Als Association Dcmdva Chapter FY2021 filing

Rockville, MDUnknown exempt organization EIN 52-1749047Revenue $3.4M in FY2021

On file with the IRSwebdc.alsa.org30 W Gude Drive 150 · Rockville, MD

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We improve the lives of people living with Als by providing a wide range of free services. We also support worldwide research to find a cure for Als and sponsor educational and advocacy programs to benefit the Als community.

80¢ of each $1 spent went to programs.
$259K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Programs: Part IX · Pay: Part VII

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FY2021 · Form 990Independent: from IRS data, not the org
Download 990
Latest return
FY2023
latest Form 990
Fine: the latest return is for FY2023, 3 tax years back; within 3 tax years.
IRS e-file · Filing history
Surplus or deficit
1 of 3
filings with a surplus
Average surplus $176K a year · 8% of revenue · last 3 filings
Worth a look: a surplus in 1 of the last 3 filings.
Pt I · Ln 19 · 3 filings
Spent on programs
80%
of spending
Looks good: 80% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$259K
to officers and key staff · 10% of spending
Looks good: pay to officers and key staff is 10% of spending; 15% or less.
Pt VII · Sec A
9 mo
of spending, in cash
Looks good: 8.9 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
6
named funders · $211K
Looks good: 6 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$318K
13% of total assets
Looks good: liabilities are 13% of assets; 50% or less.
Pt X · Ln 26
Independent board members
19
of 19 voting members
Looks good: 19 of 19 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$3.4M
Spent
$2.6M
To programs
80%
Net assets
$2.1M
By yearFY2021–FY2023
Revenue
$3.4M
FY2021
Tap a bar for its year
Revenue by fiscal year
FY2021$3.4M
FY2022$2.9M
FY2023$116K
FY2023$41K
Expenses
$2.6M
FY2021
Tap a bar for its year
Expenses by fiscal year
FY2021$2.6M
FY2022$3.1M
FY2023$118K
FY2023Not on file
Net assets
$2.1M
FY2021
Tap a bar for its year
Net assets by fiscal year
FY2021$2.1M
FY2022$1.9M
FY2023$2.1M
FY2023$0

From the FY2021 Form 990 (year ending January 2021) · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2023.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

80 cents of each dollar spent went to programs.

Program services 80% · $2.1M Management & general 6% · $166K Fundraising 14% · $372K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

21 people listed on the 990; $259K paid to officers and key staff.

Part VII, Section A · reportable compensation · most recent filed roster (FY2020); the FY2021 filing did not itemize Part VII
Executive Director
$157,578Pt VII · Sec A
Dir. of Philanthropy
$101,250Pt VII · Sec A
Secretary
$0Pt VII · Sec A
Treasurer
$0Pt VII · Sec A
Assistant Treasurer
$0Pt VII · Sec A
Past President
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A

Compensation history total reportable pay by year · 2 named individuals · Part VII

NameFY2022FY2021
Lynn Aaronson$168,955$157,578
Jonathan M Strausberg$108,901$101,250

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Als Association Dcmdva Chapter executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Providing free services, funding research, and advocating for a cure improves lives for people with ALS.

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Provided by the organization

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3 programs · $2.1M · in their own filed words · FY2020
01

Research

The chapter supports the als association's global als research program to find treatments and a cure for this fatal disease. The average life expectancy of someone with als is only 2-5 years from diagnosis. Also, for unknown reasons military veterans are nearly twice as likely to be diagnosed with als.

$1.7Mprogram expense
02

Care Services

The chapter works to improve the quality of life for people living with als by providing a host of free services. These services include home visits, that were eliminated in 2020 as a result of the corona virus, and substituted by telehealth communication with coordinators, who provide case management and assistance with benefit…

$202Kprogram expense
03

Public Education & Awareness

Educational symposiums are offered throughout the year in different geographical locations within the chapter territory. These programs are designed for patients and family members as well as healthcare professionals on a wide range of topics which impact als patients.

$186Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 6 funders →
Grants paid · 14 grants · $387K · 2020–2021
Johns Hopkins UniversityMD · FY2021$120,000
Zephyrx LLCFY2021$64,111
Unitemized GrantFY2021$5,000
Johns Hopkins UniversityMD · FY2020$20,000
Sentara Medical GroupVA · FY2020$10,000
Unitemized GrantFY2020$2,500

By the numbers

The FY2021 990, line by line.

1The main four
Money inPt VIII
$3.4M
Ln 12
Gifts and grantsLn 1h$3.4M
Investment incomeLn 3$5K
Money outPt IX
$2.6M
Ln 25
Programscol B$2.1M
Managementcol C$166K
Fundraisingcol D$372K
Owns and owesPt X
$2.1M
net assets · Ln 32
Cash and savingsLn 1–2$1.9M
Total assetsLn 16$2.5M
LiabilitiesLn 26$318K
PeoplePt VI, VII
21
listed · VII A
PaidVII A2
Voting boardVI 1a19
IndependentVI 1b19
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$3.4M
Government grantsLn 1e$627K
Noncash giftsLn 1g$103K
Fundraising eventsLn 1c$930K
Investment incomeLn 3$5K
Gains on assetsLn 7$87
Total revenueLn 12$3.4M
Assets in detailPt X, end of year
CashLn 1$522K
SavingsLn 2$1.4M
Cash and savings togetherLn 1–2$1.9M
Land, buildings, equipmentLn 10c$38K
Other assetsLn 15$14K
Total assetsLn 16$2.5M
LiabilitiesLn 26$318K
Net assetsLn 32$2.1M
OperationsPt I, VI
EmployeesI 525
VolunteersI 6350
Fiscal year endsHeaderJanuary
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY21End FY21
Cash and savingsLn 1–2$1.5M$1.9M
Land, buildings, equipmentLn 10c$59K$38K
Total assetsLn 16$1.7M$2.5M
LiabilitiesLn 26$324K$318K
Net assetsLn 32$1.4M$2.1M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$122K$122K
Grants to domestic individualsLn 2$193K$193K
Pay of current officers, directors and key staffLn 5$173K$132K$10K$31K
Other salaries and wagesLn 7$1.1M$845K$60K$198K
Pension plan contributionsLn 8$21K$15K$3K$3K
Other employee benefitsLn 9$106K$79K$11K$16K
Payroll taxesLn 10$91K$70K$5K$17K
Accounting feesLn 11c$60K$60K
Investment management feesLn 11f$102$102
Other fees for servicesLn 11g$79K$44K$2K$33K
Advertising and promotionLn 12$3K$2K$138$648
Office expensesLn 13$74K$53K$112$20K
Information technologyLn 14$37K$26K$2K$9K
OccupancyLn 16$150K$104K$9K$37K
TravelLn 17$8K$6K$424$2K
Conferences, conventions and meetingsLn 19$2K$1K$97$449
InterestLn 20$264$185$14$65
Payments to affiliatesLn 21$262K$262K
Depreciation, depletion and amortizationLn 22$21K$15K$1K$4K
InsuranceLn 23$6K$4K$342$2K
Other expenses (24a–d)Ln 24$114K$114K
Total functional expensesLn 25$2.6M$2.1M$166K$372K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2023 $116K$118K−$2K$2.1M 990 PDF
FY2022 $2.9M$3.1M−$226K$1.9M 990 PDF
FY2021 Viewing $3.4M$2.6M$756K$2.1M 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants M · Noncash J · Pay O · Explanations
See the full FY2021 990 (6 parts)
Part I · Summary $3,381,394 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $2,467,047$3,375,949
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $11,807$5,445
I-11 Other revenuePrior year $0$0
I-12 Total revenuePrior year $2,478,854$3,381,394
I-13 Grants and similar amounts paidPrior year $321,938$315,899
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $1,503,411$1,494,845
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $920,096$814,526
I-18 Total expensesPrior year $2,745,445$2,625,270
I-19 Revenue less expensesPrior year −$266,591$756,124
Part VI · Governance 19 of 19 board members independent, 1 to look at
VI-1a Voting members of the governing body19
VI-1b Independent voting members19
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $3,381,394 across 9 lines filed
VIII-1c Fundraising events$930,312
VIII-1e Government grants$626,865
VIII-1f All other contributions, gifts and grants$1,818,772
VIII-1g Noncash contributions (included above)$103,000
VIII-1h Total contributions, gifts and grants$3,375,949
VIII-3 Investment incomeExcluded from tax $5,358$5,358
VIII-7 Net gain or loss on sales of assetsExcluded from tax $87$87
VIII-8 Net income from fundraising events$0
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $5,445$3,381,394
Part IX · Statement of functional expenses $2,625,270 across 21 lines filed
IX-1 Grants to domestic organizationsPrograms $122,500$122,500
IX-2 Grants to domestic individualsPrograms $193,399$193,399
IX-5 Pay of current officers, directors and key staffPrograms $132,211 · Management $10,229 · Fundraising $30,691$173,131
IX-7 Other salaries and wagesPrograms $844,828 · Management $60,445 · Fundraising $198,271$1,103,544
IX-8 Pension plan contributionsPrograms $14,965 · Management $3,498 · Fundraising $2,917$21,380
IX-9 Other employee benefitsPrograms $78,664 · Management $11,165 · Fundraising $15,773$105,602
IX-10 Payroll taxesPrograms $69,791 · Management $4,507 · Fundraising $16,890$91,188
IX-11c Accounting feesManagement $60,390$60,390
IX-11f Investment management feesManagement $102$102
IX-11g Other fees for servicesPrograms $43,855 · Management $2,199 · Fundraising $32,549$78,603
IX-12 Advertising and promotionPrograms $1,839 · Management $138 · Fundraising $648$2,625
IX-13 Office expensesPrograms $53,076 · Management $112 · Fundraising $20,468$73,656
IX-14 Information technologyPrograms $25,567 · Management $1,948 · Fundraising $9,009$36,524
IX-16 OccupancyPrograms $103,993 · Management $9,155 · Fundraising $36,645$149,793
IX-17 TravelPrograms $5,567 · Management $424 · Fundraising $1,962$7,953
IX-19 Conferences, conventions and meetingsPrograms $1,275 · Management $97 · Fundraising $449$1,821
IX-20 InterestPrograms $185 · Management $14 · Fundraising $65$264
IX-21 Payments to affiliatesPrograms $261,957$261,957
IX-22 Depreciation, depletion and amortizationPrograms $15,441 · Management $1,029 · Fundraising $4,118$20,588
IX-23 InsurancePrograms $4,495 · Management $342 · Fundraising $1,584$6,421
IX-24 Other expenses (24a–d)Programs $113,829$113,829
IX-25 Total functional expensesPrograms $2,087,437 · Management $165,794 · Fundraising $372,039$2,625,270
Part X · Balance sheet $2,467,584 assets, 14 lines filed
X-1 Cash, non-interest-bearingStart of year $375,766$522,342
X-2 Savings and temporary cash investmentsStart of year $1,146,972$1,416,056
X-3 Pledges and grants receivableStart of year $68,825$416,253
X-9 Prepaid expenses and deferred chargesStart of year $42,139$60,199
X-10c Land, buildings and equipment, netStart of year $59,018$38,430
X-15 Other assetsStart of year $14,304$14,304
X-16 Total assetsStart of year $1,707,024$2,467,584
X-17 Accounts payable and accrued expensesStart of year $195,311$208,193
X-25 Other liabilitiesStart of year $121,087$109,730
X-26 Total liabilitiesStart of year $323,698$317,923
X-27 Net assets without donor restrictionsStart of year $1,085,984$1,499,459
X-28 Net assets with donor restrictionsStart of year $297,342$650,202
X-32 Total net assets or fund balancesStart of year $1,383,326$2,149,661
X-33 Total liabilities and net assetsStart of year $1,707,024$2,467,584
Part XI · Reconciliation of net assets $2,149,661 net assets at year end
XI-1 Total revenue$3,381,394
XI-2 Total expenses$2,625,270
XI-3 Revenue less expenses$756,124
XI-4 Net assets at start of year$1,383,326
XI-5 Net unrealized gains (losses) on investments$10,211
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$2,149,661

Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File

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