Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Dec 2014.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Who runs it and what they're paid
5 people listed on the 990-EZ; $48K paid to officers and key staff.
Joann Pushkin’s $48K as Executive Director is at the 33rd percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Joann Pushkin | $48,000 | $55,667 | $40,000 | $44,792 | — |
| Joann Pushkin | — | — | — | — | $35,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Programs and updates
A disease and medical nonprofit based in Deer Park, NY.
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990-EZ, line by line.
Download 990
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $146K | $197K | 990 PDF | ||
| FY2023 | $180K | $252K | 990 PDF | ||
| FY2022 | $161K | $249K | 990 PDF | ||
| FY2021 | $150K | $233K | 990 PDF | ||
| FY2020 | $143K | $208K | 990 PDF |
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Schedules filed Part IV
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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