Type
- Public charity (501(c)(3)) · Nonprofit
- Location
- San Diego, CA
- Website
- www.lymedisease.org
- Filings
- 5 on file (2020–2024)
More identity details & actions ⌄
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Summary of the Filing
Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Lorraine Johnson | $112,857 | $107,588 | $92,934 | $92,157 | $98,040 |
| Carolyn Degnan | — | — | $89,330 | — | — |
| Dorothy Kupcha Leland | — | — | $23,000 | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Where the work happens
Education
We are the largest and most trusted communications network for lyme disease in the nation. The organization raises the level of public awareness of lyme disease through our published blogs and the digital lyme times as well as the internet, and social media.
Research
We conduct and publish research through one of the largest studies of lyme disease through our patient registry and research platform,mylymedata, with over 13,000 patients enrolled to date.
Advocacy
We strive for patient involvement at all levels of decision making. We represent hundreds of thousands of patientsand provide them with the tools essential to empowerment. For over 10 years, we have been involvedin patient-led big data research efforts, conducting large scale patient surveys that engage thousands of patients and are…
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 84% | — | — |
| Overhead ratio | 14% | — | — |
| Fundraising cost ratio | 4% | — | — |
| Revenue growth | 13% | — | — |
| Investment management fee ratio | 0.6% | — | — |
| Accounting fee ratio | 5% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
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Filings & Schedule Manifest
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Sources
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