Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Dec 2015.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
4 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
3 people listed on the 990.
Marie Rand’s $150K as Board Secret is at the 88th percentile of top reported officer pay among 329 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Spreading awareness and driving innovation to find a cure for pulmonary hypertension.
Questions for Phaware Global Association
Your first name shows with your question. Phaware Global Association answers here, for everyone.
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Breathless on Broadway
Learn more about pulmonary hypertension at an intimate evening of music and conversations with broadway's biggest stars. This exclusive, invitation-only evening allows attendees to experience live performances and hear stories of how the magical world of broadway weaves together friendships and work relationships that last lifetimes.
Global Outreach Initiative
Uses phaware's unique abilities to leverage today's advanced technology to create greater patient to patient, patient to doctor, and doctor to patient connectivity and to drive awareness at a global level. This includes "I'm aware that I'm rare" podcasts, awareness videos, and livestreams.
Im Aware That Im Rare
Phaware podcasts are quality and expertly produced global podcasts with season five beginning in october 2020. Over years phaware has elevated our podcast content of impactful,insightful, educational and most importantly, hopeful stories from members of the global pulmonary hypertension community including PH and cteph patients, medical…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $909K | $859K |
| Land, buildings, equipmentLn 10c | $3K | $87 |
| Total assetsLn 16 | $912K | $859K |
| LiabilitiesLn 26 | $21K | $0 |
| Net assetsLn 32 | $891K | $859K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Other salaries and wagesLn 7 | $122 | $122 | ||
| Payroll taxesLn 10 | $8 | $8 | ||
| Legal feesLn 11b | $2K | $2K | ||
| Accounting feesLn 11c | $6K | $6K | ||
| Other fees for servicesLn 11g | $114K | $114K | ||
| Advertising and promotionLn 12 | $43 | $43 | ||
| Office expensesLn 13 | $675 | $675 | ||
| Information technologyLn 14 | $1K | $1K | ||
| TravelLn 17 | $4K | $4K | ||
| Depreciation, depletion and amortizationLn 22 | $6K | $6K | ||
| InsuranceLn 23 | $2K | $2K | ||
| Other expenses (24a–d)Ln 24 | $16K | $16K | ||
| All other expensesLn 24e | $59 | $59 | ||
| Total functional expensesLn 25 | $153K | $6K | $147K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $224K | $560K | −$336K | $511K | 990 PDF |
| FY2023 | $257K | $269K | −$12K | $847K | 990 PDF |
| FY2022 Viewing | $102K | $153K | −$52K | $859K | 990 PDF |
| FY2021 | $484K | $345K | $139K | $891K | 990 PDF |
| FY2020 | $348K | $528K | −$181K | $754K | 990 PDF |
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Schedules filed Part IV
See the full FY2022 990 (6 parts)
Part I · Summary $101,509 revenue, 12 lines filed
Part VI · Governance 3 of 3 board members independent, 2 to look at
Part VIII · Statement of revenue $101,509 across 4 lines filed
Part IX · Statement of functional expenses $153,352 across 13 lines filed
Part X · Balance sheet $858,901 assets, 8 lines filed
Part XI · Reconciliation of net assets $858,901 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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