Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Nov 2014.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
81 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
12 people listed on the 990; $80K paid to officers and key staff.
Teri Koerner’s $2K as Director of Research is at the 10th percentile of top reported officer pay among 89 <$100K medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|---|
| Teri Koerner | $2,136 | $81,260 | $40,000 | $41,539 | $40,000 |
| Cameron Hancock | — | $40,630 | $40,000 | $41,539 | $40,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Advocates for research to find treatments for rare diseases.
Questions for Snyder-Robinson Foundation
Your first name shows with your question. Snyder-Robinson Foundation answers here, for everyone.
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Snyder-Robinson Syndrome Patient Registry and Natural History Study (ongoing): This IRB-approved study gathers medical data from SRS patients to help researchers to understand SRS and to develop treatments for SRS. This includes salary expense for our Director of Research and related expenses (i.e., payroll taxes and payroll service).
Education/Website
We maintain a website and create digital content to share information about SRS, including information for health care providers. Our website may be found at www.snyder-robinson.org. We also incurred membership expenses for the National Organization for Rare Disorders, the Canadian Organization for Rare Disorders, the Canadian…
Conferences/Meetings
We participate in relevant scientific conferences, including the Gordon Polyamine Conference, where the role of polyamines and polyamine-associated pathways are discussed. Genetic disorders of the polyamine pathway, including SRS, are also discussed. This category also video conferencing (ZOOM) expenses for patient family meetings.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $235K | $288K |
| Total assetsLn 16 | $235K | $288K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $235K | $288K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $80K | $40K | $40K | |
| Payroll taxesLn 10 | $5K | $3K | $3K | |
| Other fees for servicesLn 11g | $1K | $643 | $643 | |
| Conferences, conventions and meetingsLn 19 | $3K | $3K | ||
| InsuranceLn 23 | $0 | |||
| Other expenses (24a–d)Ln 24 | $138K | $138K | $265 | $0 |
| Total functional expensesLn 25 | $227K | $184K | $43K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $68K | $69K | 990 PDF | ||
| FY2024 | $28K | $172K | −$144K | $14K | 990 PDF |
| FY2023 | $59K | $217K | −$159K | $158K | 990 PDF |
| FY2022 | $194K | $165K | $29K | $317K | 990 PDF |
| FY2021 Viewing | $281K | $227K | $54K | $288K | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $280,812 revenue, 12 lines filed
Part VI · Governance 7 of 7 board members independent, 4 to look at
Part VIII · Statement of revenue $280,812 across 9 lines filed
Part IX · Statement of functional expenses $227,243 across 6 lines filed
Part X · Balance sheet $288,110 assets, 7 lines filed
Part XI · Reconciliation of net assets $288,110 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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