Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Dec 2014.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
64 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
16 people listed on the 990; $138K paid to officers and key staff.
George Eastwood’s $99K as Chairman is at the 68th percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 |
|---|---|---|---|
| George Eastwood | $99,000 | — | — |
| Jodie Potter | $15,083 | $11,775 | $3,998 |
| Thomas Whitehead | $12,000 | $12,000 | $7,744 |
| Kari Whitehead | $12,000 | $12,000 | $7,744 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Funds and raises awareness for less toxic childhood cancer treatments and supports affected families.
Questions for Emily Whitehead Foundation
Your first name shows with your question. Emily Whitehead Foundation answers here, for everyone.
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Program Hightlights
Advocacy & access - the foundation advances awareness, advocacy, and equitable access to cell, gene and advanced therapies for individuals with cancer and rare diseases. Its programs promote education, patient and family support, and collaboration among researchers, clinicians, and policymakers to accelerate the development and delivery…
Research Grants to Orgs
The emily whitehad foundation funds innovative research projects that advance the development and accessibility of cell, gene, and immunotherapies for patients affected by cancer and rare diseases. Projects are selected through a competitive review by leading scientists and clinicians in the field of advanced therapies.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $526K | $707K |
| InvestmentsLn 11–13 | $0 | |
| Land, buildings, equipmentLn 10c | $1K | |
| Total assetsLn 16 | $550K | $733K |
| LiabilitiesLn 26 | $28K | $30K |
| Net assetsLn 32 | $522K | $703K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $0 | |||
| Grants to domestic individualsLn 2 | $0 | |||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $40K | $24K | $9K | $7K |
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $0 | |||
| Pension plan contributionsLn 8 | $0 | |||
| Other employee benefitsLn 9 | $0 | |||
| Payroll taxesLn 10 | $4K | $2K | $876 | $703 |
| Management feesLn 11a | $0 | |||
| Legal feesLn 11b | $0 | |||
| Accounting feesLn 11c | $4K | $4K | ||
| Lobbying feesLn 11d | $0 | |||
| Professional fundraising feesLn 11e | $0 | |||
| Investment management feesLn 11f | $0 | |||
| Other fees for servicesLn 11g | $0 | |||
| Advertising and promotionLn 12 | $0 | |||
| Office expensesLn 13 | $7K | $1K | $5K | $58 |
| Information technologyLn 14 | $0 | |||
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $9K | $3K | $4K | $3K |
| TravelLn 17 | $47K | $34K | $1K | $12K |
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $0 | |||
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $361 | $361 | ||
| InsuranceLn 23 | $2K | $238 | $2K | $72 |
| Other expenses (24a–d)Ln 24 | $550K | $369K | $108K | $74K |
| All other expensesLn 24e | $109K | $64K | $13K | $32K |
| Total functional expensesLn 25 | $773K | $497K | $147K | $129K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $955K | $773K | $182K | $703K | 990 PDF |
| FY2023 | $369K | $470K | −$100K | $522K | 990 PDF |
| FY2022 | $549K | $377K | $173K | $628K | 990 PDF |
| FY2021 | $433K | $223K | $210K | $455K | 990 PDF |
| FY2020 | $192K | $223K | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $954,665 revenue, 12 lines filed
Part VI · Governance 13 of 16 board members independent, 1 to look at
Part VIII · Statement of revenue $954,665 across 9 lines filed
Part IX · Statement of functional expenses $773,109 across 31 lines filed
Part X · Balance sheet $733,054 assets, 18 lines filed
Part XI · Reconciliation of net assets $703,346 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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