Is it real?
No. The IRS revoked its tax exemption. Latest filing on record: FY2022. IRS ruling in Sep 1995.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
91 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
6 people listed on the 990; $82K paid to officers and key staff.
Jason Miller’s $20K as Research Team is at the 12th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2022 | FY2021 | FY2020 |
|---|---|---|---|
| Dawn M Ireland | $17,496 | $32,038 | $34,654 |
| Tracy Meats | $8,400 | $24,000 | $31,800 |
| Jason Miller | $20,234 | $15,200 | — |
| Laura Tomczyk | — | $15,050 | $15,750 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Combats congenital diaphragmatic hernia by raising awareness, funding research, and supporting families.
Questions for Cdh International
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Cdh Support Services
CDH hope totebag care packages for new born patients, support forums for families, local gatherings for families, informational packages for grieving families, information for parents of older survivors, on-call support services, financial assistance grants.
Cdh Research Projects
Annual research and support conferences for families of children born with CDH, fees and attendance costs for medial conferences, grants to CDH research facilities, cost to run member research database and participate in research collaborations with centers and hospitals.
Cdh Awareness Program
Posters, fliers, brochures, ribbons, wings, bracelets for annual CDH awareness day on april 19TH, wings and materials for the save the cherubs campaign, web site, social media, graphics and infographics, ribons, and awareness bracelets for new and expectant CDH parents, printing for brochures and fliers for events, awareness campaigns…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $19K | $48K |
| Total assetsLn 16 | $23K | $64K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $23K | $64K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $82K | $74K | $7K | $1K |
| Payroll taxesLn 10 | $6K | $6K | $899 | $64 |
| Legal feesLn 11b | $3K | $3K | ||
| Accounting feesLn 11c | $10K | $6K | $3K | |
| Advertising and promotionLn 12 | $9K | $9K | ||
| Office expensesLn 13 | $26K | $25K | $536 | |
| Information technologyLn 14 | $10K | $10K | ||
| OccupancyLn 16 | $17K | $14K | $2K | |
| Conferences, conventions and meetingsLn 19 | $22K | $22K | ||
| InsuranceLn 23 | $3K | $1K | $1K | |
| Other expenses (24a–d)Ln 24 | $5K | $2K | $3K | |
| All other expensesLn 24e | $31K | $31K | ||
| Total functional expensesLn 25 | $223K | $204K | $18K | $1K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2022 Latest | $214K | $222K | −$8K | $35K | 990 PDF |
| FY2021 | $266K | $280K | −$14K | $44K | 990 PDF |
| FY2020 Viewing | $259K | $223K | $36K | $64K | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $258,790 revenue, 12 lines filed
Part VI · Governance 0 of 6 board members independent, 5 to look at
Part VIII · Statement of revenue $258,790 across 4 lines filed
Part IX · Statement of functional expenses $223,020 across 12 lines filed
Part X · Balance sheet $64,172 assets, 7 lines filed
Part XI · Reconciliation of net assets $64,172 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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