Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Sep 2005.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
84 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
9 people listed on the 990; $90K paid to officers and key staff.
Kira Mann’s $112K as CEO is at the 84th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Kira Mann | $111,765 | $112,856 | $99,988 | $101,294 | $90,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports, educates, and advocates for those with mitochondrial disease, improving lives and raising awareness.
Questions for Mitoaction INC
Your first name shows with your question. Mitoaction INC answers here, for everyone.
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Outreach and education programs which improve the patient or family's understanding of mitochondrial disease and whcih educate both the general and the medical community, improve the patient's quality of life and empower the patient / parent to be an advocate in their case.
Patient & Family Suppport
Mitoaction strives to offer support & practical resources at no cost to every individual or caregiver affeted by mitochondrial disease. These initiatives help patients and families deal with diagnosis of mitochondrial disease today and offer assistance in navigating the medical system, school, community or workplace.
Mitoaction has created special partnerships with three us camps as part of our mission to make summer camp a possibility for every child who suffers from mitochondrial disease. Each of these camps is part of the nationally accredited seriousfun camp network, and offers a safe, medically supervised program that allows mito kids to be free…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $323K | $873K |
| Land, buildings, equipmentLn 10c | $40K | $19K |
| Total assetsLn 16 | $386K | $895K |
| LiabilitiesLn 26 | $13K | $15K |
| Net assetsLn 32 | $373K | $880K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Other salaries and wagesLn 7 | $167K | $132K | $18K | $17K |
| Payroll taxesLn 10 | $12K | $9K | $1K | $1K |
| Other fees for servicesLn 11g | $26K | $18K | $8K | |
| Advertising and promotionLn 12 | $11K | $11K | $136 | |
| Conferences, conventions and meetingsLn 19 | −$2K | −$2K | $262 | |
| Depreciation, depletion and amortizationLn 22 | $21K | $21K | ||
| InsuranceLn 23 | $2K | $2K | ||
| Other expenses (24a–d)Ln 24 | $126K | $125K | $983 | |
| All other expensesLn 24e | $13K | $3K | $6K | $4K |
| Total functional expensesLn 25 | $376K | $317K | $36K | $22K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $417K | $503K | −$87K | $1.0M | 990 PDF |
| FY2023 | $754K | $521K | $233K | $1.1M | 990 PDF |
| FY2022 | $415K | $479K | −$64K | $784K | 990 PDF |
| FY2021 | $398K | $403K | −$5K | $875K | 990 PDF |
| FY2020 Viewing | $882K | $376K | $507K | $880K | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $882,314 revenue, 12 lines filed
Part VI · Governance 8 of 9 board members independent, no flags
Part VIII · Statement of revenue $882,314 across 7 lines filed
Part IX · Statement of functional expenses $375,547 across 9 lines filed
Part X · Balance sheet $894,681 assets, 11 lines filed
Part XI · Reconciliation of net assets $879,976 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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