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Neuromuscular Study Group INC

Tax-deductible

Kansas City, KS501(c)(3)Medical Research EIN 47-4456205Revenue $589K in FY2024Latest return filed Jun 9, 2025

On file with the IRSKansas City, KSTax-exempt since Aug 2019Publicly supported charity — 170(b)(1)(A)(vi)

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To advance knowledge about the cause(s), pathogenesis, epidemiology, and clinical manifestations of muscle disease and related Neuromuscular disorders and to develop and implement strategies to examine promising therapeutic interventions.

Form 990 Part I, line 1, FY2024. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 47-4456205) · Dispute this line
501(c)(3) charity; gifts are tax-deductible.
93¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
The IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
The latest return is for FY2024, 2 tax years back.
IRS e-file · Filing history
Surplus or deficit
3 of 5
filings with a surplus
Average surplus $52K a year · 13% of revenue · last 5 filings
A surplus in 3 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
93%
of spending
93% of spending went to programs.
Pt IX · Ln 25 · col B
Cash reserves
11.0 mo
of spending, in cash
11.0 months of spending in cash.
Pt X · Ln 1–2 · Pt I · Ln 18
Liabilities
$0
0% of total assets
Liabilities are 0% of assets.
Pt X · Ln 26
Independent board members
6
of 6 voting members
6 of 6 voting members are independent.
Pt VI · Ln 1a–1b
In line with peersDifferent from peersFar from peersNo peer rangeNo data yetTap a box for the reason.
Revenue
$589K
+36% vs prior year
Spent
$519K
To programs
93%
Net assets
$531K
By yearFY2020–FY2024
Revenue
$589K
FY2024▲ +36%
Tap a bar for its year
Revenue by fiscal year
FY2020$284K
FY2021$428K
FY2022$279K
FY2023$434K
FY2024$589K
Expenses
$519K
FY2024▲ +12%
Tap a bar for its year
Expenses by fiscal year
FY2020$157K
FY2021$192K
FY2022$426K
FY2023$462K
FY2024$519K
Net assets
$531K
FY2024▲ +15%
Tap a bar for its year
Net assets by fiscal year
FY2020$400K
FY2021$636K
FY2022$489K
FY2023$461K
FY2024$531K

From the FY2024 Form 990 · figures checked against the IRS filing · see the original

Give Follow Claim

Is it real?

Yes. Exemption reinstated (2018-05-15). Per the IRS revocation list. Latest filing on record: FY2024. IRS ruling in Aug 2019.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

93 cents of each dollar spent went to programs.

Program services 93% · $485K Management & general 7% · $34K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

Something off? Claim to add context

Who runs it and what they're paid

12 people listed on the 990.

Part VII, Section A · reportable compensation
Amanda Guidon MD
Investigator Member
$0Pt VII · Sec A
Michael Hehir MD
Investigator Member
$0Pt VII · Sec A
John Vissing MD
Investigator Member
$0Pt VII · Sec A
Michaela Walker Mph Ccrp
Coordinator Member
$0Pt VII · Sec A
Michael McDermott PHD
Biostatistician
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Bhaskar Roy Mbb Mhs
Young Investigator Member
$0Pt VII · Sec A
See Neuromuscular Study Group INC executive salaries →

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Advance knowledge and develop therapies for muscle and neuromuscular diseases.

Questions for Neuromuscular Study Group INC

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1 program · $485K · in their own filed words · FY2024
01

Cooperative planning, implementation, analysis and reporting of controlled clinical trials and of other research for muscle and other neuromuscular diseases

Form 990 Part III, line 4, FY2024. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 47-4456205) · Dispute this line
$485Kprogram expense

By the numbers

The FY2024 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$589K
Ln 12
Fees for servicesLn 2g$581K
Investment incomeLn 3$8K
Money outPt IX
$519K
Ln 25
Programscol B$485K
Managementcol C$34K
Owns and owesPt X
$531K
net assets · Ln 32
Cash and savingsLn 1–2$476K
Total assetsLn 16$531K
LiabilitiesLn 26$0
PeoplePt VI, VII
12
listed · VII A
PaidVII A0
Voting boardVI 1a6
IndependentVI 1b6
2In more detail
Revenue in detailPt VIII
Fees for servicesLn 2g$581K
Investment incomeLn 3$8K
Total revenueLn 12$589K
Assets in detailPt X, end of year
CashLn 1$476K
Cash and savings togetherLn 1–2$476K
Prepaid expenses and deferred chargesLn 9$55K
Total assetsLn 16$531K
LiabilitiesLn 26$0
Net assetsLn 32$531K
OperationsPt I, VI
EmployeesI 50
VolunteersI 60
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$445K$476K
Total assetsLn 16$461K$531K
LiabilitiesLn 26$0$0
Net assetsLn 32$461K$531K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Management feesLn 11a$60K$60K
Legal feesLn 11b$693$693
Accounting feesLn 11c$820$820
Other fees for servicesLn 11g$10K$10K
Advertising and promotionLn 12$366$366
Office expensesLn 13$2K$2K
Information technologyLn 14$5K$4K$1K
OccupancyLn 16$3K$3K
TravelLn 17$45K$45K
Conferences, conventions and meetingsLn 19$278K$278K
InsuranceLn 23$3K$2K$354
Other expenses (24a–d)Ln 24$92K$78K$14K
All other expensesLn 24e$20K$15K$4K
Total functional expensesLn 25$519K$485K$34K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest ViewingFiled with the IRS Jun 9, 2025 $589K$519K$70K$531K 990 PDF
FY2023Filed with the IRS Jul 22, 2024 $434K$462K−$28K$461K 990 PDF
FY2022Filed with the IRS Jul 1, 2023 $279K$426K−$147K$489K 990 PDF
FY2021Filed with the IRS May 26, 2022 $428K$192K$236K$636K 990 PDF
FY2020Filed with the IRS May 17, 2021 $284K$157K$127K$400K 990 PDF

Schedules filed Part IV

A · Public support I · Grants O · Explanations
See the full FY2024 990
Part I · Summary $588,959 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $0$0
I-9 Program service revenuePrior year $428,105$580,823
I-10 Investment incomePrior year $611$8,136
I-11 Other revenuePrior year $5,300$0
I-12 Total revenuePrior year $434,016$588,959
I-13 Grants and similar amounts paidPrior year $0$0
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $2,900$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $459,162$519,092
I-18 Total expensesPrior year $462,062$519,092
I-19 Revenue less expensesPrior year −$28,046$69,867
Part VI · Governance 6 of 6 board members independent, 1 to look at
VI-1a Voting members of the governing body6
VI-1b Independent voting members6
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $588,959 across 3 lines filed
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $580,823$580,823
VIII-3 Investment incomeExcluded from tax $8,136$8,136
VIII-12 Total revenueRelated to mission $580,823 · Unrelated business $0 · Excluded from tax $8,136$588,959
Part IX · Statement of functional expenses $519,092 across 13 lines filed
IX-11a Management feesPrograms $59,900$59,900
IX-11b Legal feesManagement $693$693
IX-11c Accounting feesManagement $820$820
IX-11g Other fees for servicesManagement $9,751$9,751
IX-12 Advertising and promotionManagement $366$366
IX-13 Office expensesManagement $2,437$2,437
IX-14 Information technologyPrograms $3,623 · Management $1,484$5,107
IX-16 OccupancyPrograms $3,083$3,083
IX-17 TravelPrograms $44,541$44,541
IX-19 Conferences, conventions and meetingsPrograms $277,851$277,851
IX-23 InsurancePrograms $2,300 · Management $354$2,654
IX-24 Other expenses (24a–d)Programs $78,345 · Management $13,818$92,163
IX-24e All other expensesPrograms $15,448 · Management $4,278$19,726
IX-25 Total functional expensesPrograms $485,091 · Management $34,001 · Fundraising $0$519,092
Part X · Balance sheet $530,512 assets, 7 lines filed
X-1 Cash, non-interest-bearingStart of year $445,168$475,583
X-9 Prepaid expenses and deferred chargesStart of year $15,476$54,929
X-16 Total assetsStart of year $460,644$530,512
X-26 Total liabilitiesStart of year $0$0
X-27 Net assets without donor restrictionsStart of year $460,644$530,512
X-32 Total net assets or fund balancesStart of year $460,644$530,512
X-33 Total liabilities and net assetsStart of year $460,644$530,512
Part XI · Reconciliation of net assets $530,512 net assets at year end
XI-1 Total revenue$588,959
XI-2 Total expenses$519,092
XI-3 Revenue less expenses$69,867
XI-4 Net assets at start of year$460,644
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$530,512

Form 990 e-file FY2024 from the IRS (about our sources) · Classification, formation year and address from the IRS Business Master File

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