Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Oct 2015.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
94 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
7 people listed on the 990; $9K paid to officers and key staff.
Joyce Trost’s $175K as VP of Resear is at the 75th percentile of top reported officer pay among 3395 $1–10M education nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2024 | FY2023 |
|---|---|---|
| Joyce Trost | $174,927 | — |
| Michele Shusterman | — | $8,608 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Unites diverse voices to advance cerebral palsy research and improve healthcare.
Questions for Cp Now
Your first name shows with your question. Cp Now answers here, for everyone.
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Research
CPRN focuses on research that develops evidence-based practices that improve lives or to develop evidence to guide decision making, treatments and programs for the best health outcomes. Our research programming is developed in partnership with our engaged community and clinicians, researchers and representatives from national agencies…
Education
CPRN develops educational resources for the entire CP community to inform healthcare decisions. This includes individuals with CP, their families, clinicians, researchers, and advocates. These resources are intended to assist the patient community in understanding the most up-to- date information about CP and pertinent health and…
Quality Improvement
The quality improvement initiatives lead sites through a standard methodology to improve outcomes targeted by specific qi initiatives. CPRN currently runs four of these in the network. Qi programs make targeted and measurable improvements in systems of healthcare in 3-6 months by standardizing steps.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $336K | $479K |
| Total assetsLn 16 | $339K | $576K |
| LiabilitiesLn 26 | $68K | $108K |
| Net assetsLn 32 | $271K | $468K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $9K | $9K | ||
| Other salaries and wagesLn 7 | $64K | $64K | ||
| Other employee benefitsLn 9 | $4K | $4K | ||
| Payroll taxesLn 10 | $5K | $5K | ||
| Legal feesLn 11b | $13K | $12K | $2K | |
| Accounting feesLn 11c | $11K | $11K | ||
| Other fees for servicesLn 11g | $367K | $357K | $8K | $2K |
| Advertising and promotionLn 12 | $27K | $27K | ||
| Office expensesLn 13 | $12K | $7K | $4K | $31 |
| Information technologyLn 14 | $4K | $860 | $717 | $3K |
| Conferences, conventions and meetingsLn 19 | $27K | $26K | $653 | |
| InsuranceLn 23 | $501 | $501 | ||
| Other expenses (24a–d)Ln 24 | $4K | $1K | $3K | |
| Total functional expensesLn 25 | $548K | $513K | $30K | $5K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $1.1M | $919K | $136K | $603K | 990 PDF |
| FY2023 Viewing | $745K | $548K | $197K | $468K | 990 PDF |
| FY2022 | $499K | $309K | $190K | $271K | 990 PDF |
| FY2021 | $192K | $90K | 990 PDF | ||
| FY2020 | $59K | $63K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $744,946 revenue, 12 lines filed
Part VI · Governance 5 of 5 board members independent, 3 to look at
Part VIII · Statement of revenue $744,946 across 5 lines filed
Part IX · Statement of functional expenses $547,956 across 13 lines filed
Part X · Balance sheet $576,168 assets, 8 lines filed
Part XI · Reconciliation of net assets $467,767 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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