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Fighting for Kaiden Foundation INC

Tax-deductible

Linthicum, MD501(c)(3)Diseases & Disorders EIN 47-5391762Revenue $36K in FY2024Latest return filed Jul 2, 2025

On file with the IRSfightingforkaiden.orgPo Box 386, 21090-0386 · Linthicum, MDTax-exempt since Aug 2019Publicly supported charity — 170(b)(1)(A)(vi)

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The Fighting for Kaiden Foundation is a non-profit organization committed to enhancing the lives of those struggling with spinal muscular atrophy (sma). We strive to raise awareness of this disease on the local, regional and national levels. Our Foundation provides need-based financial support to affected families for equipment, travel, and in the future, life changing medications. We understand the value of awareness and peer support and organize support groups and information for sma affected families in our area.

501(c)(3) charity; gifts are tax-deductible.
Run by 15 volunteers.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · People: Part I, lines 5–6

Before you give

FY2024 · Form 990-EZIndependent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990-EZ
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
0 of 4
filings with a surplus
Average deficit $17K a year · 14% of revenue · last 4 filings
Concern: a surplus in 0 of the last 4 filings.
Pt I · Ln 19 · 4 filings
Named funders
1
named funder · $13K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$71K
total owed
No data yet: the filing does not give total assets.
Pt X · Ln 26
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$36K
-9% vs prior year
Net assets
−$67K
By yearFY2019–FY2024
Revenue
$36K
FY2024▼ -9%
Tap a bar for its year
Revenue by fiscal year
FY2019$80K
FY2020$143K
FY2021$108K
FY2022$131K
FY2023$40K
FY2024$36K
Expenses
—
FY2024
Tap a bar for its year
Expenses by fiscal year
FY2019$85K
FY2020$144K
FY2021$149K
FY2022$150K
FY2023Not on file
FY2024Not on file
Net assets
−$67K
FY2024▼ -17%
Tap a bar for its year
Net assets by fiscal year
FY2019$1K
FY2020$589
FY2021−$41K
FY2022−$60K
FY2023−$57K
FY2024−$67K

From the FY2024 Form 990 · see the original

Give Claim

Is it real?

Yes. Exemption reinstated (2018-05-15). Per the IRS revocation list. Latest filing on record: FY2024. IRS ruling in Aug 2019.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Who runs it and what they're paid

4 people listed on the 990-EZ.

Part VII, Section A · reportable compensation
Kristina Defazio
Executive Di
$0Pt VII · Sec A
George Ulmer
Vice Preside
$0Pt VII · Sec A
$0Pt VII · Sec A
Kelly Eakin
President
$0Pt VII · Sec A
See Fighting for Kaiden Foundation INC executive salaries →

Programs and updates

Provides financial aid and support for families affected by Spinal Muscular Atrophy.

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3 programs · $118K · in their own filed words · FY2022
01

Provide medical equipment and supplies to assist families with the costs not covered by medical insurance.

$94Kprogram expense
02

Established a partnership with multiple pharmaceutical companies to further awareness to the sma community regarding upcoming drug trials and fda approvals

$19Kprogram expense
03

Created a national conference scholarship program for newly diagnosed families so they can gain valuable information and support.

$5Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2022
Network for Good INCFY2022$13K
Total grants receivedfrom 1 funder$13K
Grants paid · 3 grants · $188K · 2021–2022
Unitemized GrantFY2022$88,168
Unitemized GrantFY2022$2,017
Unitemized GrantFY2021$97,604

By the numbers

The FY2024 990-EZ, line by line.

Download 990
from philanthropy.org
1The main four
Money in
$36K
Other income$36K
Owns and owes
−$67K
net assets
Liabilities$71K
People
4
listed
Paid0
2In more detail
Revenue in detail
Other income$36K
Total revenue$36K
Assets in detailEnd of year
Liabilities$71K
Net assets−$67K
Operations
Employees0
Volunteers15
Fiscal year endsDecember

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest ViewingFiled with the IRS Jul 2, 2025 $36K−$67K 990 PDF
FY2023Filed with the IRS Jul 2, 2025 $40K−$57K 990 PDF
FY2022Filed with the IRS Mar 17, 2023 $131K$150K−$19K−$60K 990 PDF
FY2021Filed with the IRS Aug 26, 2022 $108K$149K−$41K−$41K 990 PDF
FY2020Filed with the IRS Aug 25, 2022 $143K$144K−$882$589 990 PDF
FY2019Filed with the IRS Apr 4, 2021 $80K$85K−$5K$1K 990 PDF

Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons A · Public support

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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