Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Dec 1997.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
56 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
10 people listed on the 990.
Lauren Isbell’s $64K as CEO is at the 48th percentile of top reported officer pay among 1980 $100K–1M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2023 | FY2022 | FY2021 | FY2020 | FY2019 |
|---|---|---|---|---|---|
| Lauren Isbell | $63,500 | $58,500 | $58,500 | $49,000 | $28,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Funds research, raises awareness, and supports those affected by congenital melanocytic nevi disorders.
Questions for Nevus Outreach INC
Your first name shows with your question. Nevus Outreach INC answers here, for everyone.
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On a 24/7 basis, nevus outreach supports people affected by giant congenital nevi by providing answers to their questions and connecting them with others who can help them using printed materials, in-person meetings throughout the united states, and WWW.NEVUS.ORG, our website devoted to online support for people affected by nevi
Nevus outreach funds basic science and promising therapeutics that are designed to find a cure for giant congenital nevi and neurocutaneous melanocytosis
Nevus outreach offers the most comprehensive, up-to-date, professionally- vetted, multi-lingual, lay-person appropriate information about congenital nevi available from any single source, and distributes this information to families, health care providers and the general public using printed materials, WWW.NEVUS.ORG, the nevus outreach…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $100K | $416K |
| Total assetsLn 16 | $123K | $449K |
| LiabilitiesLn 26 | $2K | $8K |
| Net assetsLn 32 | $122K | $442K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Other salaries and wagesLn 7 | $142K | $103K | $40K | |
| Payroll taxesLn 10 | $11K | $10K | $1K | |
| Accounting feesLn 11c | $19K | $19K | ||
| Other fees for servicesLn 11g | $32K | $3K | $29K | |
| Office expensesLn 13 | $41K | $12K | $29K | |
| Information technologyLn 14 | $28K | $14K | $15K | |
| TravelLn 17 | $17K | $13K | $4K | |
| Conferences, conventions and meetingsLn 19 | $34K | $12K | $21K | |
| InsuranceLn 23 | $2K | $2K | ||
| Other expenses (24a–d)Ln 24 | $120K | $98K | $23K | |
| All other expensesLn 24e | $25K | $151 | $8K | $16K |
| Total functional expensesLn 25 | $471K | $264K | $191K | $16K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $789K | $471K | $318K | $442K | 990 PDF |
| FY2024 | $470K | $470K | $361 | $122K | 990 PDF |
| FY2023 | $213K | $253K | −$39K | $125K | 990 PDF |
| FY2022 | $281K | $344K | −$63K | $162K | 990 PDF |
| FY2021 | $182K | $227K | 990 PDF | ||
| FY2020 | $122K | $209K | 990 PDF | ||
| FY2019 | $188K | $186K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $788,950 revenue, 12 lines filed
Part VI · Governance 9 of 9 board members independent, 4 to look at
Part VIII · Statement of revenue $788,950 across 6 lines filed
Part IX · Statement of functional expenses $471,444 across 11 lines filed
Part X · Balance sheet $449,427 assets, 9 lines filed
Part XI · Reconciliation of net assets $441,564 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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